ludwig80

Since you said that you had a metallic taste sometimes, this is indicative of possible seizures. From what i understand this is quite common. I don't get it but the doctor gave me an EEG and found seizure activity in my occipital lobe. You might gain some benefit from keppra. I'd Go see a nuero and tell him about your symptoms and mention the metallic taste. As well as any déjà vu or moments where you completely blank out or loss consciousnesses for a second.

I use this quite often in those almond bars.. It's decent!

It'll probably be too late once you notice a variance.. Seriously, consider excercise or finding something to get completely absorbed in, like music, rather than drugs. Do not make the same mistake some of us did-- understand it can get sooo much worse.

^^^^^^ what jay & 1998 said... Things can be so much worse if you play roulette. Stop while you're ahead man. We have your best interest in mind. In the last 6 years I've read to many stories of people making this mistake, including myself. Always turns out bad eventually.

Visual, It's unfortunate that you were it effected you so much with such short exposure. How long were you exposed? I hate that we make/use products that is so detrimental to people and the world around us. Hope the green movement eventually changes everything it can.

I read that the military was using some kind of oxygen therapy to help with TBI, PTSD and brain issues... maybe helpful for us. http://www.armytimes.com/news/2011/12/military-hyperbaric-oxygen-therapy-brain-injury-120611w/

Well, The old board had a recovery section and I remember about 6 years ago I pretty much read everyone one of those like 4 times looking for hope. Pretty sure their were a few long-terms who had gotten much better if not completely better on there. Also, I think the old saying is true that when most people get better they don't come back.. I don't see all that many people from the old board anymore maybe they got better.. who knows? THen consider all the members of the old-old stormloader boards. Never see anyone from back then. So maybe they got better or at least got on with their lives. I think a recovery section would be great again. Even if these old folks didn't get better and just accepted their condition to a point it doesn't effect their lives.. I consider that recovered.

Been working on some music in the studio lately. No vocals quite yet but soon there will be. I play guitar and bass on here and my buddy laid down the drums. Let me know what you guys think.

I know on the old board we did and it was a nice, especially for the new folks coming in and looking for hope...

Hang in there man. Once the anxiety and depression passes things will be come much more managable if not completely better.

Well, do you mean that the trails of a moving object are a bit choppy or that image moving is actually choppy? I get the peripheral flashes when reading on a computer especially. And glitches happen to also have a slow rate vision problem. Visual has had impovement with increasing dopamine.

I was 19 .. Edit: Actually 18 now that I think about it

So guys, I'm going through a particularly rough patch at the moment. A dark depression seems to creeping in and not letting up so easy. But instead of searching for a cure as I have for 6 years I really want to find a way to psychology deal with this- FOR GOOD. A way to let go of the pain, depression, anxiety and everything that is holding me back from enjoying life. I figure from all the stress and anxiety of years of hppd and this choppy vision, I have devleloped some sort of PTSD. I fear the thoughts of the future and continued suffering and I don't want to do that anymore. I eat right, don't take drugs, don't drink anymore, I work alot and am on my feet all day and stay semi-social, so I feel like I've got that part of my life right. I need a way to work out my emotions and fears. So i'm asking some of you who are educated in perhaps meditation, emotional release tactics, spirtiual replenishing or perhaps just have some excellent tips from a therapy you could share. I'm open ears and willing to try anything. I don't have the time or money these days to see a therapist although I wish I could honestly. I just want to work through all this pain and find peace. Lasting contentness. I don't want to still be suffering years down the road whither my vision is better or not. I'm bitter, angry, sad and overwhelming depressed sometimes. In fact, before keppra, i couldn't deal with any emotional ups or downs. Even being overly happy made my HPPD and slow frame vision worse. How disgusting is that..? Anyways, I want to work my issues and find a way to be happy again. I don't have a choice because I can't take this pain anymore. I want to feel ambitious and alive again. Most of all just content. These days I just get absorbed in music, pray for stregnth and try to occupy my mind with other stuff. It's only a distraction at this point though because as soon as i'm solo and my mind can wander i'm back in mental anguish. Thanks ahead of time. Best wishes to all of you.

One of the first symptoms I noticed as well. Getting glasses to fix my astigmastism seemed to help it a little s still there though and worse when tired

After my long term gf left me and had substantial increase in visual issues, seizure like problems, mentally abusive job, and suddenly having to quit drinking alcohol for good- I basically decided I was going to try all methods to get relief. Including zero sexual activity. I went an entire year- depressing to think about honestly. Luckily all the stress around me, no beer, plus loads of school made me depressed and uninterested anyways. I also stayed pretty faithful to the candida/ketogenic diet for that year. To be honest, I don't remember there being much help by quitting sexual activity. Almost the opposite with built up tension. Moderation is likely key.

