onelovez

fMRI is a very important test to do. I think we should all do it.. im sure if you google fMRI and sideefects and if nothing comes up than it is safe.

Shit i just sold my neurofeedback device today. Never really tried it for too long.. always too busy or too lazy. And its not worth much if you do it at home and nobody is following your progress and giving you proper directions/montages. The neurofeedback device itself cost 1500euro (maybe even other brand to what I had would be cheaper), so 2000gbp is really overpriced. The psychologist that I talk to about running the hppd foundation in Poland he is a neurofeedback/tDCS specialist. One session of each of them costs around 15 euro in Poland. So we could get 242 neurofeedback/tDCS sessions done here for the same price I actually did around 20-25 neurofeedback sessions in my life with two therapeutists, but it was either not enough or maybe the fact that I was still using alcohol and other things, every few days stopped any possible progress. Look, I think 2000gbp is way overpriced... and I kind of doubt that 12-20 sessions is enough too... Nonetheless I am very curious to talk to that clinic and ask how exactly did they succeeded in treating HPPD, what montages etc. Knowing that or just knowing that there is a good chance to treat HPPD with neurofeedback we could do the same thing without spending 2000gpb, but instead few of us could come to Poland, where cost of living and medical costs/treatment costs are very low. I am actually planning to take a few weeks/months off starting in January and go to Wroclaw to that psychologist and try tDCS and Neurofeedback. If anybody is interested we could all meet up same time, do all the qEEG, fMRI and everything else necessary and then try tDCS/Neurofeedback. ALSO that psychologists knows a lot of different specialists in Poland/Germany etc.. We could bring our results to few different people and get their opinions. Maybe even try to get involved in our researches somehow (by asking them to join our foundation for example). Its totally different when 10 people with the same problem try to convince a doctor that their problem is real, to just one person.. thoughts??

fuck man thats was bad one.. u started with a hooligans team or something? I got hit by a hurling stick under my temple, for change, when i was living in ireland (by some polish scumbags though).. AND yeah i actually wondered about fMRI and its effects too. I intend to do one soon hopefully. K.B.Fante - please report us back with the results!

you need to look for different doctors at the same time.

https://www.dropbox.com/sh/ua1iqcbgsexdm53/AADxVdQlpAMyUI3IySm9fIN1a?dl=0 all the studies about HPPD and some about VS with highighted important parts - by me. there is a lot of information there.. and here - links to the same studies online http://www.evernote.com/l/AbRsTAeTpEdAK4WUDtw86U-VLIzve9l_4Ks/

I am about to print every study and article about VS and HPPD from this list http://www.evernote.com/l/AbRsTAeTpEdAK4WUDtw86U-VLIzve9l_4Ks/ then I gonna highlight every important piece of information, then scan it so anybody can print it later and show to every doctor/researcher that wants to have a better idea about VS and HPPD. Do you think I should include anything else into that list of documents??? Some other time I am going to do the same for other conditions (tinnitus itself, DP/DR etc. Right now I don't have time for collecting all the studies, unless you want to help me collect them.

I used serrapeptease for a while, not everyday but every second/third day. Didn't feel any change.. maybe its the hppd covering all the benefits that could have been felt? i dont know.

Hi people. There is a lot happening right now. OldSchoolAr have been in contact with a foundation that is about to organise a collection of funds and a research of HPPD for us. HopeOne has been working on Neurosensory and Neuroregenerative Research Foundation and he has been doing a great job. He already got people involved into the scientific board. I can picture this foundation progressing and making a huge impact. However, both of those undertakings are not one mans job. They need our help. We need to contact doctors and get them involved, we need to contact institutions and seek attention. For this reason we need content writers, possibly with a knowledge of HPPD and/or neurobiology. We need people that understand HPPD well that will give ideas and help to direct the research. Visual - where are you? Also we have to start sending out letters of invitation to the research/NNRF foundation, to health ministers, to get their attention on our condition and whoever else that we think should be informed of it. We have got a website, we have got a foundation that can collect donations, we are about to set up a research... everything is already in place - we just need to work on it a little. It is simple - there is no need to wonder anymore about what has to be done. Please contact me if you want to take an action. If you don't feel comfortable with participating.. think who could you get involved that could help. Like I said, we need advocates, content writers, people willing to do simple tasks online, send out letters, write posts on other forums, look for articles to be uploaded on the website.. but not only that - we need people that are willing to talk about HPPD, do surveys within the community, that are able to explain to the public how it is to have HPPD through all means - writing, art etc.. We need people that want to do SOMETHING or ANYTHING. So please contact me - if you got 2 hands, little bit of time and wanna to help !

