brendan

i notice that my eyes move about quite a bit involuntarily (nystagmus), which probably causes my constant sensation of bobbing about. I wonder if this constant movement is tires the eyes so causes head pressure.

http://www.iflscience.com/brain/study-reveals-new-approach-blocking-neuronal-damage-stress

http://www.thedailymash.co.uk/news/society/perhaps-your-concern-could-extend-to-not-eating-us-say-chickens-2014050786319

that chicken should love meat/egg eaters, as it owes its life to them.

i wonder if that sense of lift persisting or other mdds vulnerability is predictive of hppd vulnerability. I used to get that but not any more, tho it might be more hidden under the background mdds-type symptoms.

mdds is often described as the brain making a new model of reality that does not revert back. I guess this is what hppd is about, and maybe ptsd too.

I understand the ethical reasons for going vegan. However, i suspect the health/vitality benefits of a well-designed vegan diet are not from cutting out animals per se (except some dairy which some people have a difficulty digesting), but from cutting out the crap that is so often associated with it. If a vegan started adding grass-fed organic beef cooked at low temperature to their diet, i very much doubt that they would lose that vegan vitality. Conversely, i guess if a vegan had a nutritionally complete diet mainly from refined grains and sugar, that vitality would evaporate. As for b12 - a high dose of this makes me feel better so non-vegans should probably supplement with this as well. Also, I reckon there is probably something to be said for cyclical protein restriction so your body cleans up cellular protein junk (autophagy) and maybe activate the SIRT longevity genes.

hppd comes with a variety of symptoms, some more disturbing to the sufferer than others, and some more common than others. Visuals is most common, but also emotional issues like depression and anxiety, cognitive issues like brain fog, depersonalisation/derealisation, vertigo etc. However, they are generally treated as a bunch, so even tho someone may mainly have visuals does not mean that their experience is irrelevant to someone like yourself. Mdds is typically treated with clonazepam, which is also a common treatment for hppd. Personally, my hppd is not too bad with visuals, my issue is more like mdds with (sensation of movement with fatigue and head pressure). I also have brain fog which i effectively treat with supplements. i havent found anything to help my mdds-type symptoms tho i havent tried any of the harder meds.

i see she has now replied to our comments (i presume you are the commenter named Jessica). Says she's glad to learn about this forum and what her malady really is!

There may be a temptation to over-emphasise the visual aspect of hppd when looking for similar pathology groups. Personally my visual symptoms are minimal and my symptom picture has more in common with landsickness than sufferers of dpdr or vs, whereas others here are clearly much more visually disturbed and so have more overlap with these groups, and others more emotionally disturbed so more in common with ptsd.

i;ll copy and paste treatments i come across from a quick googling: "A friend told me to take Black Cohosh, Valerian Root and Gingko Biloba and within a week of taking them, I was normal. (tho it seemed to come back - placebo?)" Brainport: http://en.wikipedia.org/wiki/Brainport (therapy for stroke victims, puts imaging on tongue to help blind 'see', helps with visual processing) Self-Reported Effects of Therapy/Activity on MdDS Symptoms Percent (%) of Treated Therapy/Activity Number Treated/ Improved/No change/ Worsened walking 69 48 42 10 resting/taking naps 65 63 25 12 vestibular therapy 51 45 41 14 physical therapy 42 38 50 12 neck/back massage 41 37 54 10 swimming 35 34 46 20 floating on water 34 38 29 32 treadmill 30 17 37 47 chiropractic neck adjustment 27 33 59 7 return to causal motion event 26 15 46 39 dancing 24 33 25 42 accupuncture 23 35 61 4 weight lifting 22 14 73 14 water walking 21 43 52 5 jogging 20 35 35 30 yoga 19 42 47 11 homeopathy 15 33 60 7 running 15 20 47 33 stability balls 15 33 60 7 balance board 13 39 31 31 resistance bands 13 31 62 8 chiropractic atlas realignment 12 50 50 0 cranio-sacral therapy 11 36 55 9 pilates 10 20 80 0 golf 10 30 60 10 Tai Chi 8 50 50 0 osteopathic manipulation 7 29 57 14 reflexology/zone therapy 7 14 86 0 hypnosis 6 17 83 0 inversion table 6 0 50 50 elliptical glider 5 20 60 20 tennis/racketball 5 20 40 40 Alexander technique 4 0 100 0 skating 4 50 25 25 biofeedback 3 67 33 0 Brainport 3 100 0 0 Zen Chi machine 2 50 50 0 neuromodulation 2 0 100 0 hyperbaric chamber 2 0 100 0 Qigong 2 50 50 0 rolfing 1 100 0 0 kinesiology 1 0 100 0 occipital nerve block 1 0 100 0

i wonder if it would help get funding if it was part of a study into general persisting perception disorders, such as ptsd, landsickness, post viral/post toxic syndromes etc, each of which has more obvious interest groups which may be willing to back a study, upon which us poorly-supported druggies can piggyback.

