Kellen

So I've weaned myself down to 300. Tapering 25 mg every 3 weeks. Slowly slowly slowly I know this stuff is a godsend for most people but for me the adverse side effects were insane. Luckly as of right now most of those nasty effects have subsided but I have a long way to go. I'm only bumping this in hopes it may help someone who is thinking of coming off of it.

I didn't respond well to magnesium but i was so fucked up at the time I felt Everything made me worse. Maybe if I stuck with it. I know it gave me the runs tho haha. I was on 150 mg of keppra, the blue oval ones. Or maybe it was 250. Upon reflection that is an awful lot to start at once I should have worked my way up. But I know it did work for those two days it was impossible for it to be a placebo. I think my plan is going to be similar to yours it seems like a good combo. I'm going to start with the LDN and introduce a small amount of keppra depending on how confident I am. This LDN stuff sounds very interesting I have sever brain fog, tension headaches, extreme fatigue, confusion, joint and muscle pain, Dp/Dr and all,the visual symptoms. This stuff looks like it can treat all of those and has very very positive feedback. Especially for,those with fibromyalgia and Ms which we share some symptoms with. Supposed,to limit anxiety too Which for me is the root of most of my problems I feel. Also it helps with ibs and considering I nearly shit my pants everyday that is also a welcome bonus. I remember a user here said he had great success with it.

Sounds good to me. Never heard of naltrexone until this post. Was up all night researching it. I'm going tomorrow to ask for a script I'm not expecting a miracle but I'll try anything at this point. Also I will say keppera COMPLETELY knocked all of my symptoms out on its first dose No vs or visual disturbances ( I took it while in the bath and after about 20 mins I could see the steam rising off the water, everything cleared up, everything was geometrical again with defined lines and depth) Anxiety was gone and I'm always an anxious wreck especially while trying a new med! Dp/Dr gone. Never felt more in my own body It was crazy I couldn't believe it. Went for lunch with my friend the next day and she even noticed it. Unfortunately after 2 days it stopped working and my symptoms got worse. But that could have been attributed to other factors. I stupidly drank again and it was like a war in my head I knew I shouldn't have. But all that said I did have those 2 days of clarity and sanity the likes of which I hadn't felt for years prior or after So I know with the right combo I may be able to return back there We are all scared to try new things but it's the only way to find something that works. I say go for it and let us know how it's working for you.

Thanks for the comment! It seems a lot of hppd'rs haven't given these a try Are there any other benefits you get from taking it? What do you take it for ? I think I'm going to try desperimine. It has significantly helped my father with his depression. Its used for the treatment of headaches which I get all the time. Even as a kid I would get extreme headaches frequently. And I'm hoping if it reduces my anxiety and depression and helps the pressure in my head it will limit the other persisting symptoms that I have. Worth a shot

I've been reading up on the benefits of tricyclic antidepressants. I know they are much older than the more commonly used medications today. But looking at them they seems to be prescribed for a number of things that are certainly effecting me. They are prescribed for Headaches IBS Depression Anxiety Joint pain I know a lot of HPPD symptoms are co morbid anxiety leads to an increase in visuals and dp/Dr. For me it does anyway. Head pressure/ brain fog can be attributed to headaches which I also get. I also have bouts of ibs that can last for months and months Of course there are side effects the main being weight gain but I can live with that Has anyone had any experience with these meds? I'm really curious to try them but obviously don't want to get burned

hey all been a few weeks since i have posted. ive gone though a lot since my last post. a trip to the ER, staggering ups and downs in my mood, bad derpression and other shit etc.. but i will say that some of the more concerining issues arent as bad as they were. although i am still in the trenches and have a long way to go atleast the really bad violent thoughts have subsided. i have been mediatating a lot. i try to everyday. some days its almost impossible but i still try. i have been more active and have started going to therapy again. its good to take charge and you will get a sense of accomplishment out of it which can help boost your mood. i certainly have a lot of anger inside about hppd and about other things that i need to work out. but i feel i am on the right path and i make it through everyday not matter how hard it is. take any slight improvement, any time you feel okay and put it in the bank for those days when youre in the shit as a reminder that it can get better. im going to my dr tomorrow to come up with a game plan to get off lamictal and try something new. wish me luck!

When I'm off the lamictal this will be the next one I try

We'll I have come to the realization that this drug has now turned on me and is really fucking me up. After doing some research I've found that in some cases it can induce depression, anxiety, homicidal, suicidal thoughts/urges. I started taking lamictal at the beginning of when is as feeling better to help it move along faster. Now after a year or so with no issues I slowly started noticing I was having really weird depressive thoughts. Mostly due to,the stress of returning to,work and relationship issues. LThen I went through a ton if weird side effects related to,lamictal,. That people mostly get in he beginning. The hot flashes, the libido increase the sensitivity to light, sensitivity to heat,and now an onset of depression and dp/dr like I have never felt before. I'm just so bottomed,out and am getting all these violent impulses. Scary as fuck Yep time to get off this stuff.

