joe

there's more than a handful of drugs that will probably crossover into HPPD relief. I spent some night way back researching and going through them all and came across more than just a short list. Honestly, it's just a matter of time either way. The problem is, it's just not going to be tomorrow but in the future to near future something is going to cross over if it's not already out there. They're just taking their sweet time, probably got patents to think about.

the ironic thing is all the anti-psych meds can cause tardive dyskinesia and extrapyramidal side effects.....not much fight there with the docs for most

only one or two people have taken it?

I figured I would just go ahead and post this. I'm pretty sure everyone or most have done the internet research thing and there are the prevailing theories on hppd. I know there's a lot of meds that will eventually come out, probably not tomorrow but they will probably be beneficial to hppd too, probably all know that. The one I came across was bl-1020, or I guess as it's going to be known as Clarity. It's suppose to be a GABA enhancing anti-psych of it's own class coming out in a couple years supposive low side effect profile too. I know that's kind of the depressing part if your looking at it like that but there's all kinds of weird shit coming out so I guess I was wondering if anyone else came across anything, maybe make a list or something, just so it's out there. Not a doctor btw. Hope everybody is well.

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really interested in seeing where this goes

i was on it a long time ago, it's a blood pressure med if I'm correct, probably keeps people from overreacting, didn't do much if anything for hppd, just my experience.

the one that is probably going to kick this and maybe a lot of others in the face much more effectively is a chem in the works call bl-1020 much, three years maybe, sorry if it brings anybody down, they're others way off the radar if I wanted to go listing but I never tried them, i'm good, so fuck it. there's more potent pirecatam type drugs too, in the same catergory as keppra btw although they're all unique, peace

I need to absolutely state this, stay away from the whey protein type supplements, I had an accident and had all kinds of problems coming off of this stuff, probably similar to getting off steroids, it's fucking hell and I wouldn't wish it on anybody

make sure you have klonopin too and don't run through it or something retarded, you'll figure it out, get healthy, health will breed health, and I would imagine one not hit so hard or that have had the condition so long would bounce back quicker, but nothing is a magic bullet, i could have swore I wrote this at christmas, and the visual aspect dissipates more in natural lights, that's always been the case for me, I don't really even think about it so much, I guess one thing if any if I want to generalize and I may be a little off target with this is that that ultra focus you get on things in that acid state diminishes......good luck, take it slow, and balance with klonopin......

suboxone is like naltrexone, it hits a plateau, this is different and your probably taking that for other stuff too, yeah it helps with visuals, afterimages, ect, brighter light sticks around some but I don't even worry about it, is that what your waiting to hear? your mind is calm, it's damn near boring for a minute if your so use to all this up and down shit, god, it's not perfect and probably won't work for everyone, nothing will, but better for that keppra? fuck yeah, naltrexone? fuck yeah, so on and so on, best side effect profile? fuck yeah, I threw this shit out here over christmas, go slow with it, exercise, damn

btw, i haven't been doing any vestibular rehab since starting namenda, good luck

in my opinion, sunglasses are are used for compensation obviously, you'll find that if you try to avoid them while taking namenda that your brain will desire to adjust back to where it was, the same as you brain adjusting to low light or low sound. Yes I have had vestibular problems which also seems to run with HPPD and mine may be more unique to my own situation. HPPD seems to blow out or confuse the vestibular ocular reflux hence inability to hold a gaze on an object without an exaggerated trailing effect. Look this med isn't perfect, no silver bullets, but life is more than tolerable, exercise is important too it seems, and whatever is in these whey protein supplements either glutamine/taurine or whatever works with the namenda just don't go overboard. I started taking NAC supplements of late as well too and havent' seem any negative effect from that, anything else, ask, good luck.

and of course, avoid taking drugs that are going the exacerbate your symptoms, you know, that common sense, your in a hole, stop digging......

btw, try to avoid things like sunglasses and such as much as possible. Using these sorts of instruments help compensate with the fixed situation, but if you grit through it, you brain starts to adjust back. just my two cents, I would imagine vestibular rehab would help too i.e. gaze stabilization but take it one step at a time, I doubt I could be the only one. Just the quietness of mind makes it worthwhile. best of luck folks, any questions, ask.....

first off, mental clarity, I don't feel like i'm freakin all over the place, physical pain associated with the condition, go slow with it, I don't know if this would go for everyone but it did for me, it trickles down from there. there's more but go slow. it's not really a rough med by any means

well since noone really picked up on this too much, i want to throw a couple more things into it. First their seems to be a synergistic applicability with the use of namenda and exercise combined with whey protein. There's all kinds of crap in whey protein, I just get mine from wal-mart. but it contains glutamine and taurine along with who knows what else that I don't want to get into that's is probably facilitating a healing process. Chiropractic has helped too but I've had back and neck problems for years. I went through the fibromylagia aspects of this too way back as well. I know I wrote a ton on say naltrexone and I'm not writing so much about this. I've been rather hesitant due to it's positive effect I have had with it and not wanting to steer people down a wrong road. Some people have had some success with NAC supplements, if you read up a little on it, NAC supplements work on NMDA receptor modulation as well. Also, Namenda has been the least side effect prone medication I've ever taken in this realm, I didn't gain weight, so on and so on. If you do take this route you will have to compliment it with klonopin or diazipam. The half life of namenda is 60 to 80 hours so it seem to neutralize the buildup, you can even look that up. NMDA modulation is where several of the newer meds are looking to work on that haven't come out yet. Also, don't go wacky with the whey protein working out thing, it can get completely backfire on you, take it slow, the brain is the slowest organ the heal so be patient with yourself, I get the feeling they may be finding all sorts of new applications for this drug. if you need to know more, just hit me up, but take your time with it...

straight sick

your fucking name is jerry sandusky? idiot, completely, way to get that recognition from the med community, i like your hole in the head theory, please work on that for us and report back

of course dude, i've had this for over ten years. i've been put on everything at some point or another unfortunately, that was my life. For me, Namenda seemed to fill this gap I had so to speak, and just seemed to even out my mind. Maybe just really knocking out the depersonalization aspect and visual slightly yet leaving at least me feel normal enough that none of the other shit even bothers me. I really don't think about it that much or feel this like never ending search to find an applicable treatment. I guess if I look back over the last eight months or so, I've made quite a lot of positive improvement overall even though I've had a ton of stress placed on me personally, I probably would not have handled life half as well if I hadn't come across this if I want to be honest about it.

wow, I can't believe nobody picked up on this, that's life, good luck

good luck, i wouldn't hold my breath on anything like this, there would have to be an approved medical treatment to follow in order to help with hppd and considering how long it takes just to get to the bigger brain disorders, one such as this that is rather obscure would takes years upon years if it ever found a proper treatment, just finding a doctor that would do it, I can't imagine the amount of we won't be held liable type paperwork you would have to fill out in order to get an approval. Something else will probably come along before this ever does.

in theory, it should have some help, it was a rough med, trileptal is suppose to be it's related cousin with less side effects. It makes you hear sound off tune, literally, I didn't stick with it, kinda rough, but in theory, it should have some help but it seems like there's better choices now

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seriously, do you want to be the asshole that stops research into this and that because your ass couldn't handle yourself or what was going on, let the real people work on it, they'll let you know, some people have been waiting years for something to come along, you had this what? a couple months, I would even erase this post just so some dumbass doesn't get ideas