HPPD on National TV News Australia (ABC)

[Spartan]

https://www.abc.net.au/news/2024-03-30/research-into-hallucinogenic-persistent-perception-disorder-hppd/103641192

Edited March 30 by Spartan

[Jay1]

That's a good article, thanks for sharing.

RIP Joey, very sad to read that part of the story. 

[Spartan]

Yes it is. Most welcome!

Very sad to hear about Joey. RIP Joey and sincere condolences to all family etc 

I was requested by the producer to be interviewed for this, unfortunately I was not able to at this time.

Hopefully this may be a catalyst for further funding to prompt the Macquarie HPPD study protocol. 

Edited March 30 by Spartan

[Spartan]

This is excellent for awareness etc etc 

It's going semi viral on tik tok.

[Spartan]

I made one comment "

"30 year hppd suffer right Here. visuals 24- 7 open and closed eye hallucinations constant. it is a very real condition and sadly no effective treatment. you cannot comprehend what it is like and you never will.'"

My comment got over 1000 likes only one day. 

Edited April 9 by Spartan

[Spartan]

I might see if I can get celebrity's with large reach to blow it up further! 

[Spartan]

Celebrity script (feel free to use and expand upon)

 

Hello....

Hope you are all very well. 

 

We are doing our best to raise awareness of a debilitating drug induced mental health disorder known as HPPD. 

 

Please see…............. for more information 

 

Just last week there was ABC news coverage on the condition, in a attempt to raise awareness for much needed research, 

 

Please see video the attached at the bottom 

 

Noting your amazing very large social media reach 

 

and your passion and philanthropy in mental health 

 

It may be a possibility to put something real together and out there to increase awareness and furthermore work towards funding for much needed treatment of this debilitating illness. 

 

In this way, warning youngsters that may have there lives irreversible altered due to contracting this condition, and enabling life long sufferers access to treatment. 

 

We are not anti psychedelic at all, although just advocating for much needed research. 

 

Please share your thoughts? 

 

Much appreciated, you are awesome! 

 

Thankyou 

 

Kind regards 

 

........

[brake]

13 hours ago, Spartan said:

This is excellent for awareness etc etc 

It's going semi viral on tik tok.

[Spartan]

Tik tok link 

https://vt.tiktok.com/ZSFpSDRuL/

Man so many trolls 

Tho sone very empathetic understanding souls out there. 

Doing my best to educate with the facts. 

 

[brake]

1 hour ago, Spartan said:

Tik tok link 

https://vt.tiktok.com/ZSFpSDRuL/

Man so many trolls 

Tho sone very empathetic understanding souls out there. 

Doing my best to educate with the facts. 

 

Wow didn't realize how dark this seems until I saw it on TikTok. Hopefully Joey doesn't die in vain!

I still remain open minded however I kind of am against psychedelics because I simply would not have had this was it not for psychedelics.

[Spartan]

4 hours ago, brake said:

Wow didn't realize how dark this seems until I saw it on TikTok. Hopefully Joey doesn't die in vain!

I still remain open minded however I kind of am against psychedelics because I simply would not have had this was it not for psychedelics.

Absolutely!

Yes, I am the same. 

[Blossy]

Agreed, LSD was 100% the cause of mine, I remember it every day of life but cannot ponder too much on it, 33 years ago no that fateful ( and horrible ) day that changed my life forever!

Continuing frying my brain into my early 30's was probably not the best idea also to be fair, haha......

[Jay1]

It's a really complex situation.

We are the obvious example of very severe "side effects" of these drugs.

But the legit treatments are certainly helping a lot of people too and they are generally doing it in the safest manner possible (pure drugs, eye mask, minimising stimuli). I think the practitioners need to give serious thought to this sort of treatment though, especially when treating mental health issues. HPPD will happen to some of the patients and they need to be upfront about such life changing risks. 

As for the trolls, don;t give them any oxygen... I'm sure most of us were in denial of any risks too, when we took drugs. 

[Spartan]

3 hours ago, Blossy said:

Agreed, LSD was 100% the cause of mine, I remember it every day of life but cannot ponder too much on it, 33 years ago no that fateful ( and horrible ) day that changed my life forever!

Continuing frying my brain into my early 30's was probably not the best idea also to be fair, haha......

Yes LSD seems to be a main culprit.. makes two of us. 

Super intense stuff.. I clearly remember the onset also.

Yes, that sounds pretty hardcore . I started using / dropping A way to young, with the influence of my older brother sadly.. so likely that is another contributing factor. 

[Spartan]

1 hour ago, Jay1 said:

It's a really complex situation.

We are the obvious example of very severe "side effects" of these drugs.

But the legit treatments are certainly helping a lot of people too and they are generally doing it in the safest manner possible (pure drugs, eye mask, minimising stimuli). I think the practitioners need to give serious thought to this sort of treatment though, especially when treating mental health issues. HPPD will happen to some of the patients and they need to be upfront about such life changing risks. 

As for the trolls, don;t give them any oxygen... I'm sure most of us were in denial of any risks too, when we took drugs. 

Yeah absolutely! 

Sure. Yes most def severe hppders..100%  

Very true, I'm sure it will come back to bite them at some stage . One of the reasons why they should be taking more interest in research! 

Absolutely, yes your right. I'm dumb founded and disgusted at times when people try to sell hppd sufferers psychedelics as treatment. That makes me angry. 

