joe

windscar, no offense, but your the type of person the people that are working on doing something with this stuff are afraid of buddy, if someone abuses it in the name of self righteousness or just wanting to get better, this really goes for anybody, don't be the guy or girl that goes on his or her own and starts taking this stuff and gets all screwed up because of it, hurt basically or worse, if anyone goes that way or wants to go in that direction you must be under the supervision of dedicated professionals, not a haphazard ones that get loose with their patients. Be very careful with what your doing, you might ruin it for others and research that can many in general, do you really want to be that one?

frisbee's alright but it ain't no hockey

is anyone white?

is that what happen to you?

topic explains it, everytime I've logged on there are still a couple of guest supposedly on this board? Are they bots? Is this board being monitored somehow? Did I miss the post about that? what's up?

Nefiracetam and Coluracetam are the two I'm more interested in. I've tried piracetam and it didn't really help as well and that clumps in a little bit with aniracetam. The first two racetams I just wrote are much more interesting.

yes

I was looking at the entire racetam family which keppra is a part of (levetiracetam) and the nootropic piracetam is as well. The sentence that seems to stick out the most as to why keppra is at least slightly effect for most people is that it impedes nerve conduction across synapses. via a unique mechanism that other anticonvulsants don't appear to. There's also the sentence levetiracetam inhibits communication between the two halves of the brain which obviously sounds scary and probably has a big effect on the side effects associated with it to keep it short. Probably why a lot of hppders went haywire on it. So I was looking at the entire racetam family and it just seem at least maybe on the surface that other racetams might be beneficial for hppd, especially Nefiracetam, Aniracetam, and Coluracetam. Nefiracetam and Aniracetam seem to synergize the effects of each other. Unfortunately they seem to be being picked up by pharmaceutical companies and are getting hard to get. I only found Nefiracetam in bulk powder and one tablet form combined with other nootropics and Coluracetam is in phase 2b studies as a novel antidepressant so it's pretty much locked up. I don't know, I'm just talking. Also, has anyone given taurine a long term trial? I also saw this supposive "new" formula called Pharmagaba that supposedly passes the blood-brain barrier, but personally, I didn't have any luck with l-theanine. anyway just talking.

anybody on this board in Europe other than Jay1?

told you man, there's at least some overlap for some people, did you the head shake test? I copied this from wiki The vestibulo-ocular reflex (VOR) is a reflex eye movement that stabilizes images on the retina during head movement by producing an eye movement in the direction opposite to head movement, thus preserving the image on the center of the visual field. For example, when the head moves to the right, the eyes move to the left, and vice versa. Since slight head movements are present all the time, the VOR is very important for stabilizing vision: patients whose VOR is impaired find it difficult to read, because they cannot stabilize the eyes during small head tremors. The VOR reflex does not depend on visual input and works even in total darkness or when the eyes are closed. This reflex, combined with the push-pull principle described above, forms the physiological basis of the Rapid head impulse test or Halmagyi-Curthoys-test, in which the head is rapidly and forcefully moved to the side, while observing whether the eyes keep looking in the same direction. lay off the drugs for awhile longer though, let yourself heal

things are a little more complex than lsd just works on serotonin or gaba, i almost hate to send this to you. http://www.yourpbc.org/articles/detail.dot?id=79253 If you 18, I'm sure you have insurance, why don't you beat a doctor's door down until they'll give you a functional MRI or a PET scan study if you want to possibly shed a little more light on what's going on in your brain? how much did you do anyway? I also had this theory that the "head pressure/head aches" people experience is actually raise intracranial hypertension of some kind, I'd wonder what a lumbar puncture would look like to someone that just got HPPD. just curious, that's all

Gabatril is a pretty bad drug. I tried it for about a month, month and a half and it's crappy. I've already written about it in my naltrexone post. Maybe if I went slower on it or something which honestly I didn't but the side effects were pretty bad. It's nothing like klonopin.

It's still helping but I not at the pace it was when I first started taking it. Side effects are very minimal.

Most people mention head pressure with the onset on HPPD. I was wondering if anyone didn't have head pressure when they first got HPPD. Everybody please take a second to click an answer for this. If you've got more to add post it as a comment.

celexa will blow up your hppd, at least it did for me

the consensus is that risperdal makes HPPD worse.

are you having head pressure?

your still using DMT?

