Merkan

Love it but i do not follow the stanley cup more then whats in the paper right now. However i do watch my local team quiet frequently live. We did have Trent Hunter, NY Islanders, over here during the lockout and he was an attraction.

Ludwig>> sorry, i have a LOT to do right now. All i can say is that i only had typical HPPD like snow, trails, glares, flickering etc. etc. and DP/DR that followed the intensity of visual symptoms. No lag or fatigue. Written on the run on iphone

Man i am like a kid on christmas eve!

+1

I would really appreciate if someone can confirm problems accesing the "alternative medicine" section. Do you get an error message?

Like this one. "fall in love with the world again", that happened to me when my symptoms went away. I could hold a snowball in my hand just watching it melt and just appreciate the beauty of it. Looking at My friends and family totally normal, like being reborn again.

Well that makes much more sense then the Fight Club story

By some reason i cannot access that particular section. I think it is important to get the right threads in the right sections. David has been notified but has not answered yet. I guess he is too busy. As soon as that section is ok i'll move it. There are a couple of other threads that belong there as well. I get an error message trying to access it, anyone else get that when klicking the link to alternative medecine? If you do please post in the existing thread in the "suggestion" section.

This strucked me as well. Interesting, makes you think about all the people who has gone threw the same stuff as we are now.

Shaolin>> On the other hand, i found your theories interesting and hopeful. You do seek evidence in the existing litterature and though your conclusions are subjectice they are atleast derived from empirical research applied to your rational thinking. That does not make it "true" but interesting cuz its not just out of the blue guessing. I would encourage you to keep updated and a laymans finding has value aswell.

As you might now, clonazepam is beneficial for people with neurological problems like HPPD. The specific act of mechanism is out of my knowledge but it seems that it somehow does more then just boosting the GABA. Diazepam does nothing for me in an equivalent dose but clonazepam is really something different. Its more then a sedative like other benzo's. As some have experienced, clonazepam can temporarily increase HPPD symptoms when starting the medication. To me it says that something is going on in the 5-HT action.

Hope it will be possible to get my hands on one of those copies.

Actually this is not the whole truth. A lot of people does not need to to up the dose. I have spoken to to some docs who treats people with medication abuse who says that some people have been on the same those for 10 years without any tolerance. And when it comes to Clonazepam, the effect of inhibition seem to work indefinitely even if you get tolerance. That is known threw the seizure community.

Did is a great respons. Threads like this won't make people to move forward, same goes for the thread "What would you do if..." All these hypothetical questions will only hold people back and unable to accept what they cannot change instead of focusing on what is possible to change. There are people who do comprehensive research in this area, not only HPPD but also as Broken Saint says, in trying to understand the brain better cuz there are other, more common, neurological disorders out there. If you feel like contributing to the cause of awareness/understanding to HPPD, please do so in the way you can but also remember to try to live your life and take care of yourself where you are now. I will soon start working and i will probably start giving monthly payments to research about the brain. If those money will be used in trying to understand Alzheimer disease then there will probably be something beneficial that comes out of it to HPPD sufferers. That'll be my contribution to the cause since i do not have the skill or education to do the work that David S is.

Yes, i remember Dr. Henry Abraham saying that few cases are spontaneous without any obvious trigger (no medical or substance used)

Pretty much sums up my experience until i payed the top neuro in my country big bucks to take me on.

Sweden probably CA/USA this autumn.

I am not sure my answer will satisfy you but i'll try since i am only answering what a doc cannot or if the question is such that i cannot say for sure. "Strong drug" is hard to define because it is relative. I wont touch that subject. When it comes to me i do have had some migraines in the beginning (couple of months and when i raised the dose). It also balanced my mood which cut both downs and lows. That is both a blessing and a curse to me. It also lessened my sex drive. Want to make it clear, those are my experiences. As for prescription advice i cannot say anything about that. Btw, Keppra is not a recognized treatment for HPPD. Describe your symptoms and talk with the docs if it could be beneficial to you or if any other treatment is recommended.

I know not everyone gets worse with weed but i guess your question is a case of trial and error, as any other med when it comes to HPPD.

I've tried to access it but i get an error message. Trying to figure out whats wrong but have not found out yet.

