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joe

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Everything posted by joe

  1. Yeah its stupid expensive, maybe if they approve it for other uses or something else comes along on as an inverse agonist on the 5ht2a receptor is approved for something else, til then, its the only one out there like it as far as I know.
  2. Has anyone had sinus problems? Vertigo? Vestibular issues?
  3. joe

    CLARITY

    oh, i thought you meant the drug, yeah, that shit's insane
  4. Haven't been here in a long time, just browsing and thought I would throw something out there that kind of comes up every now and then but should probably be elaborated on some more. At least in my case, I also had vestibular issues along with HPPD. It comes up on here every now and then from someone and I'm pretty sure David has said HPPD people show vestibular dysfunction, not that I'm trying to use him to advocate a point I'm just pretty sure without going and looking back, shit it even says it in wikipedia. I had to go through vestibular rehab awhile back and I figured I might elaborate so that it might help somebody else, it could probably help some people with orientation and possibly reduce trailing phenomenon. An easy way to kind of tell if you've got something going in that area is to stare at an object, a point, something small say like a neon timer on a oven clock, or something that just sticks out like that. Stand about six feet away from it and shake your head back in forth slightly fast, not quite as fast you can and see if the object "trails" or blurs more to one side or both more than you remember it use to, kind of like when a kid is saying NO when they're shaking their head assertively, that speed. If it does, then it's probably there. The constant illusion of movement disorganizes your properception or sense of where you are in space and so on, anyway, there is a way to fix this or in the least greatly improve this aspect. To save you the trouble of having to set up with on these rehab guys(mine was a real douche and a fucking prick, just sayin), and going through the doctor and maybe embarrassing yourself, have someone give you the blank stare, or feel like your begging for some dickhead doc's mercy, this is what they're going to ask you to do(after about $2000+ btw). : ) So when I went through the guy basically had a WHITE business card, so you'll need something that size, You'll also need a black marker/sharpie/or just a black pen with some ink, some tape, and a blank White background, preferably a wall. Here's what you do, just follow what I'm saying, it'll come together. Draw an uppercase Z on the blank side of the business card. You need to make this the full size of the business card meaning write the Z long way on the card. The horizontal lines of the Z go to the ends of the card and the diagonal line goes across the longer height of the card. You basically make it big enough to cover the whole fucking card, trust me you'll see it. This is best done with a black sharpie, it needs to be about that thick, black, don't ask me why, that's just what I had. Next, on the Z, you put a black line horizontally in the middle of the Z about half the length of the top and bottom horizontal lines, so it's like a - with a Z superimposed on it. Don't ask me why, that's just what it was. After that, you will need the tape, scotch tape works fine, any tape really. Tape the other side of the card and place the card at EYE LEVEL against a BLANK WHITE WALL/BACKGROUND, make sure everything lines up straight. Once you've done this, you stand about six feet or so away from that background. Once there, you simply shake your head back and forth fast enough that it blurs just a little bit, don't do it as hard as you can at first. Make sure, you are completely turning your whole head, you will probably have a tendency to just want to maybe move your chin back and forth instead of your whole head so try to make note of it, you'll see what i'm saying. Do this for about thirty seconds or so and once the thirty seconds are up, stop shaking your head and stare at the Z for about thirty seconds, you will feel a little dizzy, try to concentrate while you do all of this. You should notice that when your shaking your head back and forth that the little blurs of the Z start to dissappear, it's hard to explain, it's like that bad information gets taken out, you'll see this rather soon and you'll know what i'm talking about. Give yourself a couple of minute and repeats the exercise about five times. Do this three times a day, you will notice that the "blurs" start to disappear and are not as pronounced when you begin the exercises after awhile. Do that for a couple of weeks and see where your at. Some asshole charged me over $2000 for that and they were real dickheads, so fuck them, everybody can get it for free. I looked online and had a hard time finding that so I guess it's under lock and key. Hahahaahha There's also variations of that exercise, You can stand further away and walk towards the Z, and walk backwards, that's enough for now, you should really give it a try. People do this after car accidents, concussions, ect after their vestibular system gets out of wack. I don't think it will be a cure all, but it should help in some aspects for some, and every little bit helps. There was also another exercise where they wrote an A on a business card and asked me to hold in my hand at arms length and move it back in forth in my hand while moving my head in the opposite direction but i never really followed through with that one(being a dumbass), the dude really pissed me off, real dickhead, I'm sure it would help, hopefully now someone else doesn't have to deal with that ever. The doc that sent me that way was a Neuro Ophthalmologist. The test I took that I failed that sent me there was a Videonystygmagraphy, and a caloric test, where they blow hot and cold air in your ear and record your reaction. It was crazy when they blew the air in my ear, I felt like I was falling through a tornado, everything was spinning, but it's just for a couple of seconds. Since all you dudes are seeing these doctors, you might want to ask for one, an ENT, and primary can probably get you one too. My asshole doc never even gave me the results, asked for them, never saw them, just sent me to rehab, I guess I'd probably be a detached asshole too if I saw all these people all day with brain problems that I could only do so much for. Anyway, I hope somebody gets some help from this! : ) Provide some feedback if you do and maybe it should get tagged.
