K.B.Fante Posted May 21, 2017 Report Share Posted May 21, 2017 I've always noticed my pupils have been constantly dilated since getting HPPD but as my symptoms have improved they've shrunk correspondingly, so that essentially the worse my symptoms the more dilated my pupils are. So my question is: Does anybody have HPPD -- specifically more severe symptoms like morphing, DP-DR, long streamers, etc. -- and not have dilated pupils? Link to comment Share on other sites More sharing options...
martainnn Posted May 23, 2017 Report Share Posted May 23, 2017 AFAIK, I've never noticed any change in my pupils, even when I was in the worst months of this. So no, never been a problem for me. Link to comment Share on other sites More sharing options...
K.B.Fante Posted May 23, 2017 Author Report Share Posted May 23, 2017 What are your symptoms? Link to comment Share on other sites More sharing options...
martainnn Posted May 23, 2017 Report Share Posted May 23, 2017 Well I'm about a year and a half in now and these days I struggle more with the DP/DR, fatigue, dizziness and headaches/pressure. Ive been dealing with somewhat of a setback for the last 2 months due to secondhand smoke (at least I think it was that) so my visuals have been slightly worse. So at the moment visually I deal with: -Light visual snow. Easily ignorable at this point, only really see it in certain lights or when Im having a bad day -Light negetive afterimages. Mostly caused by light sources or sometimes text against backgrounds with an opposing colour. -Slight morphing. This one returned after the pot exposure even though I hadn't experienced it in over a year. In fact, its not really morphing, my vision does this thing where it moves from side to side slightly. -Streaks of light created by bright lights. This is my most annoying symptom and really winds me up when im outside at night. Any time I blink, I get like a laser connect to my eye from the light source. Really pisses me off haha -Very mild occasional ghosting of bright lights -Motion blur. Sometimes hard to focus on things that are moving fast or if I move my phone in the dark, I dont really get tracers and never have but it blurs whilst its moving. Think this might related to DP/DR -Bouncy, and sometimes choppy vision. This had got so much better before the setback but has made a swift return. -Floaters and other shit when I look at the sky. Annoying but doesnt really bother me. -Tinnitus In the first 5 months or so I had really bad visual snow, morphing and movement of objects, moderate negetive afterimages (never had positive ones) and extreme mental symptoms to the point where I felt like I was living in a dream, cried all day every day, could barely get out of bed etc etc. Despite this I've never noticed an issue with my pupils Link to comment Share on other sites More sharing options...
MadDoc Posted May 23, 2017 Report Share Posted May 23, 2017 No issue with pupil dilation with me. Back when I used to dose they would be as big as saucers except when I took DOM then they were like pinpoints. Link to comment Share on other sites More sharing options...
K.B.Fante Posted May 24, 2017 Author Report Share Posted May 24, 2017 Huh, interesting. A lot of people have reported pupil dilation but I guess it just goes to show how wide ranging HPPD is and how it varies with each person in every case. Speaking of second-hand smoke, I have tickets to go to a concert next week but I'm starting to wonder if I should even go since I know there's gonna be tons of second-hand pot smoke. I just don't think it's worth it even though I've had the tickets for a year and paid a lot for them. Link to comment Share on other sites More sharing options...
martainnn Posted May 24, 2017 Report Share Posted May 24, 2017 The second hand smoke thing is weird to be honest man. Theres been a few occasions when I'd been around someone smoking but it never effected me at all. I had been quite ill with tonsilitus a few weeks prior and that had increased my visuals somewhat anyway, And I was under a lot of stress from writing my dissertation, so its likely I was in somewhat of a weakened state. Also, it doesn't really make that much sense, I was outside and not exactly stood over the joint breathing it in. You would assume the majority of THC is breathed in by the user and that any THC coming off the end would dissapate into the air. So essentially I probably breathed in about a 10th of a toke or something. Its frustrating though, I understand, Its just so risky doing anything. I guess if the concert is indoors then it plays a higher risk. Who were you going to see out interest? Link to comment Share on other sites More sharing options...