I've read 5-htp can help depression which I am currently experiencing. I bought a bottle of it but I figured I would check here first to see if anyone has had experience with it. I'm also on lamictal and zoplicone would it be safe to ad 5- htp to the equation? Please share any insight you may have!

Hey just curious if you got my pm? I regret taking it but I know how hard it can be to have acne. If you absolutely have to then try it. but stop as soon as you notice changes in your mood or if you're having digestive issues. It can lead to really serious problem that will stick with you long after the acne is gone. Accutane is a very strong medication. Not sure if it would effect hppd but be really careful with the stuff. Zits don't last forever but some of the side effects can.

I'm not 100% sure the reason but I know antibiotics can cause flare ups. What acne med are you on? I took acutane as a kid and believe me if that's what you are taking get off it ASAP. Better to live with the zits which will go away eventually than to deal with the longer term side effects.

So it feel I've developed some very strange and alarming side effects from lamitrogine. After nearly a year with no issues I'm not I sure why these are just hitting me now. Maybe during my latest rise in symptoms it triggered some of the negative side effects. I've noticed I've become very very irritable. I snap at almost nothing and I've become a total grouch for the most part. I feel an intense rage at times that I want to physically fight someone. Even my closest loved ones. Almost like I HAVE to do it. It eventually subsides but it is very intense while it's happening. I in no way would act on these feelings but it is incredibly scary. By far to the worst one I've noticed. I've booked myself a CBT appointment to help curb these feelings. I've been urinating A lot. Not in frequency but when I do urinate there is An almost endless stream. My memory is Absolutely trashed When I dropped my dose down I got almost fever like symptoms. I was burning up and couldn't even feel the cold air from my AC A huge increase in libido. Seems to be the only positive side effect. it's through the roof considering I used to have issues but now well.. There is no issue. My eyes are extremely sensitive to light. Every car light, cross walk, porch light etc burns brighter than ever before. When walking a round at night it literally feels like I'm in a dream. I think it's time I get off this drug which sucks because it was working for so long. After doing some research there are other people who have reported these same side effects popping it even after long term use. Has anyone else experienced anything like this on lamictal?

I've been having a really rough time lately. Depression , anxiety, thoughts of hurting myself, hurting others around me ( although I would never act) hppd is pretty bad dp/dr and visuals are off the charts. Got into,see my doc today and he suggested I try this new med http://www.psychiatryadvisor.com/mood-disorders/vortioxetine-a-unique-antidepressant-for-major-depressive-disorder/article/364332/ Apparently it not only treats depression/ anxiety but also cognitive function and brain fog. Sounds almost too good to be true but I also I'm incredibly weary of putting any new med in my body. I Know ssris should be avoided but I am considering it as I really need something right now Has anyone tried this? People know a lot more about this stuff than I do any insight is greatly appreciated.

I've been in lamitrogine for over a year now. Just bumped my dose up to 400mg a couple days who. No issues but today I've been extremely fatigued and feel like I've been in the sun all day ( I was for maybe and hour max). I feel really dizzy and like I have the flu or something I've read this can happen but only with in the first few weeks of beginning treatment. Then I read about the rash and I have a slighty red blotch on my stomach but I can't tell if it is a rash or just some mild irritation or discolour. However the rash can be very serious if untreated Has anyone else experienced this with a dose increase?

I may try this what days do you use them and what days do you take a break?

Okay I got my script. 10 pills. What symptoms do they alleviate? Do I take them before bed? During the day? Got a rotten sleep last night. Felt somewhat okay most of the day. Now I'm feeling the brain fog and hppd again. Vision is bad, ringing ears. Should I take a half one now? I'm always weary of what I'm putting in my body and again any advice is much appreciated as this is my first time trying them I want to do it right

Hmm also curious if I should bump my Lamitrogine? I'm at 300 mg should I go higher with it?

I've tried keppera. It worked right away. Like I took it and it immediately cleared my symptoms it was like a miracle. Honest to god after one dose. I don't know how that was even possible but it happened. Then on day 3 I was feeling kind of off. Like I could feel the hppd in the back of my mind and I drank a few beers and then it was like a war in my head. I've tried Keppera a couple times after but it made my symptoms worse but could that have been psychosomatic? Should I try it at an incredibly low dose and work my way up? Because if I can get that original feeling back it would be amazing. I tried sinemet and nothing. Prozac gave me me chest pains I can't get into see my dr until the end of next month so I'm going to my family dr to try and get the kolanzipam script Any help or advice is greatly appreciated