it got my hppd worse. if you looking for a buzz while having hppd, you only gonna make it worse.. and you will regret. tramadol is an opioid. you can become addicted same way as you do get addicted of heroin

I would like to ask you all about something. It could help in treating HPPD somehow. Please answer the poll and elaborate your answer in the post. I list few example substances that give me some side effects (usualy cognition worsening together with feeling of stinging in my head, nervousness, decrease of the visual reaction time - everything shows up with a slight delay, increase in some visuals). Fish oil Vitamin C Piracetam (Nootropil) Lion's mane, Reishi, Shiitake. Vinpocetine Gingko biloba Cocoa Coffee CoQ10 L-arginine 1.5g and L-citrulline 0.14g Phosphatidylserine - i think it does at higher doses only (300mg), to be confirmed. In my own experience if something gives me side effects or it doesn't at first but if they show up at some stage - they will only continue to worsen with each next dose kind of thing. Some substances even helped me at first (lions mane), side effects showed up after few days and now each time I try them again, even in a small dose, I experience the same side effects. I got curious in the subject, because many of the substances I am reading about meant to be very helpful in brain tissue recovery. I have this book where the guy talks about Vitamin C - a powerful antioxidant, it can be taken at doses up to 150 grams daily and can help with things like brain virus infections, severe flu (including swine flu), it can help with HIV, candida, cancer etc.. My friend was sick recently and took 30 grams of Vit C - no side effects and he got healed immediately.. However in my experience taking 0.5 gram of Vitamin C makes me really nervous and worsens cognition slighlty. I took around 7-10 grams for 3 days and im I can't think straight.. I have the same thing with fish oil - I continued to take it for days, but I only felt worse.. But then - some substances can make you feel worse before the healing takes place (eg. when replenishing neurotransmitters etc)... I just never experienced any kind of healing yet.... Thanks to all for your input!

could you give us an update?

wiki: "Noscapine's antitussive effects appear to be primarily mediated by its σ–receptor agonist activity. " Sigma receptor: σ–receptors were once thought to be a type of opioid receptor, because the d- stereoisomers of the benzomorphan class of opioid drugs reduced coughing, as do some other opioid derivatives such as dextromethorphan[clarification needed]. However, such drugs had no effects at μ (Mu), κ (kappa), or δ (Delta) receptors. However, pharmacological testing indicated that the σ-receptors were activated by drugs completely unrelated to the opioids, and their function was unrelated to the function of the opioid receptors. For example, phencyclidine (PCP), and the antipsychotic haloperidol may interact with σ-receptors. Neither phencyclidine nor haloperidol have any appreciable chemical similarity to the opioids. When the σ1 receptor was isolated and cloned, it was found to have no structural similarity to the opioid receptors. At this point, they were designated as a separate class of receptors. FunctionThe function of these receptors is poorly understood[4] though an endogenous ligand, dimethyltryptamine, was found to interact with σ1.[5][6] Activation of σ–receptors by an agonist ligand may induce hallucinogenic effects and also may be responsible for the paradoxical convulsions sometimes seen in opiate overdose. Drugs known to be σ–agonists include cocaine, morphine/diacetylmorphine, opipramol, PCP, fluvoxamine, methamphetamine, dextromethorphan, and the herbal antidepressant berberine. However the exact role of σ–receptors is difficult to establish as many σ–agonists also bind to other targets such as the κ-opioid receptor and the NMDA glutamate receptor. In animal experiments, σ–antagonists such as rimcazole were able to block convulsions from cocaine overdose. σ–antagonists are also under investigation for use as antipsychotic medications. Physiologic effectsPhysiologic effects when the σ–receptor is activated include hypertonia, tachycardia, tachypnea, antitussive effects, and mydriasis. Some σ–receptor agonists—such as cocaine, a weak σ–agonist—exert convulsant effects in animals. Behavioral reactions to σ–agonists are rather heterogeneous: some individuals find σ–receptor agonists euphoric with significant anti-depressive effects. Other individuals, however, experience dysphoria and often report feelings of malaise or anxiety.[citation needed] Recently selective σ–receptor agonists were shown to produce antidepressant-like effects in mice.[7] " It's interesting to note that cocaine, dmt, ketamine, lamotrigine, opioids and pregnenolone are the agonists and mementine, sertraline are antagonists of sigma receptor. It seems that sigma receptor COULD be involved in hppd/dp .. Brandon king do you suffer from HPPD or DP/DR?