Boozing eventually caught up with me. Brought my nearly dissipated HPPD back to a whole new level of hell and has been this way for a few years now. So careful with the blacking out and getting smashed all the time. It may just catch up with you. I must say I did have a pre-existing liver condition, however- I was told by doctors, "it's benign." I'd say count your losses and lay off as much as you can. Makes being social harder when all your friends drink but your future and health are worth it.

Play-off time! Need to get serious against Nashville!

Hey man, I believe I can relate with your non-fluid vision. Essentially for me it's like a slow frame vision. It not fun but I'm dealing with it. It's always there. It used to get worse for short periods of time which my doctor diagnosed through an EEG as some kind of seizure like issues from the occipital lobe (vision center). But there must be something wrong all the time since it's always there. Keppra has helped me in that sense that so far there aren't periods of time where it gets much worse. So that's nice. But still holding out for something that will help the baseline. Another member here has a similiar issue. We've spoke about quite a bit and he has had some success with small therapuetic doeses of parkinson's medications that alter dopamine in a particular way. He can speak more to it than I can by all means. I haven't found a doctor yet that would allow me to try this but hopefully at some point I will. How long have you been experiencing this? and how long have you had HPPD?

Please man, don't risk getting full-blown HPPD. Many people (including myself) have been dancing with HPPD for many years and some, for many decades. If i knew what I did now I would never had bothered with drugs.

Long, but insightful. I think for some us that feel a bit astray, confused & uneasy about the future -- the best thing we can do is find direction. If only one good thing comes from HPPD it's that we need to take a cold hard look at our lives. Realize what you want in life, more than anything and pursue that very thing with everything that you have. Having a purpose helps with that lost feelings. http://www.youtube.com/watch?v=plhYVd2MgtA

Visual, As I have probably mentioned before at some point. I can certainly relate to the double vision/ghosting vision. I guess i'm about 5 months in on Keppra and it hasn't really helped me with ghosting. I can say that some of the ghosting is due to my astigmatism. It's much worse in my right eye- the moon in the third picture is what my right eye sees while the left eye sees the middle one. If i squint really hard then the ghosting goes away slightly. Glasses sometimes help and sometimes don't. Also, can second the "oily film" over the eye worsening halos. In the morning my eyes are always more "moist" i guess and lights always have bigger halos and streaks.

Well i'm back from South America! One month turned into two months as things were going well and I wasn't too keen on returning until I was out of money. It was an incredible trip and I recommend backpacking to anyone. When you need to survive on your own in countries where you don't know where you are or speak the language well - things get put into perspective.. Plus when traveling alone you meet tons of amazing people with great stories... Hppd still there of course and I totally came off my ketogenic/candida diet for the last 2 months but cheap meals always include tons of carbs like rice, breads etc. So no choice..But hopefully not set to far back. Anyways, really impressive Comfortably Numb (love floyd too)- you are my inspiration at this point as I have no desire to head on to graduates school. At least not yet! Keep at it Broccoli you'll be done before you know it! Alisa- played my first open mic night a few months before I left and had a similar experience. A quite liberating moment! I'm a terrible singer but I enjoy playing guitar and trying to sing!

Keep it up Boogres, you're almost there man! Ya there's always hope you just got to fake it till you make sometimes. Maybe I can get paid over Minimum wage now! Even though I did not enjoy school I was forced to learn a lot. I gave at least 15 presentations in the last semester alone and it helps foster more confidence in the end. Those of who you who are new to hppd, treat yourself well and follow your dreams- who knows you just might make it. Well, im junping on a plane to the southern hemisphere today. Take care everyone.

Well, can't really believe it but I finally have graduated college. Took six years but I finally made it out with a degree in Supply Chain Management and Marketing. So if I can make it so can any of you guys! I got HPPD 3 months into my freshman year in college so I had it most of my college life. If you were to ask me 4 years if I was going to make it this far I would have been very skeptical. Anyways, for the past three months i've managed to work 30+ hours a week while being at school 30+ hours a week then homework and studying on top of that. Been hectic to say the least. Now, I'm leaving soon to backpack through South America for at least a month and feed the soul a bit. Really excited and hoping everything goes smooth. Trying my best to ignore HPPD and move along with my life! Hope everyone is doing well. Just some encouragement for anyone battling hppd and finals right about now!

Strange enough, I've had acid reflux for years.. So bad at one point I had ulcers in my throat when the scoped my throat and stomach. I never took all the prilosec and other reflux meds they tried to throw at me. I started the ketogenic/candida diet and the acid reflux became under control as long as stayed on the diet. Since starting Keppra it's been almost non-existent, so far at least... I won't hold my breath but I certainly feel fortunate for the break.