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Everything posted by Onemorestep

  1. Hppd made me gain weight. This doesn’t seem to happen to everyone but some people gain weight. It could be stress eating for some but wasn’t for me. when I first got hppd I lost a lot of vocabulary and I would stop talking mid sentence. It was like I couldn’t find the words. I knew what I wanted to say meaning wise, but it was as if I had lost language. I had a huge amount of anxiety about people thinking I was weird or whatever. Most people didn’t even notice. and lastly—- these things went away. I don’t have pausing issues with speech and the weight went away. G
  2. virus’s are super interesting to me. They’re these things—dead? Alive?— that can enter a host and tell their cells to do… well anything. Even making zombies. If you took all the virus’s on the planet, and put them in a block, it would completely encompass the Eiffel Tower. There are so many virus’s on this planet we’ve never identified. But what happens when a virus inters your brain? Could hppd be caused by our bodies pruning infected cells? 1) hallucinogens are powerful immune suppressing substances 2) all of us have dormant virus’s 3) some virus’s aren’t noticeable
  3. unfortunately i dont think you will be able to know whether this was covid or the psuedo. I mean people get covid and complain of a lot of the same things ppl with hppd do.
  4. I found freddds protocol to work for me for quite some time. That is until I got the covid shot. Now my nutritional needs have shifted quite a large bit. Very strange.
  5. It made me sleepy at first but now it causes quite severe insomnia with very small doses. Dont know why haha
  6. I would like that too. I’m very distrustful of these scientific studies sometimes in that they are trying to prove something. So yea they may show x y or a but did they decide to include the debilitating withdrawal the person went through? Or that “hey visuals permanently reduced—but they now have worse anxiety. Let’s not include that part”. 2 is a lot better though gotta say. Wonder what the improvement timeline is. Thing is too—there are 100 percent people who have gotten hppd and have been put on 2mg of klonopin off the bat. Hell my doctor gave me one mg no questions asked back
  7. “ In these five patients with positive respond, four of them were given therapy based on LEV, which may indicate LEV as a preferential choice for patients with DEPDC5 variants. Considering the fact that the loss-of-function variants in DEPDC5 will lead to over-activation of the mTOR pathway, the mTOR inhibitor, such as sirolimus or everolimus, may be a complementary treatment for DEDPC5related epilepsy.” https://aepi.biomedcentral.com/articles/10.1186/s42494-020-0011-9
  8. That’s wonderful!! bso makes me worse but for other it very well might make them better. It didn’t hurt me permanently. it’s a pretty complicated mechanism since it has many different chemicals in it. One of which is alterations in apoptosis and autophagy. it interacts with ampk/mtor, p13k/akt.
  9. Absolutely. As someone who has been through benzo withdrawal and never felt quite the same I would say caution is important haha. I also worry that the withdrawn brain is more primed for withdrawals in the future via kindling. This has been my experience at least. Still, it’s a tempting offer isn’t it. Take 6mg of klonopin a day for 2 months and reduce your hppd?... ...can I do it on a beach too somewhere ?
  10. So I have a theory on hppd that involves hyperactivity (of dysregulation) of mtorc1 and mtorc2. One of the things that happens in this scenario, is gaba a receptors... well the easiest way to describe it is they go bad hide. This is part of a cyclic loop that causes this brain state that is excitatory and cannot heal itself. I think there is some merit to the idea that a high dose of benzodiazepine for a short period may help. But it seems that it’s important it be clonazepam. Clonazepam is a pretty unique benzo. It also acts on serotonin systems seemingly without causing panic in pe
  11. https://link.springer.com/article/10.1007/s12031-020-01611-x
  12. https://www.google.com/search?q=amiltryptyline+mtor&rlz=1CDGOYI_enUS931US931&oq=amiltryptyline+mtor&aqs=chrome..69i57.7449j0j4&hl=en-US&sourceid=chrome-mobile&ie=UTF-8 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4317004/
  13. speaking of which: https://www.pnas.org/content/118/5/e2020705118 this really falls in line with your thoughts as a possible etiology. Having hyper activated mTorc1 basically can cause everything you’re saying and more.
  14. Hello everyone! The following is a bunch of research on how, through the modulating of mTOR, we could arrive at our present situation. my apologies for the lackluster organization. its a lot. First off LSD has JUST been shown to increase mTORC1: "Social behavior (SB) is a fundamental hallmark of human interaction. Repeated administration of low doses of the 5-HT2A agonist lysergic acid diethylamide (LSD) in mice enhances SB by potentiating 5-HT2A and AMPA receptor neurotransmission in the mPFC via an increasing phosphorylation of the
  15. its very pro usage. Unfortunately a lot of what i come across in new psych research is all pro even when it has GLARING implications for this and other diseases
  16. Oh for sure. The article on hallucinogens and autoimmune is simply to further illustrate, after the pig study, that hallucinogens can have an effect on our immune functioning in a permanent way. And immune system dysfunction in the cns —> increased interleukins—>mitochondrial, astrocyte, microglial ros crazy time party. I am in no way am I suggesting that one should take them if you have hppd hahaha. I didn’t think I needed to point that out but for anyone who sees that article— please do not infer that a) hppd is an autoimmune condition—that, like everything else on this website, is th
  17. will it? Probably will improve for sure. You could also meditate, take cold showers, and reduce stress instead of meds.
  18. Yes— imo this is inflammation. When I’ve had BAD hppd it’s felt like narcolepsy even. When the brain is under stress like this, endogenous cannabinoid activity also increases. Can add to that spacey sleepy feeling. low dose naltrexone, ibudilast, prednisone short term TAPER. Anything that reduces the following generally should help. Avoid herbs with complex mechanisms of action. You want very direct effects. interluekin-1b; il-b interleukin-6 , il-6 tnf-alpha; tnf-a ibudilast is your best bet IMO at getting a clear head real fast. Very safe profile. One o
  19. You must reduce brain inflammation! Ibudilast is the safest thing i've found for this right now.
  20. Hi Anna! im sorry to hear you are suffering so much I’m a bit short on time but to answer your post question: there is indeed a link between HPPD and seizure that is gaining credibility. Here is a post explaining why you can show this to your psychiatrist and it may help you get a prescription for this if you want. There are likely 100’s of different specific subtypes of hppd as it relates to treating it with chemicals, so while Keppra is always a good shot for those who are desperate, it doesn’t work for everyone. Other than that—live your best healthiest l
  21. I don’t know anything about nerve damage and psyche but I do know that psychs, by definition of how they work, leave your body extremely vulnerable for a period of time for latent virus’s living in the body to become active and spread very quickly. Psychedelics are “anti-inflammatory” which is also another way of saying “immune suppressing”. even if there is no link there, I would have yourself checked for Lymes and EBV. I have had all your symptoms during EBV flare ups.
  22. Before we get into the significance of this connection, we must first learn a little bit about what Levetiracetam and SV2A are. click (LINK) for links. Keppra In 1999, Levetiracetam (LEV—commercial name: Keppra©) was approved by the Food and Drug administration as a novel anti-epileptic drug. It is particularly useful in patients suffering from partial seizures, patients less responsive to conventional drugs or showing risks of drug interactions (Hovinga, 2001). Even if the exact mechanism by which LEV acts on seizures is still undefined (we don’t even known if LEV is an agoni
  23. I wonder if there’s a way to quickly get more vitamins in. (Sulbutiamine, magnesium threonate.?)
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