they might help you, but there are people experiencing worsening with different drugs, calcium channel blockers too, even though they are considered "safe".. you can also try other natural calcium channel blockers, I made a post about it here http://hppdonline.com/index.php?/topic/4721-my-scintigraphy-and-qeeg-scans-and-some-cures/

Very interesting, thanks for reporting this. Maybe its due to dying out of the bacteria? When I did fasting few times, there comes a moment of mental clarity, i guess its due to the digestive system clearing out and maybe the improvement of bacterial flora. How do you feel so far? I will be collecting all info I come across about this supplement in this note: http://www.evernote.com/l/AbQAEW4m1-hOdqA5nqle9fAk84vUplJqxPU/ Info:It is used as dietary supplement and appears to be safe. source: http://examine.com/supplements/serrapeptase/ Serrapeptase is a proteolytic (protein destroying) enzyme from bacteria native to the digestive system of silkworms. It is the enzyme responsible for dissolving a silkworm’s cocoon. Traditionally, serrapeptase has been used for its anti-inflammatory properties. Today, it is marketed as a joint health supplement. Serrapeptase has been found to have the ability to liquefy mucus and reduce bacterial biofilms (reducing bacteria’s ability to stick to surfaces and each other). This means serrapeptase may be able to reduce phlegm buildup, nasal discharge, lung symptoms of cystic fibrosis and help other compounds fight bacteria. Additional research is needed to confirm these effects. source: http://www.webmd.com/vitamins-supplements/ingredientmono-1115-serrapeptase.aspx?activeingredientid=1115&activeingredientname=serrapeptase Used for migraines

For those who are lazy to go through, some stuff that I find interesting from the note about olive leaf extract, celery and other treatments of hypoperfusion. MUST READ: Article about hypoperfusion: As We See It Outwitting Our Aging Brain By William Faloon http://www.lef.org/Magazine/2014/1/Outwitting-Our-Aging-Brain/Page-01?p=1 ..These and other studies show that circulatory interruptions caused by even relatively mild cardiac disturbances deprive the brain of blood flow and result in cognitive impairments. So taking supplements like coenzyme Q10,46 lipoic acid,47 carnitine48,49 and PQQ50-53 not only help boost cardiac output to the brain, but also protect the brain and enhance mitochondrial energy production within brain cells (neurons)... Olive leaves extract: Article: Natural Extracts Lower Blood Pressure http://www.lef.org/Magazine/2014/10/Two-Natural-Plant-Extracts-Lower-Blood-Pressure/Page-01?p=1 ..Olive leaf extract has been shown to function as an ACE inhibitor and celery seed extract has potent calcium channel blocking properties.6,7 Clinical studies have demonstrated that both extracts are able to safely lower blood pressure.8,9... Anecdote: http://www.greenmedinfo.com/blog/natural-remedies-headaches Celery = Celery contains phthalide which helps you to relax and be less anxious, which helps with pain. It is also rich in potassium which many headache sufferers are deficient in. Celery seeds can be used in smoothies/juices or soups. Taking 2 oz of celery juice and then laying down for 30 minutes has proven to be a very effective remedy for headaches. Article: Celery and Celery Seed Extract Are Powerful, Proven Healers http://doctormurray.com/celery-and-celery-seed-extract-are-powerful-proven-healers/ Treatments for Brain hypoperfusion, Lesions, Excess NMDA activity and other Neurological abnormalities Source: http://www.me-ireland.com/treat/11.htm lots of info on the site regarding the title and specifically to do with Hypoperfusion below: Hypoperfusion and Brain circulationGinkgo Biloba has been found to improve blood circulation in the brain and some cognitive functions. Vinpocetine can improve blood circulation in the brain and some cognitive functions. Micro circulation abnormalities Some ME patients have benefitted from Vitamin B12 injections, with does ranging from 4,000 to 6000 mcg per day. This along with omega 3 fatty acids and magnesium resolves the abnormal blood cell structure commonly found in ME patients according to studies by Mukherjee and Simpson Simpson LO. Myalgic encephalomyelitis. Letter. J R Soc Med 1991;84:633. Protection of blood vessels from oxidative damageAnthocyanins and foods containing anthocyanins such as blueberries, cherries, blackberries, elderberries, bilberries, chokeberries (highest anthocyanin content), black raspberries. The herb buckwheat also protects blood vessels from oxidative damage. Olive leaf extract / Olive leaf soups have strong antioxidant effects. They are protective of the blood vessels and the blood. Taking antioxidant herbs, vitamins, minerals and supplements in one's diet can protect the blood vessels from oxidative damage over time. Arginine is required for nitric oxide production Scientific Research Arginine benefits Ginkgo Biloba protects blood vessels and produces nitric oxideScientific Research Ginko benefits Omega-3 fatty acids The special Treatment Protocols of Dr. Martin Pall

