Simon Sussex Posted April 1, 2019 Report Share Posted April 1, 2019 The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD. The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad. To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ Some extras: - You can complete the questionnaire in more than one sitting so long as you have cookies enabled and return to the same browser on the same computer. Your progress is automatically saved when you continue to a new page within the questionnaire. Your partial responses are saved for one week. - We are carrying out ongoing research on visual snow syndrome and hallucinogen persisting perception disorder at the University of Sussex. This is the first of a series of questionnaires which will be released over the coming months. It’s really important for our research that we receive a high number of responses, and so I would encourage you to complete this questionnaire if you are able to! Link to comment Share on other sites More sharing options...
David S. Kozin Posted April 2, 2019 Report Share Posted April 2, 2019 Hi Everyone. I read through the Informed Consent and sent an e-mail to the study researchers just to verify authenticity and the Lab. I will follow up when I receive a response. The extra caution is because of the new account (even if others know about or are participating with the study). David For the researchers use per my email: 23011974300 Link to comment Share on other sites More sharing options...
Jay1 Posted April 3, 2019 Report Share Posted April 3, 2019 I've verified this already. Link to comment Share on other sites More sharing options...
David S. Kozin Posted April 3, 2019 Report Share Posted April 3, 2019 Thanks Jay! I encourage participation with the study. If a tenth of the HPPD members I have spoken to participated, the sample size would be comparatively large and this would be helpful (at least would not hurt) for getting additional research and large valid sample sizes (in theory) increase the significance of statistical measures. - dk Link to comment Share on other sites More sharing options...
Jay1 Posted April 3, 2019 Report Share Posted April 3, 2019 I've pinned the post.. come on people, get filling it out! Link to comment Share on other sites More sharing options...
MadDoc Posted April 3, 2019 Report Share Posted April 3, 2019 (edited) Will do! Done. Edited April 19, 2019 by MadDoc Done Link to comment Share on other sites More sharing options...
Guest Posted April 7, 2019 Report Share Posted April 7, 2019 Throughout the past seven years, my efforts to raise awareness and create a medical research team are finally paying off for the Neurosensory Neuroregenerative Research Foundation. Below is a survey that was created by one of my contacts who seek to help out struggling patient population with a survey specifically designed for HPPD and VS. I encourage everyone to participate and share it as profusely as possible. THIS IS A DESKTOP ONLY PROGRAM! NO MOBILE DEVICES! Title: University of Sussex, UK, recruiting participants for an online questionnaireThe University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD.The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad.You can complete the questionnaire in more than one sitting so long as you have cookies enabled and return to the same browser on the same computer. Your progress is automatically saved when you continue to a new page within the questionnaire. Your partial responses are saved for one week.The University of Sussex are carrying out ongoing research into visual snow syndrome and HPPD. This is the first of a series of questionnaires which will be released over the coming months. They require a large number of participants for their research and so you are encouraged to complete the questionnaire if you are able to.To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ Facebook:The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD. The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad.To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ Twitter:The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD): https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ Link to comment Share on other sites More sharing options...
Guest Posted April 7, 2019 Report Share Posted April 7, 2019 Ah I see Simon was the original poster for this thread. Thank you for creating an account and publishing your survey here. I’m confident you’ll get many responses. Link to comment Share on other sites More sharing options...
therocknamedwonder Posted April 20, 2019 Report Share Posted April 20, 2019 All finished! I hope everyone who is able to complete this study takes the opportunity to do so. Here's to hoping it'll lead to future studies on HPPD! Link to comment Share on other sites More sharing options...
Simon Sussex Posted May 7, 2019 Author Report Share Posted May 7, 2019 There's one week left to complete the questionnaire. Please keep the responses coming. Thanks! Link to comment Share on other sites More sharing options...
sami Posted May 11, 2019 Report Share Posted May 11, 2019 Great initiative. The questionnaire is really well done! Link to comment Share on other sites More sharing options...
Guest Posted December 31, 2019 Report Share Posted December 31, 2019 Any update? Link to comment Share on other sites More sharing options...
Simon Sussex Posted January 7, 2020 Author Report Share Posted January 7, 2020 We will be releasing another questionnaire within the next couple of months. After that, we will look at the results of the two questionnaires together. Link to comment Share on other sites More sharing options...
Guest Posted January 9, 2020 Report Share Posted January 9, 2020 Thanks Simon!!! Link to comment Share on other sites More sharing options...
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