I have been on lamitrogine which seemed to be helping. I haven't taken any drugs if anything I've been healthier. I quit smoking last week and have been sober for over 2 years. Can stress cause a major flare up? I've been having a lot of issues with my gf, the fear of returning to work, the fact that I'm 30 and feel like an 80year old in terms of physical health. For a couple weeks my breathing was really shallow. And it felt like I ran a marathon after any physical activity. Then one day it all nailed me. I felt insanely depressed and I couldn't breathe. Hit me while I was walking home. I had a full blown panic attack which I hadn't had in over a year. Had to be taken to emerg. Things haven't been the same since. Which is how I remember it happening before. It just hit me then stayed. I really don't want to have to go through with this again I don't know if I can take it. I need some relief I'm going to get the prescription When should I be taking them? I also take zoplicone at night to sleep so please keep that in mind Thanks for reading

Hey there I posted a lot back here in 2013. I was going through a serious hell with this hppd stuff. Like serious hell. Then it kinda tapered off with only some underlying symptoms ie vs, a few brief bouts of,dp/dr and some over all foggyness but I was able to function for all of 2014 and up until a couple weeks ago. It all,started coming back again. The dp/dr, the hard Vs, the anxiety, severe brain fog just hit me again. But I am also getting severe depression now too that haven't felt. I am really really concerned because im having suicidal thoughts almost constantly. I feel like a total moron when I'm with my gf because all of a sudden my brain is all muddled and I struggle to have normal conversation at times. Like I will say things I don't mean or just not have anything to say because I cant concentrate. And not even a month ago everything was fine. My last gf left me over this shit and I really don't want to loose my gf Now I really love her. But I'm slipping again. Had a break down today and just accepted I'm back in this hell. God damn it Also I am supposed,to,be returning to,work next month and now I'm all messed up again. I can't go through this shit again without the proper meds So I need some advice Im thinking of taking kolonopin. I just can't handle being in the perpetual state of unease and confusion. I have always been hesitant to try it but I think with the depression and everything it might be a good idea. So I need you guys to either tell me to do it or not to do it. I can't decide for myself. Sucks being back here

Yes I have had success with lamictal. I'm currently on 200mg and it has helped me cope. I still get brain fog, my body temperature is always hot, cognitive and memory issues and fatigue. I'm starting to think those are tied into something else but as far the hppd dp/dr,goes,I've definitely noticed an improvement. I'm thinking of adding a low dose of keppera and seeing if that helps my dp/dr even further.

I've had hppd for ten years to varying degrees. It had kind of come and gone but never got as bad as it did about a year and a half ago. It was debilitating. I was in hell and I can't compare to others but trust me. I had it really really bad. Hospital visits. Im still off work. My gf left me cause I was an emotional cripple. Funny thing is I didn't even know what hppd was until I finally stumbled upon this site and unlocked the mystery as to what has been going on with me all these years. But ya I was a total wreck and my brain couldn't process anything. I know exactly how you feel. It's maybe 15% better than it was but hey. I'll take it. Keppra is an anti seizure medication same as lamictal but in lower doses it's known to treat dp and even visuals. My vs is still bad as ever but when your mind isn't totally fired all the time it's not as pressing an issue. I can live with it to an extent. You will find something that works for you. Time heals aswell. There is no quick fix an you may have to get burned a few times before you find something that helps. I know I did. But I'm still here.

I get this too. I can't handle the commotion. Being in big busy places. No way. Freaked me out even before the hppd but now, forget it. I couldn't imagine going to a place like Vegas or Japan with all the people and lights everywhere. I think I would crawl into a gutter and assume the fetal position. I will say missjess that no matter how bad it seems now it can and will get better. You may not see it now but in time it will. Promise. Im still in the shitter with this but my life is more manageable. I was out of commission for a while. A vegetable. The walking dead. But I'm somewhat back. And any improvement isn't to be taken lightly. Just be easy with yourself. As hard as that may sound. Know what causes you stress and avoid it for now. Try different meds. I feel lamictal is helping. And also keppra knocked my symptoms out for a couple days before they came back 10x worse. But others have had great success with it. We all empathize with you. This can be a living hell. But don't give up. It WILL get better.

Been awhile glad to hear some people are doing better! Last year was hands down the worst year of my life. I was out of commission for pretty much the whole year. Had two friends die of drug over doses, my gf left me, had to leave work, my hppd was raging, numerous hospital visits, breakdowns etc..total nightmare I am doing better now tho. My visuals haven't improved but my dp/dr isn't nearly as bad as it was. Im still struggling but I feel like I'm not totally hopeless anymore. I can focus better and although I'm still kinda awkward I am more sociable. Going out more and I have improved interest in the things I used to love. Which was pretty much dead last year. Music isn't just scrambled nonsense anymore. I still have bad days and the racing thoughts are still there. But over all I'm not in the pit I was in. I believe the lamictal is helping me. I'm on 100 mg daily. That and time I guess have improved my over all well being. Much love to all my fellow hppdrs -K

Behold the chaos