I will be uploading any new significant findings that I add to the note about hypoperfusion here: Few natural supplements to deal with hypoperfusion and calcium overload in HPPD. One list presents natural calcium channel blockers (interesting to see if they could help in HPPD as some drugs that are calcium antagonists do?). Also there are examples of duretics, central α-agonists, direct vasodilators, angiotensin converting-enzyme inhibitor, angiotensin receptor blockers which I guess all or most could help to treat hypoperfusion. Picture: https://www.dropbox.com/s/avivnl39dyrp9il/natural%20calcium%20channel%20blockers.png?dl=0 Calcium channel blockers (it's interesting cause I didn't know some of them function as such): ALA - linoleic acid Vitamin C, Vitamin B6, Magnesium, N-Acetylcysteine, Vitamin E, Hawthorn berry - its ineresting to note that on webmed http://www.webmd.com/vitamins-supplements/ingredientmono-527-hawthorn.aspx?activeingredientid=527&activeingredientname=hawthorn it says that hawthorn berry is also used to reduce anxiety, Celery (green part or celery seed extract) - "Celery seed extract, on the other hand, has been shown in animal studies to not only help prevent stroke, but also to improve blood flow and protect the brain and enhance brain energy production in a manner similar to Ginkgo biloba extract." - source: http://doctormurray.com/celery-and-celery-seed-extract-are-powerful-proven-healers/, Omega 3 (EPA and DHA) Calcium, Garlic. So start consuming !

From what I have heard Scintigraphy only measures the underflow of blood, hypoperfusion. If you want to check overactivity as well, then you should probably look into PET or SPECT.

I went to him cause he specilizies in tDCS treatment. He prescribed me scintigraphy to see which areas have to be targeted. I did 11 sessions, them I run out of money. I have my tDCS device at home now and will be trying it again. The doctor said it could stimulate the brain in those areas and improve the hypoperfusion. I have to be very careful cause im sensitive to many substances myself. You have to keep in mind they are not drugs that can do some changes or worsen your HPPD permamently, I BELIEVE. Most of them are natural.. You can introduce them one by one, every few days or something like that. Whenever I feel something wrong I stop all of them and reintroduce different supplements on different days - this way I can feel which one makes me feel bad, then I either try smaller dose or stop it completely, its up to my intuition. I don't feel any bad long-term effects from any of them so far.....

