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Posted

I've used it long term, but not every day... 

I tend to do something like:

Thu 1mg

Fri 1mg

Sat 1mg

Sun 1mg (occasionally, if needed for a social event)

3-4 days off

Then have 2 weeks off every 3 months to fully clean the system. 

If needed, I sometimes up the dose to 1.5mg for really anxiety inducing events. Likewise, I sometimes take 0.75mg is I need something, but know it will be easy enough to get through... 0.5mg doesn't really do anything and 2mg+ shows no significant improvements either (and just makes me sleep).

One thing that took me a while to get my head around is it's best used it to treat anxiety, not the visuals and dpdr... When I first got my script, I would take 2mg as that was the dose that would really help my visuals (while also helping anxiety and dpdr)... After a while, I figured out that if I decrease the anxiety using 1mg, I didn't really care as much about the visuals, that were a little bit reduced, but not like the 2mg dose. This really helped to stay away from tolerance, imho.

This approach has worked for me for about 15 years now, with little to no sign of tolerance or withdrawal (I had 6 weeks off during lockdown and didn't notice any issues other than my standard hppd/anxiety). I can't really begin to say how much this med has improved my life.... social events, work events etc have become so much easier and just knowing that I have the med on hand, if needed, actually reduces my anxiety. It just needs to be treated with a lot of respect.

Posted

Hi Jay 1 that is super helpful and insightful.. thankyou 

I have been using for approx over 1 year now. 

I had some extremely traumatic and stressful situations take place and due to this increased my dose and started using on a day-to-day basis to get through... 

Im.currently on 2.5mgs daily.. reduced from 3 with some withdrawals tho pretty much all ok now. 

II know I will  get down to 2mgs when the time is right.. and Likley continue to taper from there.

Tho will just keep on keeping on for now. 

I remember you sharing your great regime with me some time ago now though I slipped...

Anthony that's just how is is for now. 

Many thanks again!!! 

Best regards 

 

 

Posted
1 hour ago, Spartan said:

Hi Jay 1 that is super helpful and insightful.. thankyou 

I have been using for approx over 1 year now. 

I had some extremely traumatic and stressful situations take place and due to this increased my dose and started using on a day-to-day basis to get through... 

Im.currently on 2.5mgs daily.. reduced from 3 with some withdrawals tho pretty much all ok now. 

II know I will  get down to 2mgs when the time is right.. and Likley continue to taper from there.

Tho will just keep on keeping on for now. 

I remember you sharing your great regime with me some time ago now though I slipped...

Anthony that's just how is is for now. 

Many thanks again!!! 

Best regards 

 

 

Did it improve your visuals? Also, your profile picture is HORRIBLE haha!

Posted
1 hour ago, Spartan said:

Hi Jay 1 that is super helpful and insightful.. thankyou 

I have been using for approx over 1 year now. 

I had some extremely traumatic and stressful situations take place and due to this increased my dose and started using on a day-to-day basis to get through... 

Im.currently on 2.5mgs daily.. reduced from 3 with some withdrawals tho pretty much all ok now. 

II know I will  get down to 2mgs when the time is right.. and Likley continue to taper from there.

Tho will just keep on keeping on for now. 

I remember you sharing your great regime with me some time ago now though I slipped...

Anthony that's just how is is for now. 

Many thanks again!!! 

Best regards 

 

 

No probs! I'm glad there was a med there for you, when it was really needed.

It's one of those cosmic jokes that we have found a med that actually works for HPPD, but comes with it's own set of problems!

Posted
23 hours ago, Jay1 said:

I've used it long term, but not every day... 

I tend to do something like:

Thu 1mg

Fri 1mg

Sat 1mg

Sun 1mg (occasionally, if needed for a social event)

3-4 days off

Then have 2 weeks off every 3 months to fully clean the system. 

If needed, I sometimes up the dose to 1.5mg for really anxiety inducing events. Likewise, I sometimes take 0.75mg is I need something, but know it will be easy enough to get through... 0.5mg doesn't really do anything and 2mg+ shows no significant improvements either (and just makes me sleep).

One thing that took me a while to get my head around is it's best used it to treat anxiety, not the visuals and dpdr... When I first got my script, I would take 2mg as that was the dose that would really help my visuals (while also helping anxiety and dpdr)... After a while, I figured out that if I decrease the anxiety using 1mg, I didn't really care as much about the visuals, that were a little bit reduced, but not like the 2mg dose. This really helped to stay away from tolerance, imho.

This approach has worked for me for about 15 years now, with little to no sign of tolerance or withdrawal (I had 6 weeks off during lockdown and didn't notice any issues other than my standard hppd/anxiety). I can't really begin to say how much this med has improved my life.... social events, work events etc have become so much easier and just knowing that I have the med on hand, if needed, actually reduces my anxiety. It just needs to be treated with a lot of respect.

I'm curious! Has it affected your memory or cognition overall? You don't get sleepy at 1 mg? Do you split it and take 0.5 mg in the morning and 0.5 later in the day?

Posted
1 hour ago, Hall89 said:

I'm curious! Has it affected your memory or cognition overall? You don't get sleepy at 1 mg? Do you split it and take 0.5 mg in the morning and 0.5 later in the day?

If i'm focused... Working or socialising, I'm good, not tired and don't notice any memory issues (at 2mg+ i do)... If I am watching tv, i will probably sleep though, even at 1mg... I've tried splitting the dose, but 2 x 0.5mg does nothing for me.

Posted (edited)

Cool thankyou for the feed back everyone...

To be honest does not help visuals so much though takes the edge off.

I usually take around 6pm in evening to wind down.. Likley if I took during the day would be too sedated to function effectively.. 

Though also, my visuals are way more intense on the evenings when it's dark.. tho basically there all the time.. open and closed eye.. 

Really pressing for studies on HPPD to happen asap.. it's just the funding we are waiting for... Will happen, just takes time.. too much time unfortunately...

Peace out ✌️💪

Edited by Spartan

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