Before reading, this is just a piece of my own experiences and should not in any way be interperated as a generalized treatment suggestion. Please speak with your doctor if you somehow are interested in treatment using any kind of medication. Questions that is supposed to be addressed with a doctor or impossible for me to give an reliable answer will be left unanswered. Also i will not go into theories about the function of this regime on HPPD. Keppra is developed as an anti-seizure medication, primarily as an add-on medication to other anti-seizure meds with multiple effects on the brain. Anti-seizure medication is also known for treatment in bi-polar disorder. Keppra however, only has one action and is often refereed to as "strictly neurological". Thats what i have been told by doctors but i do not claim it myself. Anyway, i started with Keppra about 18 months post HPPD for just some days. What happened is very hard to define. I can only describe it as the light switching on in my brain making me very focused and i noticed that my symptoms at that time (visual snow and trails) changed drastically. The snow slowed down an the trails did not least as long as the used to. With it, the depersonalization/derealization cleared up. I felt great a couple of days but at night i got pretty intense cev's and an uncomfortably feeling in my body. My symptoms was almost gone when this happened. Today it wouldn't have freaked me out like it did then but it did so i stopped the Keppra regime. I was at this time still hoping for my HPPD to heal by itself. Looking back i wish i would have kept going but what i have learned is that wishing won't change anything. What happened a couple of months later really changed the way i would look at my conditon in the future. I was at the time using kodein and tramadol as some kinda self medication. I got some Kratom which is an opiate agonist but also have several other alkaloids in it . When i took it, i immediately felt that something was wrong. I felt like a bad high coming on that felt more like cannabis. When the effects where off, my symptoms came on 10x stronger then before and everything was visually so bad that i wanted to die. My mind was racing bad as well. I was hospitalized due to this. When i came out of the hospital i got clonazepam which sorta made me ok from the racing mind but still i had very bad visual and mental problems. I remembered the Keppra from earlier I had some rough days but a week post starting it i started feeling much better and a lot symptoms faded rapidly. Still had some issues but i was ok that i survived my second onset. Without these meds i would have been lost, i truly believe that. Some months went by and i wanted to see how raising the dose would effect my symptoms, would it be possible to get even better? It took some time but it really helped me even further by adjusting the dose. I started to live a life worth living, got back to school, visiting friends, got creative etc. Still had some symptoms but i didn't bother that much, i was glad to have a somewhat meaningful life. However, if the experience with kratom gave me a cruel unexpected punishment, something else came as a gift from God. I have always struggled with my weight, lost a lot of wieght, gained some, just to loos it and then gaining. So i read online on something called "LCHF". I started this though i still ate sugar from time to time. I noticed my remaining symptoms becoming even better then before. I read up on this diet and read that a strict diet over time could help people with epilepsy. My thought was, well why don't give it a shot. It was two though weeks but i decided to wait it out. Two weeks had passed and i was in my class and suddenly it just hit me like the day i first got HPPD. I was oblivious to my remaining visual symptoms and DP/DR just went away like that. I felt completely normal. The following weeks made me even better. It felt like i was taking twice the dose of my medication but i felt great and no symptoms at all. However i got very tired by the sudden way the intensity of the medication kicked in. As i said, it gets me tired, Hopefully it'll give me some energy back and still remain symptom free. One thing i've learned though is that this calls for a strict diet that is supervised by a doctor and no alcohol at all. Remember that this is my story, people react differently and my regime and medical doses can NOT be applied to everyone. I will get back to you as soon if anything changes. // Gustaf

Lovely!!!

My symptoms came 1 month post intake without anything obvious triggering it. Thats why it took a looong time til i knew what was really going on.

Fitch>> I do agree with you that if something like this is supposed to be effective one need to put more into it then just buy some random CD at the local store with those typical 10-15 min sessions. I do have a question though, do you still need to practice meditation to keep this positive effect or did the 10 session sorta "unlocked" whatever was unlocked? I am a skeptic but i know that when hooking up people in deep meditation to EEG measurement there are significantly changes in the neurological pathways. Also, an experiment with monks meditating in a cold room were able to make water from wet towels around there necks vaporize until they were completely dry. This does not say that it will have a profound effect on HPPD but it does not exclude one either. I do not believe in mysticism as anything else then suggestion but i do believe that that there are more to the brain functions then we know. As i said, if i can get off my meds, i'll prob do this with or without HPPD.

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