Anyhow.. been challenging times for me as been super vidid strong.. Likley worst ever been with protracted stress.. no doctors will prescribe K.. 

At times I will turn to "other things" to try and cope.. though it's not healthy.. I just feel human beings have a human right to medical treatment..ffs most doctors in this part of the world are not knowledge to put it very nicely. 

I will just have to keep looking until I find the right one. I will get though this. 

Cheers all. 

 

 

[Blossy]

On 4/10/2024 at 12:45 PM, Spartan said:

Yes LSD seems to be a main culprit.. makes two of us. 

Super intense stuff.. I clearly remember the onset also.

Yes, that sounds pretty hardcore . I started using / dropping A way to young, with the influence of my older brother sadly.. so likely that is another contributing factor. 

Agreed, I was 15 at the time had taken LSD ( Purple Ohms ), even typing that gives me 'triggers', had taken 2 half paper tablets on separate occasions, than 1 full one a few weeks later and totally freaked out at home -  1 week later I had a flash-back that was a 1:1 event of the week before and it absolutely terrified me ( still does ) and BOOM, my life changed for ever, my brain never ever went back to the way it once was, and HPPD was in my life, awful - but, it is what it is, and acceptance is one of the greatest things I have ever done with this condition, and in part to finding this forum and realising I am not alone, and it is actually a thing. I am almost 48 now, scary where the years have gone.

And yeah, age definitely a factor, as in my older years of taking alot of Extacy, and LSD ( usually with Vallium to keep me calm ( crazy thinking about it ) I was much more aware of what the drugs were doing to, me. I often felt when I was high on 'E' my symptoms were absolutely gone too, which to this day I still find a mystery, but defo not enough of a mystery to take anything again!!

 

 

 

 

[Spartan]

On 4/12/2024 at 11:49 PM, Blossy said:

Agreed, I was 15 at the time had taken LSD ( Purple Ohms ), even typing that gives me 'triggers', had taken 2 half paper tablets on separate occasions, than 1 full one a few weeks later and totally freaked out at home -  1 week later I had a flash-back that was a 1:1 event of the week before and it absolutely terrified me ( still does ) and BOOM, my life changed for ever, my brain never ever went back to the way it once was, and HPPD was in my life, awful - but, it is what it is, and acceptance is one of the greatest things I have ever done with this condition, and in part to finding this forum and realising I am not alone, and it is actually a thing. I am almost 48 now, scary where the years have gone.

And yeah, age definitely a factor, as in my older years of taking alot of Extacy, and LSD ( usually with Vallium to keep me calm ( crazy thinking about it ) I was much more aware of what the drugs were doing to, me. I often felt when I was high on 'E' my symptoms were absolutely gone too, which to this day I still find a mystery, but defo not enough of a mystery to take anything again!!

 

 

 

 

Wow yeahh. That sounds aweful!! Sorry to hear of your challenges.

Have a feeling my onset was around age 15.

Was too young to know anything of long term consequences... And too caught up in that world. 

Main tab names I can remember were : Red dragons, Tiles, Blue gels, Robots, Microdots, Strawberries  etc etc As well as other substances... 

Yes very true, acceptance is definitely a key.. 

I've herd a few horror stories from people mixing psychedelics with pharmaceuticals.. 

No way I would ever touch any psychedelics now...

I'm having real challenges sourcing medication now (K) as I do need it at this time.. 

Occasionally I will use other things to help me do my best to manage while things are so heightened.. 

Cheers! 

Edited April 14 by Spartan

[Jay1]

I also had some form of hppd at around 14-15 too... VS and moving objects... Sadly, i thought it was cool and a "free trip"

Purple Ohms, Strawberries and Raving test tubes for me! The microdot I had a glastonbury 95 was what finished me off, they were about 10x the strength of anything i'd taken before and made my visuals what they are today

[Blossy]

Crazy times Jay.

[Blossy]

On 4/14/2024 at 8:01 AM, Spartan said:

Wow yeahh. That sounds aweful!! Sorry to hear of your challenges.

Have a feeling my onset was around age 15.

Was too young to know anything of long term consequences... And too caught up in that world. 

Main tab names I can remember were : Red dragons, Tiles, Blue gels, Robots, Microdots, Strawberries  etc etc As well as other substances... 

Yes very true, acceptance is definitely a key.. 

I've herd a few horror stories from people mixing psychedelics with pharmaceuticals.. 

No way I would ever touch any psychedelics now...

I'm having real challenges sourcing medication now (K) as I do need it at this time.. 

Occasionally I will use other things to help me do my best to manage while things are so heightened.. 

Cheers! 

Thanks and all good - I don't let it stop me, sometimes I think I may go to the doc and ask for some kind of 'help', i've read so much about the drugs that have given some kind of relief on here ( anti seizures medication by the sounds of it one that is up there ) but not sure thats a road I want to go down - the best treatment for me is to try and keep the anxiety at bay and to keep moving forward - but hey, if there was ever a 'miracle cure, I'd be first in line!

[Spartan]

That sounds truly hardcore Jay! 

Can totally relate with everything you are saying too blossy! 

Hope everyone is doing well. 

[AF44]

On 4/10/2024 at 4:45 AM, Spartan said:

Yes LSD seems to be a main culprit.. makes two of us. 

Super intense stuff.. I clearly remember the onset also.

Yes, that sounds pretty hardcore . I started using / dropping A way to young, with the influence of my older brother sadly.. so likely that is another contributing factor. 

Makes 3 of us