Sammywalker2009
Members-
Posts
289 -
Joined
-
Last visited
-
Days Won
6
Content Type
Profiles
Forums
Gallery
Downloads
Events
Store
Everything posted by Sammywalker2009
-
Starting Keppra today
Sammywalker2009 replied to myrslingerbult's topic in Medications & Other Treatments
Damn it's not one of those things where it's got to get worse before it gets better is it -
An acetylcholinesterase inhibitor (often abbreviated AChEI) or anti-cholinesterase is a chemical that inhibits the acetylcholinesterase enzymefrom breaking down acetylcholine, thereby increasing both the level and duration of action of the neurotransmitter acetylcholine. Reversible, quasi-irreversible (or pseudirreversible in some sources) and irreversible inhibitors exist.[1] For brainstem /cholinergic syndrome hallucinations that are distressing, multi-modality or with persistent delusions (or visual pathway syndrome hallucinations that are persistent and distressing) largely anecdotal treatment options include cholinesterase inhibitors, anti-convulsants and atypical antipsychotics17,18. Which class of medication to use will depend on the clinical context, with cholinesterase inhibitors a logical first choice for patients with cognitive impairments. any of the smart guys here understand this more than me lol ?
-
The doctor I saw told me that people with my problems 100 out of the 1000 get the op slightly more but still not great odds I'm certain the operation would help me it's just getting them to do it they want to keep ruling other things out this sort of problem would be so much easier to deal with if I wasn't already dealing with hppd I was holding out in pursuing treatment of hppd as I thought I'd be getting my stomach sorted out sooner rather than later but it doesnt look that way now so I'll probably ring my insurers and see if I'm covered for persistent migraine aura as it's the most recognized visual disturbance and book an appointment if I am otherwise go down the nhs route I need to cure these fucking health issues
-
Mine is damn nasty worst symptom by far
-
Yeah mg it would be done laprscopically it's just the fact I've been suffering for so long and I have to wait longer and go through that nasty ass 24 hr test I dunno man I just feel down with it all need something good to happen in my life it's long overdue the last 2 years haven't been great too me lol
-
I have a sliding hiatus hernia and it is pic c yes the fundoplication is what I was hoping the doctors would do the doctor I saw today was a specialist in doing this operation he told me he sees a 1000 people with this problem and only 100 can have the operation as if it's something to do with the esophogus and not reflux from the stomach the fundoplication would make things worse usually I'd put this sort of thing down to the doctor not wanting to do the operation because it's on the nhs they seem to be cutting back on all operations to try and save cash but I've gone privately
-
Basically mg I've had an endoscopy they found a hiatus hernia. They keep saying I'm young and it's unusual for it to be causing me trouble so I have to have a tube up my nose and down my throat and left there for 24 hours which is connected to a little machine which I have to press everytime I get reflux Im on my third type of ppi been taking hr2 ranitidine and prokinetics they don't help me much I don't have any ulcers I feel in despair with it all if after this 24 hour thing he tells me it's not reflux and it can't be treated I dunno what I'll do
-
Been to the doctors and found out I have to have this 24 hr ph test for my stomach it's not as straight forward as just having the op the doc said theres a chance It can't be treated and I'd just have to try and get on with it it's a fucking joke not only will I have hppd I'll have constant reflux and stomach trouble I really do just feel like saying fuck it Im at my wits end with this health shit I can't be fucking dealing with it anymore I have never felt so stressed and depressed in all my life
-
Starting Keppra today
Sammywalker2009 replied to myrslingerbult's topic in Medications & Other Treatments
Got my fingers crossed for you dude hopefully it works man I have heard of people taking it for a few months before it works then others notice it after a few days so still plenty of time man I really want to see if I can start this next year all the best anyway pal ! -
Fully recovered... Just a quick update...
