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One guy on facebook group stated his anxiety/depersonalization improved after taking naltrexone, since day 1. Then there is those studies about Nalexon which is also opioid receptor antagonist (however in injectable form). http://www.ncbi.nlm.nih.gov/pubmed/11448093?hc_location=ufi Wikipedia: "Depersonalization disorderNaltrexone is sometimes used in the treatment of depersonalization disorder. While studies have suggested it is less effective than naloxone for treating depersonalization, naloxone is impractical for daily use because it must be injected intravenously. A small (12 patients), open label, non-controlled 2005 naltrexone study demonstrated an improvement in 4 patients of depersonalization symptoms, as measured by 3 validated dissociation scales.[14]" I only worry cause im sensitive to all drugs, I have a feeling they affect me for long time if not longterm. (same way as every time i take recreational drugs, my hppd gets worse for like weeks/months/sometimes for good, depending on a drug). Last time I tried Naltrexon for 2 days, i got serious sudden twitches of hands/legs at night - brain zaps? So i stopped it, but mabe I should try again with lower dose. Havent felt any effect on my HPPD. (I don't feel strictly depersonalized, more like my brain is a jelly when it comes to thinking and remembering stuff, but i guess that contributes a bit to some degree of depersonalization). My main question is: how long does it take for this drug to work - if I don't see effects straight away like the mentioned guy, is there a point to keep taking the drug? If yes, then does anybody know why some drugs take long time to work? thanks

Whats up with everybody, did the thread die? Some good job done here with the researches. We should keep it up.. Apart from research did anybody try any strange substances of those mentioned so far? (im talkin about those rare ones, not the usual stuff like vitamins, magnesium or keppra etc.) Same thing with me and Rhodiola. I found a good home made experiment book on fasting. This guy tried different protocols (1 day of 24h fast a week, 2 days of 24h fasting a week and "8h eating frame/16h fast everyday, which is what im doing now). He did each protocol for a month or more. In the report he concluded he can do one 24h fast a week with a good result however when he does 2 of them a week, he becomes obsessed with food the rest of the time - that happened to me too a bit when was doing it. Maybe it needs more time getting used to it.. Maybe the benefits are worth the obsession . ;p I have done 2 days a week for a month or two. It feels good, but I didn't notice any longterm effects. Want to try it again anyway, cause its meant to be healthy as fuck. What about you guys? I thought I would share this tip with those willing to do intermittent fasting. Link: https://www.dropbox.com/s/fu3uamfsh2lxwkr/202534335-IntermittentFasting.pdf?dl=0 I also did 2 weeks of water fasting - no food, juices, nothing. It was dragging for ages, i was out of energy, however I had some good few moments of mental clarity especially at second week and for few days after I finished the fast. Nothing long term unfortunately. I wanna repeat it in future though. Hope this thread will come back to live!

Hey guys. I would like to help the community and myself to find some ways to treat HPPD. This forum is great for talking about our problem, but I think its lacking some organizational features that are very important to connect all the dots. Also there is lot of digging to be done to find all the useful informations scattered around the forum topics. I think apart frome the forum we need something extra, something organized. My idea is to build a website with specific functionality. Sort of a HPPD Encyclopedia. Rough sketch of my idea - the website would have: Database of users. Each user would have his profile, where he could include information like: - His story of HPPD (possible causes, duration, przebieg???? etc.) - What has helped ( name of the drug/supplement/treatment/excercise, how he reacted to it/comment side effects) (X) - What has harmed him ( name, reaction/comment, side effects) (Y) - What hasn't affected him ( name, reaction/comment/ side effects) (Z) - What he plans to try - Other comments, ideas, experiences. Database of drugs/supplements/treatments/excercises - this would be a list of all the drugs etc. next to every drug there would be number of positive, neutral and negative votes (how many people it did help, did nothing, harm them). Users could click on any drug/supplement etc. and see information like: - Name - Description - Interactions with other drugs - Side effects (especially the side effects reported by people with HPPD) - List of all users that it has helped (name of user, reaction/comment) (X) - List of all users that it has harmed (name of user, reaction/comment) (Y) - List of all users that didn't notice change (name of user, reaction/comment) (Z) Now look at the X, Y and Z. Whatever user would input into his profile, that information would be listed also under each drug/supplement etc. This way if few hundred people write out their experiences with different things, we will get a good statistical data on each of them, and will be able to draw some conclusions. If we want extra functionality, one page could be like a facebook wall - showing the latest activities, but lets focus on the basics ones first. Graphics design - we want to make it as simplistic and cheap as possible. I think this is a tool, that would give us good view on the matter and would ensure that no information gets lost. For example, I found one post on some polish website saying Vinpocetine helped somebody with VS. That was only 1 post I found thorough the internet on vinpocitine and VS. I could report that information on the website and then other people could try it out if they wanted to. Having this kind of website, would save us jumping from post to post on forum or facebook groups and whatnot - all the information we want would be in ONE place. Maybe some pattern will emerge like - people who got HPPD from antibiotics get relief from the drug "x", people who got HPPD from acid are most likely to get help from the supplement "y". On that website we could encourage people to do DNA tests to see patterns in them too and so on.. On the website we could include all the information we have on HPPD, its description, causes, together with any scientific reports - this would be great then to present to doctors, professors, scientists etc. I think its gonna be a great portal for spreading awareness about the condition and its severity. One will be able to actually see how many people are affected by it. I am not a website coder - I am more of a visioner. I hire people to build websites for me. I would love to be able to do it for the community but at the moment however, i have no cash - I am after being very unlucky (or stupid) with my investments. If there were people interested in creating such a website we could share the ideas of what functionalities we want on the website to be. There are some ways to go about it: - If there is any webdesigner in this community, that would be willing to do the website for us - that would be great. - We could make a fundraise and then decide whos gonna do the website. I am willing to spend my time on supervising the construction and improvement of the website. I don't know yet how much could it cost. Yesterday I talked with a friend of mine, he said this kind of website could take him anything from 30 hours to do. He made a note, that if we get somebody from internet to do it its probably gonna take more. I don't know how much he charges yet and if he is gonna have time to do it ( he will let me know soon) - however im living with this guy right now, he is a cousin of my best friend, which means - he would not rip me off for one cent - which I believe happens in this industry a lot. If we get somebody to do it remotely, there is no way of veryfing how much time he actually spent on the website etc. This friend of mine is programming and building websites all his life, working in a corporation etc. basically he knows what he is doing. He could commit 4 hours every weekend to build this website, which would mean it could be finished in let say 2 months. This is not by any means a way to try to make money - anybody interested will be able to view commits (new code added) and verify the work. My rough estimate is that the website could cost around 750 euro, but lets wait and see what the guy will say. However from my experience its good to assume its gonna be little bit more expensive. On the website we could post some adds and the money from it could go to the website development or any future HPPD researches - or we could have no advertisement, thats up to the community. I believe however that we do need some cash. Please let me know of your thoughts - all comments are valuable. my contact hppd90@wp.pl , facebook: Pablo Esscobar from Rio De Janeiro Pablo

