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What if I had a research protocol in hand that specifically mentions how HPPD could be reversible but wasn’t able to circulate it, fundraise for it without permission from the physician scientists who drafted it?

You can’t imagine how hopeful and at the same time how powerless I feel....

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I have it for some time and I’ve read once, months ago but wasn’t as thorough in going about it until last night.

As you may or may not be aware, I started a non profit for HPPD years ago. In that time, I’ve had no success in recruiting a physician scientist to help us. That changed when a patient and member of this forum went to see a psychiatrist, told him about HPPD, the foundation and literally asked him for help, to get involved.

 

The research physician is Dr. Harry McConnell. He and his PhD associates drafted the protocol. What was missing was money so I got in touch with Dr. Abraham who connected me with the man (Chris) behind the HPPD foundation who has pledged $100,000 per year toward HPPD research and together Harry, Henry and Chris produced the 5th and final rendering of the protocol. With the seed money from Chris, Harry was able to approach a research institution (Macquarie University) to back the study and match the initial seed money to fund the project and pay a qualified researcher to run and interpret tests ranging from genetics, immunology, neuroimaging and more.

The caveat is that I was told not to crowdfund or release the study to anybody until Harry had, in writing, that Macquarie formally accepted the protocol. Of course there’s more to the story but I need to get to work. The point is that I’m just desperate to see something happen, just want to get better, for us all to regain some semblance of normalcy and undo the damage HPPD had done to us all in the worst way. 

I guess I was having a cathartic moment as I’m so tired waiting but I suppose I have no choice...

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If anyone is interested in helping, I could use a hand in registering the non profit in the states that require it which I believe are 37. Can’t fundraise in all 50 when the time comes without being compliant with state mandates.

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Just to clarify, the protocol is fully developed? If so, that’s amazing. I’m a bit skeptic though since each drug causes different types of HPPD. I got mine from nBOME, and it seems like the effects and severity are different from HPPD from other drugs. It makes me wonder whether or not this research protocol will help me, although any research on finding a cure or better treatment is always welcomed. Do you have a timeframe for how long it may take for the research protocol to be released/worked on? I’d be willing to do anything I could to help, although there isn’t much I can do immediately besides raise awareness since I’m a freshman in college.

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They seem to have legitimate reasons to wait for it to go public, so I think you need to respect them. Though that does not mean you cannot try it yourself, right? If it works for you, then that would be a great indicator and, although it would be hard to wait for a public announcement, that's the way it goes.

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  • 1 month later...

yes, very exciting news! 

The protocol is fully developed and is seriously amazing/mind-blowing.

I was asked to participate in some tests By Professor Mcconnell as the protocol was being put together which included a sleep-deprived QEEg (which was hell)

As far as I am aware, the protocol has been put together as a collaboration of all the top authorities on HPPD from around the world.

For something as big as this, its the nature of it that big things do take time. I speak with professor McConnell frequently and he has assured me that everything is on track and moving forward.

In any case, I wish everyone could view this protocol. Definitely there are legit reasons why things can take some time, although it WILL happen. Yes, we need to respect the wishes /protocols of the researchers and not break rapport in any way. 

 

 

 

 

Edited by Spartan
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  • 2 weeks later...

No.

The research study is specific in trying to determine the underlying problem behind the disorder which the researcher believes might be reversible. There is no cure currently on the table but the research could lead to one. Could be soon, might be never; we’ll never know unless the work he’s doing is supported. 

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  • 2 weeks later...
On 11/14/2019 at 5:01 AM, hope1 said:

No.

The research study is specific in trying to determine the underlying problem behind the disorder which the researcher believes might be reversible. There is no cure currently on the table but the research could lead to one. Could be soon, might be never; we’ll never know unless the work he’s doing is supported. 

Awesome, thanks for the response. You never called me back....

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  • 2 weeks later...
  • 1 year later...

The HPPD research protocol has been approved. The NRF is accepting donations, 100% of which will go to fund it.

https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo

Considering federal funds are non existent to pay for the research, it is up to us, family, friends and other loved ones to support it. Please donate here:

https://www.neurogroup.org/donate/

Click this link to sign up if you would like to become a participant:

https://www.neurogroup.org/the-foundation/register-with-the-nnrf/

It finally happened...

 

 

 

 

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On 9/22/2019 at 12:01 PM, Guest said:

What if I had a research protocol in hand that specifically mentions how HPPD could be reversible but wasn’t able to circulate it, fundraise for it without permission from the physician scientists who drafted it?

You can’t imagine how hopeful and at the same time how powerless I feel....

That awesome bro!

Edit: Just realized this is a thread bump lol

Edited by Fawkinchit
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