Went down the Keppra route, it was a absolute nightmare for me, don't want to get into it. I guess it helped with afterimages a little bit but overall, complete nightmare. I guess the one thing that I could say I didn't do in my favor during most of that time was that I was still smoking weed but I don't think it would have been that different in my case. It's helped a couple of people but a lot of people it hasn't done much for and made them more depressed. Guess that's already been said.

There's probably two main possibilities for the motion sickness your experiencing. One, it could just be that you eye are trying to adjust to movement they are experiencing/seeing. Simple enough right and hopefully it will work itself out. The other and it may be related is a vestibular issue that you've picked up from the HPPD. Vestibular issues usually entail an ear/eye/balance coordination that may have gotten off a little bit. There's a pretty simple way you can check to see it that may be the case. Have somebody shake your head back and forth quickly while your trying to focus on an object and see if one of your eye's trail or both, don't try too hard, just be natural. Or have someone shake your head around rather rapidly and just see if one of both eyes trail or if they snap quickly to where they are suppose to be looking at. This type of problem usually involves and spinning sensation(vertigo), dizziness, balance coordination, and most of the time effects one side more than the other so you might start leaning one way more than the other. That may or may not be what your experiencing, couldn't tell you. Could just be fluid in the your ears too which can lead to vestibular problems. Actually it's all kind of related meaning the first main possibility about HPPD. A neuro-ophthalmologist can diagnose it using something called a nystygmography (misspelled) but the first thing they'll usually do before that is shake your head around to see if your eyes trail. It's a fixable condition so don't get too worked up about it if that's the case. They'll just have you do some exercises that reset and strengthen the vestibular system and you'll be good as new. I'm only saying because it was something I had to go through like two summers ago. With a nystygmagraphy they'll lay you on a bed and blow hot and cold air into your ears and take some readings to see if you fall in the range I guess. My guy had the machine in his office. Vestibular problems is one of the overlooked issues concerning HPPD in my opinion, even to people that have already been to neuro-ophthalmologist because we'll go in there focusing on the our strange visual phenomenon and I have concurred that with a couple of other people if that amounts to anything. One of the exercises I had to do was stare at an object and shake my head back and forth at particular paces. It's kind of weird because once you vestibular system starts picking up again it starts spitting out useless information that comes into your visual field, meaning like if you turn your head and things get blurry relatively easily the blurryness subsides if that makes any sense, like the trails, or if objects seems jumpy if you move your head too quick. It will help your vision a little bit overall if your experiencing problems like this. Just my experience. Hope that helps, it's nothing to really be scared about. Good Luck

robbie, I don't know how much you partied during the holidays but my partying had a pretty negative effect on the progress I was making on naltrexone. I'm still better off than where I was prior to taking it but some of the effects of that partying still seem to be lingering a little bit visually I guess, afterimages, ect, kind of like you are talking about. It's slowly going away though and I feel fine otherwise. good luck

I seem to be doing fine with it. I partied way way too hard on new years and it has taken a couple of days for me to pull myself back together which would probably be the case regardless for me with that much alcohol and bud, my tolerance is probably pretty low. The doctor told me not to drink too much while I was on it and I did that, really cut loose on new year. I didn't get sick or anything like that, and I didn't really feel any different when I was getting messed up, just the next day or two my vision got a little disorganized but that may have just been from the smoking, just really over did it, hungover in general. I seem to be coming back to baseline though but I slept for like two days, probably fairly normal. So yeah I'm still doing good with it, I wouldn't quit it or anything like that, not really having any side effects. Another positive I've noticed on naltrexone is that my craving for things like food and cigarettes have decreased. I don't want to smoke as much which is cool because I want to quit this year and I'm not over eating. It's not that I don't have an appetite or anything I just don't over eat which was something I seem to do on other meds and I haven't gained weight, I've actually lost a couple of pounds since I've been on naltrexone. I don't think it's effecting my metabolism like SSRI's or antipsych's would. So there's another positive, at least for me because I was overweight. I read somewhere that naltrexone cut cravings for cigarettes but was only effective in helping females to quit smoking but I can tell a difference too. anything else, just let me know joe

here's a journal link for naltrexone and fibromyalgia http://www.ncbi.nlm.nih.gov/pubmed/19453963 if you just look up naltrexone and fibromyalgia plenty of links will come up with articles that might be just as good as this journal entry, I imagine chronic pain/fatigue too.

