Onemorestep

Took 15 mg a few hours later. Still no changes good or bad. Just took 30mg raising my total dose to 50mg for today. Going to chill on that and see how I feel tomorrow. Actually had a not too terrible day today! I honestly think it's the thiamine cocarboxylase though that stuff is magic for mood. Will probably take the full 50mg at once in the morning when I get up and maybe another 25-50 in the evening depending on how I feel. I hope to tite ate up until I see a change whether it be bad or good. Even if I feel nothing at all I'll stick with the regimen for 6 months or so and see where I'm at. Excited to see where this goes!

This stuff rocks. I notice a marked decrease in tension when I take it. Wish I had tried it sooner! Thanks

Not recently no. A year ago I took it a few times. Only once a week. On the third week o skipped and went into withdrawals. Bizarre right?! I guess I'm an extremely slow metabolized for the stuff because I thought I was doing it safe. Not huge amounts either. Like a gram.

Not recently no. A year ago I took it a few times. Only once a week. On the third week o skipped and went into withdrawals. Bizarre right?! I guess I'm an extremely slow metabolized for the stuff because I thought I was doing it safe. Not huge amounts either. Like a gram.

I decided to give keppra a shot. Too many miracle success stories for me to ignore! I also felt huge relief from oxiracetam and coluracetam (before I started having speech problems and quit cold turkey... HUGE mistake. Should have tapered. Still recovering from that a year later) and am hoping this racetam will be the golden ticket. I know it probably won't but that me mindset was the only way I could get myself to try it xD I am starting out with a test dose of 5mg to make sure I don't have an abnormal drug reaction as I am sensitive to all chemicals. Little history: I've suffered several TBI's over the years and suffered from chronic anxiety and depression for years. I had several HPPD symptoms pre drug use that I didn't realize weren't normal until my onset years later (light wiggling of lines where walls meet ceilings, DR, PTSD like anxiety) Had my first bout of HPPD from DXM use when I was 20. I started to have horrible nightmares and couldn't sleep for more than 5 hours at a time. Horrible anxiety. Stress. Etc. didn't know it was a HPPD symptom then though. Recovered naturally over the course of probably 6-8 months but still had reaccuring panic attacks from time to time. At the age of 21 (fall 2011) I started smoking pot chronically. I mean I jumped RIGHT in. Morning noon and night. I found my true love! It seemed to cure me of my social anxiety and what I now know is fibromyalgia/spastic hypertonia. I stated experimenting with mushrooms a year later. Once in the fall of 2012 and then a LARGE amount of mushroom use in the spring and one LSD trip which triggered the majority of my symptoms. I partially healed mentally but still had DP/DR, static, morphing of objects, anxiety, depression. One year ago all my symptoms were drastically worsened through abrupt cessation of oxiracetam and coluracetam. Now I feel suicidal on the regular, have extreme brain fog, dp/dr and anxiety. I use no drugs. I do not drink. Supplements Magnesium Sporadic gabapentin (300mg) Methyl folate B complex Valerian root (just finished withdrawals, that was a bitch) Last few weeks I tried very low dose uridine. Didn't seem to help Tried small doses of 7,8 dihydroxyflavone (1/10th normal doses). Worked a bit. Caused constipation that lasted weeks and a heavy withdrawal day. Haven't taken benzos in a two months. Probiotics Thiamin cocarboxylase It has been an hour and I don't feel very different. My legs feel heavy when I walk however. Strange. Looks like I didn't die so that's good! I will continue to experiment with increases dosages and keep reporting. Keep those fingered crossed for me! Much love

As much as I hate to agree with someone who doesn't understand what a period is, this stuff fucked me up bad.

Makes sense as it antagonizes GABA I think. Permanently worse?

tried my first dose. didnt really notice anything. will continue and see...

Also... has anyone had any of the crazy weight gain problems on keppra? or hair loss? there are some real horror stories out there

Even supplementing b vitamins? What was your dosage?

Valerian is good but do not take very often as it works on similar receptors as benzos. Just google valerian mechanism of action. Also fantastic for sleep. But once again don't take more than two days in a row without washing out. I'm going through WD right now and it ain't fun.

I was wondering if anyone here has experienced permanent negative changes from using Keppra. I have a prescription and the success stories give me such hope of recovering some semblance of a normal life.... But I'm worried. Specifically because keppra is a racetam and oxiracetam and coluracetam made my HPPD 10000x worse permanently after stopping them suddenly. (At first they seemed to cure? Static, warping gone. Old memory back and ability to feel positive emotions back) The question I'm asking myself is if I can afford to feel worse to which I answer no but... Can I afford to not feel better? It's been a year since I entered what I feel is the second tier of HPPD hell and I often feel like I shouldn't be alive. I'm not sure how much more my soul can take of this. Since the mechanism of action for both keppra and most racetams are pretty unknown does anyone have any advice or knowledge about their similarities or differences?

