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Hall89 last won the day on June 4

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About Hall89

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  1. The head pressure and brainfog is completely gone, most likely thanks to Lamotrigine. My worst symptom today is the disgusting visual snow and derealization that varies in intensity day to day. God i hate this shit.
  2. 41-42 years with this shit? I feel for you man, atleast i got 31 years with a clear vision and no derealization.
  3. Yeah, the spectrum of severity seems to be big, but visual disturbances is a must for it to be classified as HPPD, or well, HPP, since it's so mild for some that it doesn't cause them any suffering. I've read about some that only got some intensified colors and mild tracers, others only visual snow and then there's those like me and others here that got it real bad. I'm glad to hear that your VS went away, it's my worst symptom today. Wich remained?
  4. Hard to say, but if i were you i would stay away from drugs for the rest of your life.
  5. As the title says, have anyone here tried Brivaracetam - the newer version of Keppra? I talked with a guy that have VSS and he said that it decreased his VS quite alot; around 50%.
  6. Studies actually proving that HPPD visuals, like vs, can go away? If so, pleasr share.
  7. I wonder how accurate this is and what he means with recovery. Is it symptoms actually going away or people recovering mentally? I hate him for not being more specific.
  8. It seems like all hallucinogens and psychedelics can cause it. "A vast list of psychoactive substances has been identified and linked with the development of this condition, including Magic Mushrooms (psilocybin) [21] and muscimol (Amanita muscaria (L.) Lam.) [22]; San Pedro cactus and Peyote (mescaline) [16,23]; ketamine [24]; dextromethorphan [25]; MDMA and MDA [26]; and cannabis and synthetic cannabinoids [27,28,29,30,31,32,33]. This condition has also been associated with the consumption of Ayahuasca, Datura stramonium L., Salvia divinorum Epling & Játiva, and Tabernanthe iboga (L
  9. In what way have Lamotrigine helped you? What dose are you on and when did you notice the improvements?
  10. I just recently talked to a guy that got HPPD with a loads of visual hallucinations, visual snow, dpdr etc about 10 years ago. He thought that he had destroyed his brain permanently, so he said "fuck it" and started using benzos and alcohol at a daily basis. Anyways, after a few years all his visual hallucinations went away and today his visual snow has decreased alot, he said that his HPPD is 95% gone. He did stop with the benzos and alcohol about 4 years ago and these improvements remained, his dpdr is still there though. The benzo withdrawals were so bad that he had to put himself in though
  11. The frustration and suffering is mutual mate. The reason there's barely been any research done about HPPD is because it's a disorder that's caused by illicit drugs and because most people that get it don't seek medical care because of the stigma around drugs and because they through internet quickly finds out that there is no cure or good treatment, and most of those that do seek care gets misdiagnosed because of the lack of knowledge within the medical community. Because of these reasons i believe that this disorder in varying degrees is way more common than what we know, same with visual sno
  12. Sure wish that i lived in Australia so that i could help out. If i were you i would have joined the visual snow group on facebook and ask, because there's several HPPD sufferers from Australia in it.
  13. I'm glad to hear that atleast they're gone! Were your trails and micropsia bad? I wish i felt the same regarding the snow, it's my worst visual, absolutely hate it. Damn! That's a long time! But atleast it's hope. I've been like 90% convinced the last couple of weeks that it's permanent and that those that say otherwise just have learned to cope with it, because pretty much everyone i've asked that's claimed that they've healed say that the key is to stop thinking about it. But that's not really a physical healing that's taken place, only ignoring the symptoms.
  14. Ah, so it hasn't begun yet? Someone on reddit said that Macquarie University was doing a study on HPPD, so i just Googled it.
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