any updates? Here is someone who got hppd from ayahuasca (tho she is unaware of hppd and calls it land-sickness) and seems have done every type of healing out there: http://dreyfalex.wordpress.com/2013/05/26/a-personal-experience-of-mdds-resulting-from-ayahuasca-experience/comment-page-1/#comment-13

We know hppd is similar to ptsd, but another one strikes me as analogous - land sickness, or mal de debarquement, is a lasting feeling of being on a boat after landing after a time at sea. It can be permanent in the worst cases. But also comes with things like head pressure, anxiety, brain fog, difficulty finding words, short term memory problems, fatigue, light sensitivity. Clonazepam seems to be the med of choice for severe cases. There seems to be some research going on for this, and may come up with something relevant for us.

personally, i find the skeptic v alternative debate quite tedious as i am well aware of the well-rehearsed arguments that you can find anywhere in the internet. I am skimming this thread for any posts by the person who is taking the risk of taking the alternative route. I am interested in that first-hand human story and how it develops (whether positive or negative), not the predictable skepticism-by-numbers snearing from the debunkers. Not that i necessarily disagree with the debunkers, just wish they would give a bit of space for people to experiment with their lives. I have wasted a few quid on alternative stuff, but i dont resent it - i just think trying weird stuff out on short odds adds to human experience and may one day turn up a pleasant surprise. If it doesnt, tough shit, i'm not going to cry about it, and i take those risks with full responsibility. I want to hear more about what happened after seeing john of god.

a friend of a friend died wanking with a bag on his head. He wasnt even an MP.

The problem with 'skeptics' is that they assume using placebo is unethical deception. Placebo is a very powerful healing tool and shouldn't be dismissed. It can even work if you know that you are being subject to placebo, but is clearly stronger in a geniune faith situation especially where strong interventions are apparently carried out, like faked surgery. Placebo does not just make you feel a bit better for a while, it can make lasting and real physical improvements to people. I would be more inclined to not call this placebo as it has negative connotations with being duped, but rather mind over matter. I don't care if John of God is using theatrical techniques to induce a belief-led healing reaction or whether he is genuinely channelling spirits - if it works, it works.

is there any benefit to be had from a high cbd strain of pot over a cbd pill?

high cbd strain called Charlotte's Web: http://www.quickmeme.com/p/3vsq26

so many people that get attracted to spirituality give the talk about compassion, open mind, love, non-judgmentalism, blah blah, but when push comes to shove are actually smug, self-riteous, petty minded, cliquey, judgemental arseholes. How many people have gone to india to find themselves, and come back having found a pretentious sanctimonious prick?

i remember as a teenager (mid 90's) growing hemp from an angling shop (seeds used as ground bait) under natural light. A large bag for 55p, so was just bog-standard hemp, no fancy strains, tho i dont know if it was one of the eu licenced strains. Although not the crippling strenth of modern strains, it did the job - and were very large plants with broad leaves.

sorry if this has already been mentioned as i am too lazy to go thru 5 pages of this thread. Jus thought i would mention that according to wikipedia, industrial hemp has very high cbd:thc ratio, albeit low in amount: A total of 46 varieties of hemp with low levels of tetrahydrocannabinol (THC) are certified by the European Union (EU).[56] They have, unlike other types, a very high fiber content of 30-40%. In contrast to cannabis for medical use, varieties grown for fiber and seed have less than 0.2% THC and they are unsuitable for producing hashish and marijuana.[57] The most important cannabinoid in industrial hemp is cannabidiol (CBD) with a proportion of 1 to 5%.

i think egcg is the strongest natural comt inhibitor, and green tea extract is cheap. But as far as i can see from the few people on this board who mention it, it doesnt do much.

Bulkpowders.co.uk do a good complex. I tried b6 and b12 individually and they perked me up a bit, tho not thiamine.

so any developments on this? I think egcg is also a comt inhibitor that is stronger than quercetin.