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ddiddy66

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Everything posted by ddiddy66

  1. do you have issues with fatigue and brain fog?
  2. to me, thats the most interesting thing about TC. my brain seems to shut down with any stimulant (caffine, Sinemet). i will litterally be jittery from caffine but my brain wants to go to sleep. not sure if over the years my brain naturally does this to prevent anxiety or if the Effexor I take causes this to block anxiety. its what i consider brain fog.
  3. i got some Sinemet from a friend with Parkinsons. i cant seem to give it fair try because it actually increased my fatigue and makes me so irritable. when i get a good baseline with Keppra (been taking for six weeks) and TC (been taking for three weeks) gonna give it another go
  4. i have visual snow, DR, the ground and patterns move. i still don't know all the terms for my systoms. i didn't get any noticeable benefit from the regular B complex.
  5. Been taking 3 in the morning and sometimes 2 in the afternoon. I've definitely benefited. My energy level has been up though I still crash later in the day sometimes. It's been 3 weeks now. No other symtoms have been helped but any help for my fatigue is priceless.
  6. Dopamine (Sinemt), SSRI (Wellbutrin), even caffine seem to shut my brain down and make me very agitated. Thiamine Cocarboxylase seems to be the only thing my brain will accept for fatigue
  7. I originally thought my anxiety and atleast fatigue were connected. Zero connection. My anxiety has been under control for years. Every other symtom is the same.
  8. I have been overwhelmed by the negative and hopeless comments lately. First off I wanna say that I feel a connection and have the upmost respect for everyone on this forum. You are the only ones that are going thru and understand the extent of our condition. We have all felt alone, confused, depressed and hopeless. I have suffered for over 25 years. The best I've felt is when I challenge myself, stay possitive and hopeful. When newcomers come on I feel a need to lift them up. I know from experience how vulnerable and scary it can be. In the moment, it can feel like nothing will ever get better. IT CAN AND DOES! It's my belief that this site should be to support each other during bad times and to continue compairing notes. I have good days and bad. I admit more bad then good but when I see people like Jay and Visual taking time to help, it always makes things better. So, please take into consideration, all the people who come here for the first time. Let's stick together, be there for each other, stay positive and keep fighting like the tough fuckers we are.
  9. There is nothing wrong with looking at the small positive side. I've been dealing with this condition for 25 years. Anything positive is welcomed by me. Thanks for the post
  10. day 7 of having the flu. i did feel a lot better today but im going to hold off til im well
  11. the flu has stopped me from evaluating too.
  12. just got mine in. for me fatigue is overwhelming. any little help would be huge. im fighting off a cold so i might wait a while before i evaluate
  13. quick summary. within a week felt really good with DR. Started taking Sinemex felt even better for two days. I was aggressively uping the Keppra dosage and started feeling terrible fatigue. I quit the Sinemex and still felt horrible fatigue. I now officially have a cold a long with my wife and son. This could be the reason for the fatigue. Waiting to get better for a clearer evaluation
  14. thanks for posting your test...so interesting. i just found a place local. ill post my results too
  15. is "Keppra rage" supprosed to be temporary? I think it's hitting me.
  16. the link you gave doesnt sell to the general public
  17. gman hang in there bud. I was 17 when this first started. im 41 now. its hard for people who don't understand to deal with it. over time you will get stronger if not better. don't let "right now" overwhelm you. i cant change your parents or fix you. all i can tell you is your not alone. I know what your going thru. that makes us brothers and we'll get thru it together.
  18. i have stopped the Sinemet for now and have moved to 500 mg in the morning and 1000 mg at night
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