ddiddy66

I know exactly what your talking about. I have good days and bad. I wish I could figure out what factors in to a good day. I do know I'm almost guaranteed a bad day when I drink the night before

how come everyone isn't supporting this?

https://www.causes.com/campaigns/95852-have-congress-allocate-funding-for-research-into-hppd

Just saw this posted on Facebook. Even though it's pro LSD, I still shared it and asked people to look up HPPD. The more that's known could only help us.

I think this is a legitimate question. It's not just pointless worrying. Some medications help other symptoms but make me spacey. If I am high risk I might quit taking. Then again if no one knows then it is pointless

Oh, that sucks

great stuff

I wonder that a lot too

great point

This is very interesting. I've never been able to explain my "frame rate" symtom before

Drinking has always been been an escape for me. I've also always felt worse the next day. In a sick way I seem to get comfort being able to tell myself I feel crappy cause I'm hung over. While its a stretch to say TC is a cure, if a 'cure' was found, would people just double up on drugs and cancel the 'cure'? What a great question! I do know that the older I get. The desire to be part of life instead of checking out and missing life has grown. Drinking is what I consider "checking out". My dog was hit and killed a couple weeks ago. Sort of started a drinking binge. I will be cutting back again.

I've been drinking heavily for the last two weeks. A lot of the benefits have gone away. It may be I would feel a lot worse without it

Gaz, would you mind telling how you got hppd and your other symptoms? Im particularly interested if you have a lot of fatigue

I've been on Effexor forever. It wiped out my anxiety. But at what cost. I'm not sure. Ive recently cut down to half my normal dosage. I was in such bad shape when I started taking it that its hard for me to evaluate other symptoms.

I used to get that. Not so much anymore

For me, because my anxiety is under control, I can smoke weed and enjoy it. Next day DR is worse and depression. Just like alcohol feels good at the time but makes things worse. I will never know if my condition would be better know if I had abstained completely.

I got hppd when I wa 17. In my early twenties I got Vitiligo. Does anyone know if there is a connection?

why would u try something that the worst case scenario is it works. Addict logic. I know it well

I know B complex is supposed to help Keppra side effects. My regular B complex had no noticeable effect

I had a string of days feeling great. Then I accidentally left my TC at work over the weekend. Both days I went back to feeling like my old self. Yesturday took my TC again and had another great day. Could the TC be helping the Keppra and Sinemet be effective?

Sinemet and Keppra both made me feel worse until I lowered the dosage enough.

Re-introduced Sinemet today. Don't know why but I had a great day today. Felt very little brain fog. Best way to describe my day is i felt so much more connected. Levetiracetam: 500mg am/ 500mg pm Sinemet: 1/2 of 25/100 Thiamine Cocarboxylase: 3 Effexor: 100mg Everything could change tomorrow. Gonna appreciate the good day

makes me keep wondering if the Effexor ive taken has helped my anxiety at the price of hurting other drugs from helping

I have dropped back down to 500mg am/ 500 pm. I was having horrible fatigue. But I was also sick and trying Sinemet. Anyways, brain fog and DR have been better. Small steps feel big for me. With that said, I will definitely continue to see if I keep generally feeling better. There have been no benefits for my visuals.

ill update and discuss on my Levetiracetam thread