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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  • Hallucinogen Persisting Perception Disorder (HPPD) support forum - HPPD, flashbacks, drug-induced visual snow syndrome and depersonalization/derealization.

    Common HPPD symptoms: visual snow, palinopsia (trails/afterimages), increased BFEP, increased floaters, ghosting, halos, starbursts, macropsia/micropsia, geometric hallucinations, closed-eye visuals, flashbacks, depersonalization/derealization, anxiety, depression, brain fog, cognitive dysfunction, tinnitus.

  • Recently Active Topics

  • Latest Posts

    • boyo4202
      Psychiatry consult

      By boyo4202 · Posted

      Thanks guys, I had my appointment today but I didn’t really get anywhere. I had already been to a neuro and he’s wanting to treat me with high dose propranolol before any epilepsy drugs. It seems like the psych is unwilling to butt in and just wants me to take the propranolol up to 240mg. This wouldn’t be a problem as propranolol certainly won’t do any harm, could even help slightly, but it’s going to take 6 month to give it a proper trial. Just slows everything down so I’m in the shit for the foreseeable future. Thinking about going privately and trying to get some lamotrigine on the side but it’s all a bit scuffed. Klons are definitely on my list but given that you can only take them every other day and need to take tolerance breaks I’d rather try an epilepsy drug first.
    • AF44
      Psychiatry consult

      By AF44 · Posted

      Hello!  I take benzos, I have been on Klonopin for many years. It has been by far the best medication for taking most of my symptoms away. However, as Jay said, you do have to use them carefully. I have taken Klonopin every day since about 2009. While it has helped relieve my symptoms, the flip side is that if I am ever taken off of it, I’ll suffer not only withdrawals but the return of my HPPD symptoms, probably far worse than they were before the medication. I take lamotrigine as well and personally I think it helps too. Keep us updated!
    • Jay1
      Psychiatry consult

      By Jay1 · Posted

      Hey welcome to the forum, here is one paper that mentions both as possible treatments: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870365/ My personal advice is to try one thing at a time rather than throwing everything at it... So see what the doc says about the two meds you are interested in trying before thinking about supplements and other meds.  btw - unlike reddit, you are free to discuss benzos on here too... They can be a useful tool in managing HPPD, if treated with respect. 

  • Recent Status Updates

    • Spartan

      Spartan

      "hurt people hurt people"
      · 0 replies
    • thequestioner827

      thequestioner827  »  David S. Kozin

      Hi David, I was wondering if you had a full text version of the paper you posted here:
      I have university access to PubMed and Medline but I'm still unable to find a full-text version, only an abstract like what is posted here.
      Thanks in advance!
      · 0 replies
    • since92

      since92  »  David S. Kozin

      Hi Dave, I see in your profile pic one of your original posts from 1999, then I see that you joined this one in 2010.  Is it possible to see posts from the forum that we all used to message on - I'm presuming that you and I were on the same one forum?   It's because another user and I are looking for people we messaged with back in 2003 but I think though that I had a different user name in those days.  Do you know of that forum and whether we can access posts from those days?  I would like to see those early posts of mine because they had a lot of info about how my HPPD developed etc..  Many thanks.
      · 0 replies
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