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Hey guys and girls! My worst symptom on my journey with what i think is „something in the field of hppd“ is sound sensitivity. After months of research i finally think that it is - in my case - mostly middle ear related. The massive anxiety in the first weeks with mild visual symptoms completely messed up my startle response which is deeply connected to the muscles of the middle ear. If you startle - the tiny muscles in the ears contract heavily to protect you against loud sounds. Those contractions can become chronic, even if the anxiety that caused it in the first place is mostly gone. My approach now is a surgery in the middle ear in which the surgeon cuts those tiny muscles (you dont nessecarily need them). To be more sure with the diagnosis before cutting those muscles (its permanent) i could try the antiepileptic carbamazepine or the newer version of it, oxcarbazepine. This medication calms the facial nerves which innervate the muscles in the ear. And if that works for my sound sensitivity its very likely that the surgery will work too. So, do you think its safe to use it for maybe 2-3 weeks in a moderate dosage or is it risky and i should just have the surgery done?  Hope youre doing good, stay strong 💪🏼   

I had that same thought when I first heard of these “therapies” and it scared me. I am also more scared because my eldest son who is 20 recently told me that when he turned 21 he wanted to “get into mushrooms” by which I’m assuming he meant trying a therapeutic approach to his depression and anxiety and I’m really fearful of what will happen to him.

Hello, You will not get into trouble for taking drugs, at least not with the law. (At least here in the States, idk where you live or the laws there.) I got HPPD when I was 19 (I am now 45) and when I went to a bunch of doctors for my symptoms, I did not tell them I had done LSD because I thought I would go to jail. This was not the case, and I wish I had told them. You are so precious and we are all here for you. It’s not your fault that you have this condition and you are not “bad” for experimenting with drugs, tons of people do and some of us just happened to get HPPD. xoxo