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Everything posted by Hall89

  1. Jesus christ, if that's "mild" compared to your "old" HPPD you're one of the strongest persons that i've talked to. That you've managed to get an education with such severe HPPD is beyond me, i almost killed myself and mine is much milder than yours. I presume that you got depersonalization and derealization on top of all your visuals? Did you get the head pressure and tinnitus as well? And would you really not have changed a thing if you could go back with the knowledge and experiences that you have today? Surely you would? I mean, who doesn't want to have a clear vision and good mental healt
  2. Thanks for answering, it appreciate it alot, because having the visual snow actually going away and not just getting used to it seems VERY rare, and it is without a doubt my worst symptom today, so you gave me some hope! What were all your other symptoms that went? Oh trust me, i'm never touching any drugs again, but my case is a bit ironic, because i got this hell of a disorder after the fourth time that i tried cannabis, prior to that i had never tried anything else than alcohol 4-6 times a year, caffeine daily, opioids for a week after a surgery a few years back and zopiclone a dozen of
  3. Thank you for sharing! I'm real sorry to hear about your struggles and that it has flaired up for you. I can't even imagine how horrible it must've been to get this disgusting disorder at such a young age. I'm curious, did your visual snow actually go away with the years or did you just get used to it?
  4. I've read that Henry Abraham said that about half of the people with HPPD will fully recover within five years, and i'm curious, do you believe this is accurate? Personally i don't, but i do know that some of the symptoms fade for some people, were the hallucinations seems to be the most common,but i've never heard of a full recovery and sadly the static seems to be permanent for most, if not all. What makes me question this statement is the interview with him below were he says: "for some, not a ton, but some, the symptoms can fade over a long period of time". That doesn't sound l
  5. It started to fade when i got up to 50 mg after one month and i'm still on it, but 125 mg. It's taken away the head pressure, brainfog, hallucinations and a big part of my derealization, but sadly it hasn't done anything about the rest, like visual snow, light sensitivity, astigmatism like vision etc. I can't say for certain that it was the Lamotrigine, maybe they would've subsided without it, but i doubt it since a part of the pathofysiology is that the dysfunction or destruction of GABA interneurons causes an excessive amount of glutamate, which i believe is the cause for the head pressure a
  6. I really hope that this happens and that they atleast can find out the etilogy and update the very outdated and wrong DMS-V criteria that prevents people from getting the diagnosis today. With it being wrong i'm talking about the first critera which says: "A. Reexperiencing one or more of the perceptual symptoms that were experienced while intoxicated with hallucinogens." This couldn't be more wrong since most people i've talked to have gotten visual disturbances that they haven't seen when being under the influence of the drug, this was also shown in a survey with 19 HPPD patients were
  7. The head pressure and brainfog is completely gone, most likely thanks to Lamotrigine. My worst symptom today is the disgusting visual snow and derealization that varies in intensity day to day. God i hate this shit.
  8. 41-42 years with this shit? I feel for you man, atleast i got 31 years with a clear vision and no derealization.
  9. Yeah, the spectrum of severity seems to be big, but visual disturbances is a must for it to be classified as HPPD, or well, HPP, since it's so mild for some that it doesn't cause them any suffering. I've read about some that only got some intensified colors and mild tracers, others only visual snow and then there's those like me and others here that got it real bad. I'm glad to hear that your VS went away, it's my worst symptom today. Wich remained?
  10. Hard to say, but if i were you i would stay away from drugs for the rest of your life.
  11. As the title says, have anyone here tried Brivaracetam - the newer version of Keppra? I talked with a guy that have VSS and he said that it decreased his VS quite alot; around 50%.
  12. Studies actually proving that HPPD visuals, like vs, can go away? If so, pleasr share.
  13. I wonder how accurate this is and what he means with recovery. Is it symptoms actually going away or people recovering mentally? I hate him for not being more specific.
  14. It seems like all hallucinogens and psychedelics can cause it. "A vast list of psychoactive substances has been identified and linked with the development of this condition, including Magic Mushrooms (psilocybin) [21] and muscimol (Amanita muscaria (L.) Lam.) [22]; San Pedro cactus and Peyote (mescaline) [16,23]; ketamine [24]; dextromethorphan [25]; MDMA and MDA [26]; and cannabis and synthetic cannabinoids [27,28,29,30,31,32,33]. This condition has also been associated with the consumption of Ayahuasca, Datura stramonium L., Salvia divinorum Epling & Játiva, and Tabernanthe iboga (L
  15. In what way have Lamotrigine helped you? What dose are you on and when did you notice the improvements?
  16. I just recently talked to a guy that got HPPD with a loads of visual hallucinations, visual snow, dpdr etc about 10 years ago. He thought that he had destroyed his brain permanently, so he said "fuck it" and started using benzos and alcohol at a daily basis. Anyways, after a few years all his visual hallucinations went away and today his visual snow has decreased alot, he said that his HPPD is 95% gone. He did stop with the benzos and alcohol about 4 years ago and these improvements remained, his dpdr is still there though. The benzo withdrawals were so bad that he had to put himself in though
  17. The frustration and suffering is mutual mate. The reason there's barely been any research done about HPPD is because it's a disorder that's caused by illicit drugs and because most people that get it don't seek medical care because of the stigma around drugs and because they through internet quickly finds out that there is no cure or good treatment, and most of those that do seek care gets misdiagnosed because of the lack of knowledge within the medical community. Because of these reasons i believe that this disorder in varying degrees is way more common than what we know, same with visual sno
  18. Sure wish that i lived in Australia so that i could help out. If i were you i would have joined the visual snow group on facebook and ask, because there's several HPPD sufferers from Australia in it.
  19. I'm glad to hear that atleast they're gone! Were your trails and micropsia bad? I wish i felt the same regarding the snow, it's my worst visual, absolutely hate it. Damn! That's a long time! But atleast it's hope. I've been like 90% convinced the last couple of weeks that it's permanent and that those that say otherwise just have learned to cope with it, because pretty much everyone i've asked that's claimed that they've healed say that the key is to stop thinking about it. But that's not really a physical healing that's taken place, only ignoring the symptoms.
  20. Ah, so it hasn't begun yet? Someone on reddit said that Macquarie University was doing a study on HPPD, so i just Googled it.
  21. You don't have any HPPD symptoms any longer? What did they use to be?
  22. Ah ok! Sweden here. I don't know, it seems to be able to cause it just as bad as other psychedelics. I've talked to several others that got it from weed alone and they still have their visuas 6+ years later.
  23. Thanks mate! I really hope you're right! In what country do you live mate? I'm only 9 weeks in, but i was struggling with alot of other debilitating things before this, and with the HPPD on top of them it's just become too much. Here's the ironic thing in my case, i got it after trying a small amount of cannabis for the first time in many years just in hope off getting some relief from the problems i mentioned above. Last time i did it was about 6 years ago and in total i've done it about five times in my life. Other than that i haven't tried any other drugs than alcohol, caffein
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