yeah its interesting. one proposed theory of the origin of hppd relates to seizure activity within the occipital lobe.

also one main medication for HPPD "Klonapin" is used to treat seizure activity..

interesting to see the correlations. 

I myself am back on klonapin now

Hi Bro

Good to hear from you! Sure i know the klonapin is good for some relief, I use it sparingly every now and then, though I know its helll to come off of. Good you are off it now.

As far as i am aware YES. I have been speaking with leading Professors and last he said to me it would be talking place Jan Feb 2022 Sydney St Vincent's.

If you would like.. shoot me a PM with your contact details and i can pass it onto the organizing medical team. 

Cheers . Happy new Year! 

It is the plan that early 2022 HPPD research WILL begin January / February in Sydney Australia.

We have waited long enough. This has to happen!

I will be there with bells on !!

Looking forward to spending some time in my old stomping ground lol 

Honestly

I have empathy for your situation. 

Me also, was dosed unknowingly after being up all night at a rave... 

Next day was still there.

I have extremely hardcore vivid hppd...

This happen 30 years ago, so 30 years in.. 

Sydney. Likely St Vincent's. Will begin in July 

Hi Edd

Good to hear from you, 

yes the study has recently been approved and will be taking place next month , July. I will be heading to Sydney from the Gold Coast to participate. in it.

Please feel free to inbox me your number or a way to contact you..... so you can participate also.

Look forward to being in contact soon!

hello . cool thanks for sharing. to be honest shamans are located in various parts of the world. tho you want to find a real one. 

I have recently undergone a series of shamanic initiations, I can give you  more info details via DM

my other shamanic teacher passed over a while ago, though i often communicate with him in spirit as he works through me in non ordinary states.

I dont touch any psychedelics although journey via a tequnice called "shamanic Breath work" that releases DMT naturally in the brain.  Part of the intent is to journey to find solutions and healing naturally, seeing as there is no other treatment for hppd. 

In the non ordinary state you have experiences and encounters that are no different from plant medicines

I have been involved with shamanic work for approximately 30 years have have been around the block more than a few times in relation to shamanic work.

Happy to keep sharing

Best Regards

this video should answer your question

cheers 

(132) Hallucinogen persistent perception disorder - YouTube

Hello HPPD Community.

I hope you are all well.

If you are Australian with HPPD we would love to hear from you to be involved in an in depth study to unravel HPPD taking place in Sydney Australia shortly.

Please contact me via direct message as soon as possible so i can ask a few simple questions. 

You being involved in the HPPD study will help massively in discovering the mechanics behind HPPD and thus finding a cure.

Please get in contact with me as soon as possible.,

Thankyou!!

Best Regards

Reaching out to all Australian based HPPDers.

We are in the process of compiling a list of Australian-based patient's so we can get started with with hppd research as soon as possible. 

Please kindly fill in this form:

https://forms.gle/f5fkbj7ir1ybrroP9

All information is strictly 100% confidential. The study will start with Australian participants and then planning to include the international community as soon as possible. 

Thankyou for your participation!

DESTROY THEM IN COMMENTS SECTION ON U-TUBE 

Im happy to film it.. likely would be much better. will find the time to do so. cheers

I just did mine via the platform with audio only

Im not sure if it was loud enough

Happy to do again if require better quality. possibly video would be better

cheers

Main trigger for me was LSD.. though at the time was doing a lot of Clubbing / Raves.. so likely MDMA was in the mix too. 

I have been naughty and done some other drugs post HPPD. Stupid choices when inhibitions were out the window.. though most defiantly will not touch any other substances now, and have maintained sobriety for many years.

ok cool, very helpful.. thanks 

great many thanks . will do ! 

Over the past year I came dependant on Clonazepam

I am in the process of tapering off lowering 0.25 / week. 

I will be through in likely 3 or so weeks time.

Once I am clean / completely off it i may use it 2 days on 3 days off or just occasionally whenever really needed.

Hi Ed..