Hello fellows. In the name of science and our shared interest. I want to publicize my medical scans with you and share some thoughts on them. This is scintigraphy of my brain showing the areas of hypoperfusion. From what the doctors said, those areas are responsible for cognition, planning, thinking, language processing, internal dialog.. It would perfectly correspond with HPPD symptoms, hence I advice you to get do a brain scan (SPECT or PET could be better cause scintigraphy only shows hypoperfusion, not hyperperfusion). Because the hypoperfusion matches the symptoms I have a slight feeling that other people with HPPD and cognition problems caused by it, could also have points of hypoperfusion in their brain. https://www.dropbox.com/sh/t1b1h3c3pby3rv2/AAB3J6euoAeP_jjNbGYwN75Fa?dl=0 This is my qEEG that I did 3.5 years ago, when my HPPD was mild, but already affecting my life. An anecdote: the doctor doing different qEEG asked me to close my eyes and look up during the session. Every time I did so, my eye muscles were twitching and he was getting what he called "artifacts" on the reading. Said not to worry about it. I personally think this twitchin could be this "pre seisure state" that some talk about that exists in lyme disease, migraines and I beleive HPPD. Its just my guess. But don't ask me about the qEEG results, I dont understand them. I just don't like the red spot , i think it shows high activity of high beta waves.. and ofcourse I don't like the fact that I had some eye twitching that is visible on the EEG, which Im 100% sure is caused by HPPD. https://www.dropbox.com/sh/izauvjy5ev1fahw/AADU82xDy8Ib53YzwEPPlXpNa?dl=0 Here I present you all the things I reserached to target the hypoperfusion (anything that improves blood circulation, protects from ischemia damage or reperfusion damage: antoxidants and others). Its little chaotic right now, I gonna organise it one day http://www.evernote.com/l/AbRcCksdg0BC46TZDRI0_7mxXXsN2lStOwE/ And here is a list of my current stack, list of things that give me side efects, list of things that look interesting from the research I posted above. http://www.evernote.com/l/AbTZkha568lKGIvvXOujRX-WfJG_6iKK5Q0/ Im taking most of those supplements not more than 1-2 months. Some longer eg, NAC and grape seed extract. Before 2 months ago I was not able to take 2-3 sips of a coffee without my brain stinging and cognition worsening. A miracle happened. Right now I have been drinking coffee for last 10 days. Id say actually abusing it for the last few days and it could be the reason for my headache.. but it could be something else. I can wake up after 8 hours instead of 9-9.5 and communicate with people. Before when I slept less then 9-9.5 hours I was not able to talk to people so well, so something is working here I think. I don't know exactly what I am very sensitive - things like klonopin cause my tinnitus to worsen permanenlty etc. So the things I tried and mentioned there are pretty safe. I have spent hours, weeks and months on researching those things and I am planning to do some more.. It would be great if you join me to do research or just for a chat, to exchange ideas. I believe together we could achieve more. What Im showing you right now I find most important and relates to my current stack, but I have more notes and ideas where we should look for cures/clues etc. And I upload the google translation of the scintigraphy interpretation: The analysis of CT images (cross sections, sagittal and coronal) and three-dimensional reconstruction obtained after the administration of EV radiotracer (99mTc - ECD) evidence of hypoperfusion areas in the projection of the upper front-paretial wolf (bilateral) and fronto temporal (left , discrete) and observed in cross-sectional tomographic cuts 11-13, coronal and sagittal 16-18 7-10 as well as in three-dimensional reconstructions. Thanks.

Did weed cause your hppd in any way? If yes then don't do it. Have a drink - drink shuldnt do any permanent changes to your hppd (it does only temporary worsening for me, but really nasty one ;p).

Invest all your money that you have into these or other protective supplements... your brain is worth more.

I said this to mycall already. Try to replace lamictal with things like magnesium, celery green sticks and celery seed extract (they contain some substance that is a natural calcium channel blocker). I think there are more calcium blockers in nature, its good to research them and try, since getting off lamictal might give you some rebound effect (before it was blocking calcium, now you might get too much of it). Also things like antioxidants - that may prevent cell death (which could be caused by calcium overflow? im not sure now, research it) This is my stack - its fuckin high of antioxidants and neuroprotective stuff. http://www.evernote.com/l/AbTZkha568lKGIvvXOujRX-WfJG_6iKK5Q0/ It helps me. After 1-2 months of using those I am able to drink coffee again, which is a miracle...

Interesting. Let us know how the treatment goes. Also if you would like to share your thought, evidences with me, id be happy to write them down, so later the people interested could compare the experiences, facts, reactions to drugs etc.

CoQ10 and Fish oil doesnt go well with my hppd. Worsens cognition and affects visuals. Here you can find a list of all RECENT things, that I read could be helpful, but which gave me side effects or just trigger some symptoms of HPPD. http://www.evernote.com/l/AbTZkha568lKGIvvXOujRX-WfJG_6iKK5Q0/ But I hope thats not the case with you (I feel the bad effects 30 min after taking those things, so dont panic if you take them and feel ok after - it means they probably work ok for you).

there is probably a really low chance for those side effects and even if they happen all you do is stop taking the drug every single drug can give you side effects, but people still take them, are fine and even get cured sometimes