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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  • Hallucinogen Persisting Perception Disorder (HPPD) support forum - HPPD, flashbacks, drug-induced visual snow syndrome and depersonalization/derealization.

    Common HPPD symptoms: visual snow, palinopsia (trails/afterimages), increased BFEP, increased floaters, ghosting, halos, starbursts, macropsia/micropsia, geometric hallucinations, closed-eye visuals, flashbacks, depersonalization/derealization, anxiety, depression, brain fog, cognitive dysfunction, tinnitus.

  • Recently Active Topics

  • Latest Posts

    • FightForYourDreams
      Keppra (NAME BRAND ONLY) cured my HPPD after 15 years

      By FightForYourDreams · Posted

      Hey guys I started keppra a week ago and haven't noticed any positive effect on my symptoms.  it just makes me tired.  Is it worth taking it longer, or should the positive effect begin now? Thanks for answer. Greetings    
    • AF44
      Dan

      By AF44 · Posted

      That’s really interesting! On the forum, someone mentioned having nystagmus, horizontally, but their eyeballs weren’t actually physically moving. I myself had an experience with a doctor years ago, he shut off the room light quickly and shined a flashlight at me and said, “I have never seen anyone’s eyes do that!” I was so nervous I didn’t even ask what my eyes had done that surprised him. I wish I had asked. This response probably does nothing to help. Sometimes though, my eyes will jerk to the side. I don’t know if it just feels that way or if my eyeballs are physically moving. It happens sporadically. I thought of that just now. I never really thought much about my eyes jerking until I read this. Interesting. Maybe other people have this phenomenon? 
    • AF44
      HPPD since 1972

      By AF44 · Posted

      Tell me about it! 

  • Recent Status Updates

    • thequestioner827

      thequestioner827  »  David S. Kozin

      Hi David, I was wondering if you had a full text version of the paper you posted here:
      I have university access to PubMed and Medline but I'm still unable to find a full-text version, only an abstract like what is posted here.
      Thanks in advance!
      · 0 replies
    • since92

      since92  »  David S. Kozin

      Hi Dave, I see in your profile pic one of your original posts from 1999, then I see that you joined this one in 2010.  Is it possible to see posts from the forum that we all used to message on - I'm presuming that you and I were on the same one forum?   It's because another user and I are looking for people we messaged with back in 2003 but I think though that I had a different user name in those days.  Do you know of that forum and whether we can access posts from those days?  I would like to see those early posts of mine because they had a lot of info about how my HPPD developed etc..  Many thanks.
      · 0 replies
    • David S. Kozin

      David S. Kozin

      Haven't slept longer than 4 hours in three days.
      My HPPD is off the charts.   will not be available at all today. Please contact Jay1 for all of your needs. 
      · 0 replies
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