K.B.Fante Posted May 24, 2017 Author Report Share Posted May 24, 2017 Tom Petty at Red Rocks. There's always massive amounts of pot floating about no matter who's playing so I'm just not sure that's the best environment to be in even though it is outside. I really just don't think I could handle a set back after how hard I've worked for the last two years to get where I'm at. Link to comment Share on other sites More sharing options...
K.B.Fante Posted November 10, 2017 Author Report Share Posted November 10, 2017 Just wanted to bump this to point something out... I've noticed recently that my eyes are moving faster. When I first got HPPD it was as if my eyes were frozen inside my head. They couldn't move hardly at all. This is of course quite unsettling considering how lightning fast our eyes are made to move when healthy. I've also noticed that my pupil dilation (and all my symptoms really), afterimages and streamers are connected to how fast I can move my eyes as well. So basically I started off with blown pupils where my eyes could hardly move at all and as time has progressed my pupils have shrunk which corresponds to an increased ability to move my eyes a certain speed as well as a decrease in the length and duration of afterimages. Clearly this all ties to some sort of nerve inside my brain, likely the optical nerve or oculomotor nerve or whatever else controls eye movement. This of course doesn't explain HPPD entirely since many symptoms aren't visually related (tinnitus, brain fog, etc.), however I can at least pinpoint a visual aspect of HPPD that seems to be a big aspect of this condition. Link to comment Share on other sites More sharing options...
Jayly Posted June 9 Report Share Posted June 9 On 5/21/2017 at 6:02 PM, K.B.Fante said: I've always noticed my pupils have been constantly dilated since getting HPPD but as my symptoms have improved they've shrunk correspondingly, so that essentially the worse my symptoms the more dilated my pupils are. So my question is: Does anybody have HPPD -- specifically more severe symptoms like morphing, DP-DR, long streamers, etc. -- and not have dilated pupils? I think I am starting to notice this. When I’m having a lot of issues with my hppd ans my feelings are strong, my pupils are definitely bigger. If it’s not one that slightly larger it will be both. Link to comment Share on other sites More sharing options...
AF44 Posted June 21 Report Share Posted June 21 On 6/8/2024 at 7:11 PM, Jayly said: I think I am starting to notice this. When I’m having a lot of issues with my hppd ans my feelings are strong, my pupils are definitely bigger. If it’s not one that slightly larger it will be both. This is really interesting! I have sometimes noticed that one of my pupils was slightly larger than the other at times, but I don’t know if it was because of my HPPD. My eye doctor told me I have larger than normal pupils, so they don’t have to put in as many drops in order to dilate them for an exam. The last time I went in for an eye exam, they put the drops in and left the room. For some reason I watched my eyes in the mirror (I don’t know why lol, maybe just to see if the drops would make them mega sized ) and I noticed one pupil was a little bigger than the other. Also, many years ago I was at the urgent care for possible serotonin syndrome (I’m on a lot of meds and at the time I was on multiple meds that had serotonin in them) and I’ll never forget the doctor looking at my eyes, he flipped the lights off and had a penlight and he said, “I’ve never seen anyone’s eyes do that!” I was so ridiculous I did not ask him what he meant, so I have no idea what my eyes did. I wish I’d asked! This sounds really crazy, but you know how when you’re on acid your pupils get blown? I always figured it was because you were seeing EVERYTHING. Like your pupils were gates that opened huge and wide to let everything in. So when I have noticed mine are bigger sometimes, and if my HPPD is acting up, I think to myself that maybe the “gates” of my eyes are opening up again to let everything in. Does that sound odd? Link to comment Share on other sites More sharing options...