Do not takeeeeee. Has the potential to permanently make HPPD worse.

Whenever someone doesn't continue to update I always wonder if they just feel better so they left the community or they like... Idk died or something.

Any luck?

Sooooo status report? Always concerning when someone says they will try something new and just disappears haha

That sounds safe. And you can always go back on if you don't like what you are experiencing. Best of luck!

Ordered mine and it should arrive Tuesday! Very excited )) thanks so much visual for bringing this to the attention of the community.

I wanted to give an update on my sine met use: had to discontinue >_< a few weeks after starting last December I developed a flaky rash on my face near my nose and on my back and groin. I thought it was something I picked up from a hot tub but unfortunately it was the sinemet. By the end, just taking even a quarter of a 25/100 would send my skin into a burning rampage. Such a shame it really helped. At least it stopped my muscle fasciculations. Unfortunately my upper life area might be kind of reddish for the rest of my life >_< every few weeks I have to use topical steroids to calm it down so it doesn't peak but it is red. Thank god for facial hair.

I tried this for like a week this month. Noticed that (at least for my weird brain chemistry) there was some increase in serotonin. I get sexual side effects from SSRIs that were similar to what this causes. Also when I stopped taking it I had a HORRIBLE time two days later--- feelings of SSRI withdrawal, muscle tension and cramping all throughout my body, extremely decreased motility, extreme depression.... Lasted for a day and then I was much better the next. Except for the motility. I didn't shit without an enema for a week. Now I'm going once every two days which still isn't enough. This could eh unrelated to the compound though unless it triggered one of my HPPD symptoms (gastric issues) Good antidepressant effect though while it's working. Also I was taking VERY low doses. I think I probably ingested between 20 and 40 mg throughout this whole thing (insulfated). I found it to be powerful enough when taken in small increments throughout the day (1-3 mg) First few times I didn't notice much but after a while I would get a sort of rush while taking it. Maybe something I will take in the future sporadically but I'm talking like once a week to prevent whatever happened last time from reaccuring.

I'm considering going on this. I've had a script here laying around for the past 5 months and have been too scared to take it. Have you had negatives that make you want to stop? Maybe go slow since you've been on for a while. 50mg a week is probably safe. Just be aware of your body and take it slow. Unless you're desperate to get off there's no reason to rush things

Relationships have always helped me somewhat and hurt me in other ways. I tend to get overly attached and sync my self esteem and entire personality with the person. They become part of how I view my self and that, combined with anxiety about not being good enough, leaves me anxious about abandonment. This can cause me to feel jealous or controlling. Plus I tend to rely on them too much as my main form of social interaction because it's easier than putting myself out socially as I'm incredibly uncomfortable and apathetic about social interaction. Lastly, when I was still smoking pot and drinking I had quite a temper. I never physically abused anyone but man I could blow my top. It's taken me a few years to get my anger more under control since I used to never get angry. I actually have a script for keppra but I'm too terrified to try it because I've heard of the rage issues :/ These problems were there before HPPD they just are harder to control when I'm dealing with feeling like I want to die >_< Relationships can be a fool for personal growth and betterment or a trap that leaves you destitute. I hope to be able to balance my personal responsibilities and a relationship one day but who knows. My therapist told me recently that I had started to look at my relationships with others as a third identity seperate from myself and them and that's a good thing. I tend to agree, because when I think of the health of a relationship as a third entity I'm better able to properly manage it and not be selfish/put too much strain on it.

I've done hundreds of them pre and post HPPD. It can help. Sometimes a bit stimulating which isn't always great. I think symptom relief would be very individualized. I would say a definite go except for the fact it's so expensive.

Dosages and any other medication you are taking would have been helpful. When I was feeling very bad last year trazadone made me feel pretty good while the sedative qualities were in full force. Now a few months later I'm doing emotionally better but haven't taken it in some time and am afraid give it another shot. I've noticed as HPPD changes for me some things that were helpful are counterproductive. Such a strange disorder smh.

I'm always dismayed about the medical communities seeming lack of interest in HPPD and the abysmal amount of research that goes into helping us who suffer from it. I'm eagerly awaiting the day finding comes along to start some real research but I feel this may take quite some time. However, some of us may be finding help elsewhere in the future--mainly through programs DARPA is funding. Check out this new research on helping those with memory impairments I'm very excited to become a cyborg http://www.darpa.mil/program/restoring-active-memory