  5. not trying to be a smartass but why don't you look up sarcosine buy if your in the uk, you should have different links
  6. A lot of these bodybuilding supplements, including the one the sold at walmart are saturated with amino acids and the like that should be very beneficial for HPPD. I'm not kidding. Just look up the ingredients in them. The only problem though is that you get everything else with them, including the creatine and the like. The one that the schizo people were testifying to was Testforce2? That one in particular had Sarcosine in it. I was taking the bodyfortress from walmart and can for sure tell a difference. However the side effects from the other ingredients are rather nasty after a bit. After I was taking it awhile the doc said that I should probably give blood because my hemoglobin was getting high. Sarcosine seems to be the real kicker and I cannot say I've tried it but that can be bought on it's own. DO NOT take this with Namenda, it has an opposite effect and your body will not be able to clear it from your system. It can be very very nasty. computer about to die, just wanted to through it out there. peace
  7. don't take body building supplements with it, all I'm going to say, it won't clear out your system
  8. sarcosine isn't too expensive, might want to give it a go before you got to go to doc to get it at ten times the price
  9. it depends what they put with the whey protein. Alot of them have additives that effect neurotransmitters and can be pretty beneficial but you might want to be mindful of yourself if you start seeing a lot of weird side effects. Also, if you start taking it don't just stop abrubtly, your body won't like it. look up whey protein dangers
  10. yes, sarcosine is suppose to be exponentially more effective verses heaping spoonfuls of glycine.
  11. I've seen d-serine in the supplement stores I know. Apparently it's not the reuptake inhibitor but it's not far off. If you just look up glycine reuptake inhibitor all these papers have been written, it's the new target and it seems to be pretty effective, who knows how well for HPPD though, I guess sarcosine is coming out as drugname RG1678.
  12. Glycine is one of the new drug targets for a schizo med coming out probably sometime next year. The thing about it from what I gathered, is that it's basically a repackaging of a supplement they for the most part took off the market called Sarcosine. It's been shown to be a glycine reuptake inhibitor. If you go through the schizo forums everybody seemed to get a substantial benefit from Sarcosine on all fronts(positive and negative symptoms) and seemed pissed they were taking it off the shelves. You can't get it at the store but it seems to still be available online a couple of places. I guess you take it with some corresponding supplements, d-serine and some others if you want, can't recall it all right now but the side effects were nill too. I was going to try it sometime soon, nothing but good things written about it just haven't gotten there yet, I've been looking up a lot of stuff lately, sign of the times. Here was a link I bookmarked a little back but there's probably some other places to get it. Look it up. https://www.smartpow...hylglycine.aspx
  13. don't think you should put lion's mane in your eyes, didn't see that anywhere
  14. I started reading up on lion's mane and it really doesn't sound like a bad move at all, you can't buy the chemical NGF anywhere and proven NGF's are extremely far and few between this one seems proven. It also rebuilds demyelination of nerve tissue. I guess it's only the asian lion's mane. Good find.