Sammywalker2009 replied to ziggy's topic in MAIN AND GENERAL FORUM
That's good man real good did it happen suddenly then one day the visuals were gone or did it fade slowly day by day I've had it for about 18 months it gives me hope I read somewhere 50% of people clinically diagnosed with hppd get better around the 2 year mark -
So when you starting keppra duty I wouldn't worry about it being generic it's exactly the same chemically I am going to go see a doctor in London after Xmas who treats people with visual snow as for piracetam yeah you can buy it over the counter I bought some but wasn't sure if it was the real deal as It was a lot cheaper than other piracetam products on the Market but I'll probably get on loads of sups after Christmas especially if I get the keppra prescribed
-
LOL
-
This post has been promoted to an article
- 3 replies
-
- hppd
- perspective
-
(and 2 more)
Tagged with:
-
It's weird though coz now after I play video games I feel zoned out a bit don't know if it's where my eyes seem to of become more sensitive to light or what really
-
No I took 5htp first which made me feel worse then bought that to take instead which didn't really help think it may of affected me sleep I had major derealization in the beginning only thing o found helped a lot with dr and other non visual symptoms was omega 3 fish oils and playing video games lol random I know also just exercising and eating healthy didn't try any other supps will get some in the new year though and hopefully start keppra
-
I found it aggravated my symptoms too as did I with 5htp so I stopped them supps
-
New Effective Treatment (READ ENTIRE POST & COMMENTS)
Sammywalker2009 replied to mgrade's topic in MAIN AND GENERAL FORUM
Maybe it's a premonition and you'll go on to create a cure for hppd and visual disturbances and call it scelera because it sounds like sclera which is the white of the eye and the majority of us here have visual disturbances. Lol I've had dreams that have come true weirdly once I had a dream me and my friend had a fight with these guys in a opera house. The next day me and my pal had a fight with these boys in a club. I've also dreamt I won the lottery still waiting for that one to come true though haha -
New Effective Treatment (READ ENTIRE POST & COMMENTS)
Sammywalker2009 replied to mgrade's topic in MAIN AND GENERAL FORUM
Haha yeah you would definitely get someone who would go to their doctor and ask for provasic lol -
New epilepsy cure, possible implications for HPPD?
Sammywalker2009 replied to rafiki's topic in MAIN AND GENERAL FORUM
Yeah this is very promising in the last 20 years medical science seems to have come on so much and in the next 20 years who knows what we will have cured hopefully hppd will be on of them and hopefully it will be sooner rather than later -
Haha you say that but I gave someone a drink once and told them it was alcohol and they were acting drunk it was so funny I don't know how powerful the placebo effect can be but I know it doesn't work for everyone and I know there's a theory it could be down to genetics on the programme I watched people mainly beat there anxiety and fears through the placebo but it also helped people with smoking and even cleared up peoples allergies such as hay fever and dermatitis next week it's about faith and how people who are religious can miraculously cure people I believe it will be related to the placebo effect I'm a strong believer in the power of the mind and brain you hear of these cases where people heal and it leaves doctors stumped admittedly these are rare
-
Neramexane is a drug related to memantine,[1] which acts as an NMDA antagonist[2] and has neuroprotective effects.[3] It is being developed for various possible applications, including treatment of tinnitus[4][5], Alzheimer's disease,[6]drug addiction[7] and as an analgesic.[8] Animal studies have also suggested antidepressant[9] and nootropic[10] actions, so there are a wide range of potential applications this drug may be used for. It also acts as a nicotinic acetylcholine receptor antagonist.[11] What do you guys think could this help
-
Since ive had it only notice it if I close my eyes and look at the sun it's as if I can see all the lines in my eyeball or something it's weird and nope not on anything want to be soon though
-
WHO DO YOU GUYS THINK i'D BE BETTER OFF SEEING ?
Sammywalker2009 replied to Sammywalker2009's topic in MAIN AND GENERAL FORUM
Ahh I see is rock and roll your music genre preferences then mg and thanks for the different doctor info I'll email them tomorrow to see if they have any knowledge of visual snow or hppd symptoms -
WHO DO YOU GUYS THINK i'D BE BETTER OFF SEEING ?
Sammywalker2009 replied to Sammywalker2009's topic in MAIN AND GENERAL FORUM
Oh really yeah I been to Florida a couple of times loved it out there better weather lol can't say I follow zepplin or pink floyd though and whose David gilmore lol -
just watched a programme about the placebo effect it helped with all sorts of problems just wondered how helpful it would be with this condition especially if it was used with the power of suggestion just food for thought lol