Hope this isn't depressing but it is probably important. Turn back the clock, when I first got HPPD it was coupled with fibromylagia and chronic pain/fatigue. It was diagnosed as I had the pressure points and soreness in my muscles. I guess one of the lay theories behind fibromylagia is that your pain/pleasure sensors get turned around after say a traumatic event(bad trips?). I was lethargic most of the time and couldn't even get out of bed most days. I was literally like that for several years, just horrible really along with HPPD, just willed myself to survive I guess, hard to think about. It's probably worth mentioning that I was in a car accident where I got whiplash while on LSD but I was already dealing with the fibromylagia, chronic fatique, and HPPD prior to that for almost a year, it just made it worse and that was about when I finally stopped the mad track that I had gotten myself onto as a misguided confused teen which I am not now. The fibromylagia dissipated over the years but I would still tire out relatively quick. I still had chronic pain though and bouts of fatigue. We've got a temperpedic bed at my house now and I couldn't even sleep in it without severe lower back pain by morning which didn't make any sense to my girlfriend because she slept like a baby and never had any pain, along with every other person I know that has one. A lot of nights I would end up moving to the couch because it was easier on me. Before I started taking naltrexone I had a script for Gabitril, the GABA reuptake inhibitor. I had pretty high hopes for it because of the supposive GABA connection with HPPD. I didn't last on it long as the side effects were horrible, you should read the profile, it can induce temporary mental retardation if titrated too quickly or just being on a high dose among other things, I'm being serious, look it up, plus it gives you this uncool drunk feeling that you can't shake, amnesia too. It can lower you seizure threshold and just all sorts of crap, it was pretty bad news for me. The one thing I did notice on it if you can call it a positive was that it numbed my nerves meaning like literally all my nerves through my body and I could sleep on the temperpedic without pain just due to not being able to feel almost anything, I couldn't even feel my jaw bite down and what kind of life is that? But the other side effects and just the games it started playing with my HPPD mind which began to snowball were way too much to call it a benefit. I guess it numbed my nerves in the same way Lyrica or something would, It was different but just I don't know anything else to compare it to. That was another reason that when I started taking naltrexone I didn't have much hope for it. Oh boy here we go again with another one I thought thinking of the utter failure Gabitril had just been along with others. But naltrexone hasn't been that way at all. My energy has improved along with brainfog, and just all together being more together. I can now sleep in the temperpedic bed without my lower back killing me by the morning and I just don't know what else I can say about my experience with naltrexone, thank you god! Like I've said before my DP/DR is practically gone as of now, yeah I've still got some visual symptoms, a little less, but the tiredness, off and on pain, and DP/DR are almost non existent. Today I lifted weights and road a bicycle around the neighborhood and it felt good. I guess those pain/pleasure sensors getting crossed up could account for the pain I was experiencing say when I was trying to sleep on the temperpedic as it always seemed to originate from the back left of my head. One of the papers I posted pointed that some theory points to DP/DR originating from or being a factor of disregulation of the opiod system. I guess I'm playing lay doctor but it would kind of make sense that chronic pain, fibromylagia could get lumped in to that as well. In my experience I don't doubt that fibromylagia, chronic pain/fatigue patients are finding relief with naltrexone because you could probably lump me in that group as well, even the doctor that prescribed it to me said they're find all kinds of far reaching applications for naltrexone and the amount of positive feedback from the internet is rather remarkable. I can just talk from my experience, I didn't write shit about the great successes I had with Gabitril because there was nothing for me to say. Everything I've been writing is real, why would I come on here and bullshit all of you people. I'm hoping that by writing this out that hopefully others will not have to go through the long draining sometimes hopeless feeling of trial and error I went through. I want to see progress for everybody and a better way forward for members of this community. I hope this post doesn't get misconstrued or is too depressing, I've had to walk some pretty rough shoes dealing with this. Or for someone to say aha! that's why it would work for you and why it wouldn't for me, man, at least give it a shot. For robbie, when I started naltrexone, it was only 12.5 mg for the first couple of days, that was enough to knock me out for a couple of hours until I came back to and noticed a slight imporvement which steadily increased over time. Even the low dose naltrexone forums say there's an adjustment period so chin up man, stick with it for awhile please before you discredit it. Oh, and it is recommended to be taken at night for the low dose therapy if you hadn't stumbled across that already too. Good luck with it, I'm rooting for you. Robbie, are then fatigue, brainfog your main ailments, if not, what is? I noticed too that I get a little more benefit from taking a good multivitamin than prior. Good luck guys Joe

what kind of HPPD do you have Robbie? Is DP/DR a major part of it?