  15. Absolutely need to state this, I took namenda for roughly ten months? or so until I started tapering off. I don't think this is any long term solution for HPPD for me at least. Though I had an incredibly stressful year, year and a half and they may have attributed to coming off of it, I still don't believe it be a long term solution . It for sure helped for a period of time in an overall sense but it seems to be kind of like a stimulant sort of effect, that's why I always had to take it with klonopin and I get the feeling that you could hurt yourself if you took it for an extended amount of time by itself. After awhile, I only started taking it maybe once every two or three days and a small dose, 5mg, it has a really long half-life. And though I can't deny it's beneficial effects in the beginning it just seemed to burn itself out after awhile and you just get what you get. I honestly couldn't tell you if the benefits were long term because I've had a rollercoaster of a summer after a pretty brutal car accident I was in several months ago and got pretty beat up, lucky as hell to be alive. I started taking neurontin about a month ago for nerve pain and in some sort of twist have gotten quite a bit a relief from HPPD from it, maybe more of the mental aspects and after an increase in visuals when I started taking it, that aspect seems to taper off and actually has made it slightly better too, I totally wasn't even looking for it or expecting it. I plan on staying on it for at least several months and see where I'm at then. It made me pass out the first time I took it and made me feel wasted when I started neurontin but that goes away unless you increase to dose. I took neurontin a long time ago, years and years ago and don't remember getting anything from it but I was for sure in a completely different mind state and place with HPPD. I also plan on giving sibelium a try in the near future too so if I get some sort of symptom relief from that as well I will let people know. I really hope I didn't send anybody down a bad alley, I don't want that on me, it worked for awhile but I don't think it's a long term solution at least for me, it just feels like there's too much risk of some sort. Wish everyone the best and try not to think about this so much, it's too easy to stop it all and obsess if you start. This might not be your experience, everybody is different I just don't want to feel responsible if anybody else tries it and has some adverse effects.
  16. Absolutely need to state this, I took namenda for roughly ten months? or so until I started tapering off. I don't think this is any long term solution for HPPD. Though I had an incredibly stressful year, year and a half and they may have attributed to coming off of it, I still don't believe it be a long term solution . It for sure helped for a period of time in an overall sense but it seems to be kind of like a stimulant sort of effect, that's why I always had to take it with klonopin and I get the feeling that you could hurt yourself if you took it for an extended amount of time by itself. After awhile, I only started taking it maybe once every two or three days and a small dose, it has a really long half-life. And though I can't deny it's beneficial effects in the beginning it just seemed to burn itself out after awhile and you just get what you get. I honestly couldn't tell you if the benefits were long term because I've had a rollercoaster of a summer after a pretty brutal car accident I was in several months ago and got pretty beat up, lucky as hell to be alive. I started taking neurontin about a month ago for nerve pain and in some sort of twist have gotten quite a bit a relief from HPPD from it, maybe more of the mental aspects and after an increase in visuals when I started taking it, that aspect seems to taper off and actually has made it slightly better too, I totally wasn't even looking for it or expecting it. I plan on staying on it for at least several months and see where I'm at then. It made me pass out the first time I took it and made me feel wasted when I started neurontin but that goes away unless you increase to dose. I took neurontin a long time ago, years and years ago and don't remember getting anything from it but I was for sure in a completely different mind state and place with HPPD. I also plan on giving sibelium a try in the near future too so if I get some sort of symptom relief from that as well I will let people know. I really hope I didn't send anybody down a bad alley, I don't want that on me, it worked for awhile but I don't think it's a long term solution, it just feels like there's too much risk of some sort. Wish everyone the best and try not to think about this so much, it's too easy to stop it all and obsess if you start.
  17. Honestly, you might want to contact the National Inistitute of Mental Health since HPPD is classified as that. I looked at the sight and the term doesn't even come up on the page search for anything. They've got all the resources in the world and do tons of studies. I'm telling you, with the rise in hallucinogen use of late and just neuroscience in general they is probably someone that would be interested.
  18. Scripps is pretty top notch. Actually, there's been quite a rise in the use of psychedelics in the last year of too and also exctasy. The might not turn you down if you email them several nice cohesive letters. Plus the money is coming from the NIH. They would probably use it as a cautionary tale. Something to inform others about. Just being honest with you. They might not be able to completely "heal" you but you might get some real answers and further the whole HPPD project. I think I looked at them a couple of years ago browsing and there was a guy there that specialized in visual pathways and such. Nothing to lose.
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