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NRFAdmin

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NRFAdmin last won the day on June 15

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  1. Our mission is to fund research that will undo the damage from HPPD but we, as patients, can’t fight this battle alone. We need family and friends to organize, lend their voices, raise awareness and get legislators to pay for research!
  2. After a decade of hard work, the Neurosensory Research Foundation (NRF) a which began with a group of HPPDer’s with moderate to severe forms of the disorder is pleased to announce that th HPPD research protocol has been approved. The NRF is accepting donations, 100% of which will go to fund it. https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo Considering federal funds are non existent to pay for the research, it is up to us, family, friends and other loved ones to support it. Please donate here: https://www.neurogroup.or
  3. The HPPD research protocol has been approved. The NRF is accepting donations, 100% of which will go to fund it. https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo Considering federal funds are non existent to pay for the research, it is up to us, family, friends and other loved ones to support it. Please donate here: https://www.neurogroup.org/donate/ Click this link to sign up if you would like to become a participant: https://www.neurogroup.org/the-foundation/register-with-the-nnrf/ It finally happened...
  4. There are those with manageable symptoms and those whose symptoms are so severe that the result can end up in suicide. There’s no hard and fast rule with this disorder which is why it must be researched and cured.
  5. @Fawkinchit I’ve had the study in my possession for several years but couldn’t share it as it would jeopardize it being accepted by Macquarie.
  6. Yes, that’s been in the works for quite some time. if you want to volunteer or donate, click here: www.neurogroup.org
  7. The moderators of the rHPPD board on Reddit have banned me and will not allow any discussion involving the Neurosensory Research Foundation. This research project has been a labor of love that was wrought out of blood, sweat and tears over the span of 12 years. Why the moderators deny to recognize this is a mystery to me.
  8. @Hall89 Yes, that is the link to the study. Details have not been released as it is still pending approval from the IRB. How did you find that link?
  9. The NRF is on the cusp of the first in depth research study into HPPD which will require funding and participants. Basic information can be found here: https://www.neurogroup.org/hppd-research-study/ I highly encourage every board member to take the time to volunteer and enlist. In order to enlist, please access this link: https://www.neurogroup.org/the-foundation/register-with-the-nnrf/ The results from the first phase of the research will ultimately lead to other sites around the world. Having a database at hand of patients delinated by countries and cities will ex
  10. We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure.
  11. I need a Grant Writer. If anyone on this board is interested to help the Neurosensory Research Foundation (www.neurogroup.org) with the required skills, please contact neurogen00@gmail.com Thanks
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