Hi everybody. I hope im not crossing any rules of the forum by this post. I think this is a really important matter, so I have let myself risk it and post about it in other sections of the forum too to reach as many people as possible. Plus people from outside the forum, couldnt access the beyondhppd online section. Please check out this post. http://hppdonline.com/index.php?/topic/4459-i-have-an-idea-for-a-website-that-could-help-us-in-finding-solutions/ Thanks

hey guys i would like to do the DNA test in the near future. I am from Poland (Europe) - could I do just any DNA test they offer in Europe or would it be better for any reason to do the same test as ye did 23andMe? there is no point to do any more extensive test at all, is there (in relation to hppd) ? I think the same as you, we should get other people to do those tests.. maybe we should make posts on different forums aboud it + announce it on FB groups. There is few k of people with HPPD/visual snow etc. BigPapaChakra did you try that aminoacid protocol with any of those practitioners??

I take NAC as recommended by some and I try to use 1-2 grams of curcumin and some black pepper in one dish a day (as black pepper potentiates curcumin's antioxidant effect x1000 apparently). It could be scrumbled egg or mashed avocado with garlic, salt and lemon. I hope this is enough of antioxidants daily I wonder does anybody here has any good antioxidant daily stock?

ordered it today. don't know how long it will take for the shipment but I will let everybody know once I try it.. although everything seems to be affecting me in a negative way from herbs to meds (i guess im hypersensitive to different substances), so im ultimately not the best person to test things, cause everything would get a negative opinion I also encourage other ppl to order it and try different stuff, like the above -> the more people do that, the better statistical data we get -> the more info we get on herbs/meds and HPPD and possible causes/solutions. Keep in mind most inventions came up by accident ;p I think we should be trying different natural things especially - since they don't do much harm. Does anybody else know other herbs that might be of help in HPPD? I can recommend Lion's Mane - makes your brain more alive, thinking more creative etc, made me feel like I am "learning" again, just as I was playing pool for example - I had to stop it unfortunately, as felt stinging feeling inside my head (but as mentioned, I get that with tons of other herbs/meds).

Hey people Did anybody try those mane mushrooms so?? Im looking for people to help me investigate hppd fully.. I suffer from it too to the point where my thinking (and socializing) is much altered - i dont mind the visuals so much.. I would like to solve this problem once for all, because I don't feel like continuing to live if my hppd persists. I am planning a trip to some warm country, to do 28 days of fasting ( I read it might help/did help somebody and it kind of makes sense, fasting is of many benefits for the body and brain ). I will be writing a blog and posting the results all over internet. Im also interested in ketogenic diet, which is proven to be neuroprotective and so helping in some neurological problems. In the mean time if anybody would like to join me on study/help me look for articles on hppd related stuff eg. on mane mushrooms it would be much appreciated. Its hard to run the research on my own + different people means different approach to the same problem. My mail hppd90@wp.pl Keep up the faith.

yes iboga fucked me up same way. but not only, other drugs too psychodelics/xanaxes/weed too.. it was all kind of bearable, but recently i killed it with taking half dose of mushrooms in a form of a chocolate, from amsterdam, and everything got worst so much for me since then. its like it went over the treshold.. nevermind the noise in visual, but thinking, memory etc.. it came to a point that I can't drink a cup coffee, cause the effects get worst. im going to thailand next few weeks to do 28days fasting, apparently it helps to reset stuff in the brain (neuronal pathways, neurotransmitters) and i read that it can help specifically on hppd. if anyone wants to share experiences please e-mail me hppd90@wp.pl . if anybody wants to study the matter with me also give me a shout. i wanna get deeply into details of brain chemistry to know exactly what can speed up the recovering process.. i will be posting the results allover internet. it sucks to be in this kind of state of life, so it would be good if we all share any kind of solutions we come up with.