Spartan

hey Jaz, yes it makes sense. I too have insane levels of snow and everything you are describing. 

If meds are not helping it may be a matter of doing your best to become more resilient and working on yourself so you can manage it / handle it more effectively.

To my knowledge we have not found anything to reverse it yet, although study's are taking place.

Hang in there!!

Hi Man, thanks for sharing. 

Possibly try clonazepam if Lamotrigine is not helping so much. 

Visuals sound pretty intense. Maybe in the mornings you could try and change your state by doing your best to get  into some activity. 

In relation to thoughts of fasting / death. Please don't go there. You can reach out to me or any other moderators on this web site and we will be there for support. There is also a support group on face book where you can reach out to others.

What country are you located? There are likely other good resources in your country that you can utilize.

Cheers. 

fuck this mother fucking shit. game over

I'm fucking over it 

this is fucking bullshit

I cant live like this anymore

thanks just expressing and having a rant 

I thought it was kind of interesting to note:

I recently had severe pain (neck spasms) and doctor prescribed me Tramadol for the pain. This medicine really made me hallucinate hardcore, like other dimensional type stuff ( especially with eyes closed) which I found similar to DMT like visuals.

I stopped taking that immediately, Now have started codeine for the pain..

It still amplifies visuals although not really as intense as Tramadol. There is a lot more "snow" with this medicine. 

So just thought is was kind of interesting to note how different medications can amplify different types so visuals and symptomologies etc

This would have to be the most bullshit and insensitive post I have read in a long time.

Its very disrespectful to real suffers and sufferers who are working so hard to get HPPD the attention it desperately  needs from medical experts. 

Hello All,

I hope everyone is well..

Just going to post and share something spontaneous as have not posted in a while.

I have had really strong HPPD for 28 years now. It has been been quite a journey and battle. 

At the end of the day, I'm feeling frustrated that more action is not being taken sooner to find an actual cause, treatment or cure. I know that some study's are being conducted although with Covid 19 it has slowed things down temporarily.

I feel like people in general would have no fucking clue what having real HPPD is actually like, and likely  could not handle it. I have learned to accept it mostly, live and get along despite all symptomologies although it really takes its toll especially over the long term.

I wish we could do more, like more sufferers banding together to fight for whatever needs to happen to accelerate research. Like I feel enough is enough. 

Cheers 

Hello,

Have been using for approx. 6 months now. usually x 1  0.5 tab in evening

I have found with the isolation thru pandemic I have been bored as and amplifying my HPPD to insane levels. Out of sheer boredom and frustration occasionally I will inject a dose of clonazapam (not heathy I know) 

Feel like im gradually increasing dosage and may need to get help.

Thanks 

..

.

i have super bad hppd have had for approx 26 years now

its a fucking visual nightmare , also have dp..

not sure how to express or what to say..

just saying hello

cheers

yes, very exciting news! 

The protocol is fully developed and is seriously amazing/mind-blowing.

I was asked to participate in some tests By Professor Mcconnell as the protocol was being put together which included a sleep-deprived QEEg (which was hell)

As far as I am aware, the protocol has been put together as a collaboration of all the top authorities on HPPD from around the world.

For something as big as this, its the nature of it that big things do take time. I speak with professor McConnell frequently and he has assured me that everything is on track and moving forward.

In any case, I wish everyone could view this protocol. Definitely there are legit reasons why things can take some time, although it WILL happen. Yes, we need to respect the wishes /protocols of the researchers and not break rapport in any way. 

@Visual Dudes post - I really love this and feel it is definitely key. A researcher was saying just the other day that the feels HPPD is a form of epilepsy / related to seisure activity etc

It would be very good to share visuals post with him.

cool it sounds good. 

some other couple did a documentary, I had seen it although it was never released.

I would be interested to participate too

one day soon that is...

real HPPD.. deal with it by crying.. or having my head in my mobile phone as a "distraction"......    

one day I will kick HPPD in the Ass 

1 minute ago, Spartan said:

full blown visual open and closed eye hallucinations.. being stuck in hellucination hell upon retiring with lights out... being completely fucked out and depersonalized, being isolated, feeling as not feeling in with "Normal society"   Having these symptoms constantly is fucking hellest torture at times.. for over 29 years... lately I have been contemplating ending my life, I would not do it,.. tho its how I feel at times.. I'm that over it, its that chronic.. its cruel shit... id like to see your average joe blogs try and deal with this even for a day..  lucky I am a very strong human being.. no one can even comprehend what this is like.. (currently on no meds) tho feeling I will likely have to soon.. 

full blown visual open and closed eye hallucinations.. being stuck in hellucination hell upon retiring with lights out... being completely fucked out and depersonalized, being isolated, feeling as not feeling in with "Normal society"   Having these symptoms constantly is fucking hellest torture at times.. for over 29 years... lately I have been contemplating ending my life, I would not do it,.. tho its how I feel at times.. I'm that over it, its that chronic.. its cruel shit... id like to see your average joe blogs try and deal with this even for a day..  lucky I am a very strong human being.. no one can even comprehend what this is like.. (currently on no meds) tho feeling I will likely have to soon.. 

On ‎14‎/‎12‎/‎2017 at 10:01 PM, Spartan said:

Just wanted to drop a line and say helloo to the many HPPD endures, old and new.... 

I have not logged in here for years... tho have many fond memories of the moderators etc   I used to be "oldschoolar, and before that "benza.. and likely before that it was the storm loader web site. oh yes and must-be-a-way-to-heal    etc etc 

I still have Bad HPPD, nothing has changed unfortunately.. Its like my 29th year. I will likely try a new med soon lol... 

Wishing everyone best regards...  and keep on keeping on.. 

 

 

 

 

as well as all this.. have "made something" for all of you HPPD sufferers... (all will be revealed soon)  

also... , I will be publishing a book involving much of "my story" and life journey.

 always make something of myself, champion athlete, coach , author, business owner.. etc etc ...... fucking tough times... tho I always keep on keeping on... and don't argue for my limitations..  

I'm "superman" an ordinary individual would not last a day "in my body"....

Just wanted to drop a line and say helloo to the many HPPD endures, old and new.... 

I have not logged in here for years... tho have many fond memories of the moderators etc   I used to be "oldschoolar, and before that "benza.. and likely before that it was the storm loader web site. oh yes and must-be-a-way-to-heal    etc etc 

I still have Bad HPPD, nothing has changed unfortunately.. Its like my 29th year. I will likely try a new med soon lol... 

Wishing everyone best regards...  and keep on keeping on.. 

im doing my best to rewire my entire brain with Holosync meditation LOL  its been around a year now... meditation for an our a day.. have noticed some remarkable shifts..  Tho its always the choice of every individual for the approach they decide to take and i respect that.

cool...im still keen..

tho ill have to wear a cool costume or wig so im unwrekignizable as im steping up on the intenet with other projects ... 

I was blessed by My Divine Shree MaharaJi