Jayly Posted June 21 Report Share Posted June 21 8 hours ago, AF44 said: This is really interesting! I have sometimes noticed that one of my pupils was slightly larger than the other at times, but I don’t know if it was because of my HPPD. My eye doctor told me I have larger than normal pupils, so they don’t have to put in as many drops in order to dilate them for an exam. The last time I went in for an eye exam, they put the drops in and left the room. For some reason I watched my eyes in the mirror (I don’t know why lol, maybe just to see if the drops would make them mega sized ) and I noticed one pupil was a little bigger than the other. Also, many years ago I was at the urgent care for possible serotonin syndrome (I’m on a lot of meds and at the time I was on multiple meds that had serotonin in them) and I’ll never forget the doctor looking at my eyes, he flipped the lights off and had a penlight and he said, “I’ve never seen anyone’s eyes do that!” I was so ridiculous I did not ask him what he meant, so I have no idea what my eyes did. I wish I’d asked! This sounds really crazy, but you know how when you’re on acid your pupils get blown? I always figured it was because you were seeing EVERYTHING. Like your pupils were gates that opened huge and wide to let everything in. So when I have noticed mine are bigger sometimes, and if my HPPD is acting up, I think to myself that maybe the “gates” of my eyes are opening up again to let everything in. Does that sound odd? That’s how I feel!! It literally reminds me of when you trip acid and your pupils gey huge and I think I’m going to start tripping again. It’s scary!! Link to comment Share on other sites More sharing options...
Jayly Posted July 9 Report Share Posted July 9 On 5/21/2017 at 6:02 PM, K.B.Fante said: I've always noticed my pupils have been constantly dilated since getting HPPD but as my symptoms have improved they've shrunk correspondingly, so that essentially the worse my symptoms the more dilated my pupils are. So my question is: Does anybody have HPPD -- specifically more severe symptoms like morphing, DP-DR, long streamers, etc. -- and not have dilated pupils? When I feel like I’m going to start tripping I’ve now noticed my pupils both of them will be very dilated. Huge. They shrink as the feeling goes away. I’ve had this 2 years and this is new. Link to comment Share on other sites More sharing options...
brake Posted July 10 Report Share Posted July 10 This is one of those symptoms that I never had. Link to comment Share on other sites More sharing options...
Blossy Posted July 10 Report Share Posted July 10 Same, pupils absolutely normal. Link to comment Share on other sites More sharing options...
Blossy Posted July 10 Report Share Posted July 10 Any @Jayly, what you mentioned is one of the greatest 'battles for me with HPPD, is the fear of starting to trip again, as I did all those years ago exactly 1 week after the bad trip I had, 30+ years on and this still terrifies me daily! Link to comment Share on other sites More sharing options...
Jayly Posted July 10 Report Share Posted July 10 6 hours ago, Blossy said: Any @Jayly, what you mentioned is one of the greatest 'battles for me with HPPD, is the fear of starting to trip again, as I did all those years ago exactly 1 week after the bad trip I had, 30+ years on and this still terrifies me daily! You started tripping again after your trip? And do you take anything to cope? Link to comment Share on other sites More sharing options...
Jayly Posted July 10 Report Share Posted July 10 6 hours ago, Blossy said: Any @Jayly, what you mentioned is one of the greatest 'battles for me with HPPD, is the fear of starting to trip again, as I did all those years ago exactly 1 week after the bad trip I had, 30+ years on and this still terrifies me daily! You started tripping again after your trip? And do you take anything to cope? Link to comment Share on other sites More sharing options...
Blossy Posted July 15 Report Share Posted July 15 On 7/10/2024 at 5:03 PM, Jayly said: You started tripping again after your trip? And do you take anything to cope? Yeah, exactly 1 week after, I had the same trip come on, and was terrifying - HPPD from that moment on was in my life! No, i've taken nothing to cope, I did continue taking drugs for many years after that too, which for sure did not help! These days, relaxing and managing my anxiety is the key to a 'normal' existence. Link to comment Share on other sites More sharing options...
Jayly Posted July 15 Report Share Posted July 15 3 hours ago, Blossy said: Yeah, exactly 1 week after, I had the same trip come on, and was terrifying - HPPD from that moment on was in my life! No, i've taken nothing to cope, I did continue taking drugs for many years after that too, which for sure did not help! These days, relaxing and managing my anxiety is the key to a 'normal' existence. How long did it last ?! That’s so sad to hear. I’m so sorry. Link to comment Share on other sites More sharing options...
Blossy Posted July 15 Report Share Posted July 15 45 minutes ago, Jayly said: How long did it last ?! That’s so sad to hear. I’m so sorry. About 33 years and counting, haha..... Link to comment Share on other sites More sharing options...
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