It sounds good. I would be happy to share.

I will do my best to contact you via email. Also feel free to drop me a massage here.

Cheers.

possibly you guys are experiencing hypnagogic dream states. generally happens upon entering sleep. just saying its a possibility. 

also if you have hppd closed eye visuals at night can be very distressing.

here is a friend of mine explaining hypnogogic dreams

hello..

thanks for sharing. really interesting post.

I can really relate to some of the things you are sharing about / smoking weed triggering major events etc and other things you are describing.

I noticed you mentioned you are in Australia. Me too lol

If you would like, inbox me. I will give you my number.. we maybe able to break this down over the phone.

Cheers all the best !

I found this article explaining about eye floaters etc 

https://visioneyeinstitute.com.au/eyematters/8-frequently-asked-questions-eye-floaters/

Hey there. will do my best to answer your questions from my opinion / perspective / experience only. I'm not claiming this to be the Supreme truth or ultimate Authority loI... am a sufferer of over 28 years. 

I don't have floaters all the time, generally occasionally outside, in bright light. tho I don't consider floaters as a symptom of hppd. I feel floaters to be more eye related.

I found in early days I had very vivid dreams / nightmares, I would scream in my sleep or behave as though I was being attacked / nightmares. This may have to do with repressed material / trauma (in my case) coming from the subconscious mind.

In relation to sleep activity REM etc , I'm not sure how to gauge / measure that.

In  my case hppd is not always worse after wakening up, it is very present upon wakening, although generally hppd is consistent through the day and night. I would have to say my visuals are generally more switched on in the evenings. may have to do with lighting definition etc.

In my onset of hppd it just switched itself on, was suddenly noticeable. I feel it can in many cases become more switched on / exacerbated over time.

I am being honest with you, from my perspective that during my onset, HPPD was / is much more than just floaters, generally consists in my case of an array of visuals  completely distorting perception i.e. eating into reality that are constantly in motion. 

If I had only floaters I would likely not worry so much, it does not seem consistent with real hallucinatory symptomologies. However I am not a medical professional or a neurologist. 

My  suggestions would be to stay clean, eat healthy , exercise, keep away from stimulants of any kind. get enough rest, de-stress and relax. possibly get yourself checked out with a medical person or eye testing etc

Hope this is helpful

Cheers

You are the stupid ones 

Do you even have a formal diagnosis for hppd?? 

The diagnostic criteria clearly states:

"Re-experiencing after cessation of a hallucinogen"

https://behavenet.com/diagnostic-criteria-29289-hallucinogen-persisting-perception-disorder-flashbacks

Hallucinogen persisting perception disorder (HPPD) is a chronic (and sometimes permanent) disorder in which a person has flashbacks of visual hallucinations or distortions experienced during a previous hallucinogenic drug experience, usually lacking the same feelings of mental intoxication experienced before.

my snow is cosmic as fuck, cantonal shimmering moving all psychedelic, lights , spheres worm wholes and geometric hallucinations, shimmering explosion and implosions. like whirl winds eating into everything. 

Things that help me, working out, eating healthy,. personal development, having goals. I have to sleep with a light on. I have found that relaxation is helpful I use self hypnosis to reprogram the subconscious mind and helps to balance left and right hemispheres of the brain. This moves me away from a fight or flight response and more into a relaxation response, where I can be "more of the witness" and not let it consume me as much. mndfulness, self awareness.

www.learningstrategies.com/  paraliminals are quite good, also Holosync meditation.

Sometimes when its too much I generally look at my phone or computer to try and distract myself as an escape tho that is not so healthy.

I do my best to focus on where I am going and what I want my life to look like, focus on what I want and do my best to take the steps to achieve. 

I just have to do my best despite what I'm dealing with

I also take clonazepam, I am dependant on it. Im looking at doing a slow reduction and just to maybe do a 3 days on 3 days off or something.

I just had to learn and discover whatever tools and resources I could to help me cope. sometimes there may not be a cure but learning to live with and manage the condition.