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Sammywalker2009

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Everything posted by Sammywalker2009

  1. Does anyone know why this shit seems to flare up when your ill currently got a hiatus hernia and got to have an operation on that and also a cold and ny hppd has flared up like a mutha lol
  2. Yeah I'm awaiting to have an operation on my stomach going to get that out the way and I'll look into seeing someone more specific I'll ring around and email a few docs and ask if they have any experience of this sort of thing then get my gp to refer me as for the American dream lol I have hope for it in one way or another I been there twice loved everything about from the weather to the food to the people and the girls lol plus they seem to love the English haha I'm hoping I can cure this hppd before I get to America really then I can enjoy my travels a lot more and not have to worry thanks for the advice though guys really is appreciated
  3. Yeah I have to wear sunglasses outside really I can't look at the sky even if the suns behind clouds it's just too bright anything really white affects me tv doesn't though strangely and yeah I wanna try keppra klnopin sinemet these are the main ones I've read people may have success with my trouble is finding a doctor who will prescribe it I went to my gp and spoke to 2 different doctors about this condition and both said they won't just prescribe me the medication above due to liscencing and one suggested maybe referring me to a phschiatrist not sure if that's the route to go down or not I'm in the uk you see and on the nhs not private at this moment in time i really want to move to America it's always been my life long dream so if I finally get there and find a chick to marry lol I'll set myself up and hopefully be able to pusrue a professional who recognizes this condition
  4. Thata interesting advice guys I've always been an anxious person even way before I developed this but I can control it kinda well it only really sets off my DR which can be annoying if my mind is busy I don't really notice the dr or anxiety however the visual snow and sensitivity to light are the worst and constant hard to ignore also this shit flares up when I'm ill and ATM I'm waiting to have an op I can't catch a break with this health shit lol
  5. Hey guys I'm new here and looking for some answers on your personal experiences with different drugs and how they worked on visual, DR etc. I'm from the uk so probably going to struggle to find a doc who will prescribe but really want to try something as I think a drug got me into this mess maybe a drug will get me out any help and info will be much appreciated thanks guys.
  6. One try of MDMA although I suspect is was cut with all sorts and I developed this shit and have had it ever since that was about 18 months ago
  7. Yeah it's annoying I want to find a doctor who will try me on keppra sinemet and klnopin not all In one go but i come some way naturally but my visual snow is strong and hasn't decreased over time neither has my sensitivty to light only things that seem to of decreased is the DR and some of the minor things like afterimages I believe keppra or sinemet something like this could really help
  8. It does seem to be that way when I spoke to my doctors they looked at me as if I was insane had to try and convince them its a perceptual disorder as opposed to a psycosis ah you would of thought in London somewhere there might actually be a doctor who would be aware of this condition
  9. Guys I suffered with fatigue purely from my hppd I think then I started working out regularly helped a lot not only with the tiredness but also with mental state
  10. Oh and btw guys i have pretty much gone t total was never a heavy drug user would smoke some weed every now and again pretty much completely stopped and only drunk about 10 times this year whenever I smoke or drunk the hppd got worse for a day or two then leveled out so never thought that it makes it worse but maybe prevents recovery any thoughts ? Sorry for the length of all this
  11. Hello fellow hppder's I've had hppd for going on 18 months now caused from a single foolish night of indulgence 1 gram of MDMA alcohol and weed first time I'd ever done MDMA and foolishly took too much had about 600mg in total and probes done 300mg straight up anyway had the most extreme experience I'm guessing the MDMA o had was cut with some acid as the hallucinations I got were out of this world literally I was in a pitch black park but felt like I was in another universe of spirits that was all good however on the come down went home at 6 In the morning still tripping however my mind had convinced myself that what I was seeing was real now and I wasn't hallucinating anymore which made the experience all the more scary I had electric spiders coming under the door thousands of them all attacking ne with electric shocks and creating and army of machines all sort of invisible looking I was a wreck I thought I was spontaneously combusting (setting on fire from inside) didn't sleep for 3 days and had a week long comedown anyway it's been 18 months from the extremeness of that week and I still suffer with Visual snow this being the worse Floaters Sensitivity to light also very bad After images Starbursts DR I've found taking my mind off it the best help especially for DR but in any anxious inducing situation the DR hits me any ideas Also book reading has helped with it maybe not sure exercise was helping until I got a hiatus hernia which I'm waiting to have an operation on. I'm determined to beat this or at least have a dramatic decrease in visuals through any means any advice you guys ? Thanks Sammy :-)
  12. Hi guys does anyone here know of any uk doctors that are familiar with this condition who might be able to help prescribe me something spoke to 2 of my gps who said they couldn't prescribe what I asked for as it's not licensed for this condition (which they both didn't have a clue about) typical I'm based in the south east of England
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