nepuinthesky

same for me if i drink up to 5 beers my symptoms seem to dimish. yesterday i drank 4 beers and one absinthe, a littlw hangover today but absolutly no worsening in symptoms. so i think alc doesnot have a real impact on my symptoms but i dont drink to the booze because i think that could make symptoms worse. maybe it does not but i want to avoid the risk.

i had mild HPPD for 5 or 6 years last year in septemper my symptoms got worse and at this time also my starbursting started maybe in october. i dont think that its related to the eye drops. but i beleave it could be related to dry eyes or something in the eye itself in my case. visual mentioned an "oily film" on the eye i think thats the same in my case and this is related to the starbursts, halos and ghosting. i also get cloudy foggy vision from time to time. i have only problems with this xenon headlights the normal old ones do nothing, no afterimage, no starburst, no halo. really worse are these LED-lights or car headlights like these of audi with a "geometric form".

another funny observation is when iam drinking beer(only up to 5 bottles) which i dont recomend^^ and stay awake the whole night.(going to bed at 7 am and geting awake at 11 am for example). my symptoms improve alot for the next day also the afterimages are not really noticeable on this days. really strange

no no meds. the only medication iam taking are beta blocker eye drops because of a high intraocular pressure, but i use them since last october when i was to my eye doc because of the visual disturbances. but the pressure was never really high but she said better now as problems in the future. ghosting was my last symptom which developed i think in december last year. the starbursts was the first which was dimishing i think 2 month ago i thinkk at the same time my VS got better its only like the whole texture is moving a bit not really snow anymore. the ghosting is there sometimes when i look at a light bulb for example there is a kind of white shadow but then its like a pulsing and my eye seems to refocus and the ghosting has gone. when iam squinting its also there but i think thats normal for everyone. starbursts are only there when i look in these fucking now car headlights but i think they are more likely halos now. reflecting sunlight dont create really starbursts anymore maybe it has to do with the summer sun which stands higher?

since a month or so my ghosting seems to be gone or is only transistent. also my starbursts of reflecting sunlight are only really bright "blobs". these two symptoms seems to be there from time to time but not 24/7. and i really hope that they dont come back. *knock on wood* i dont know maybe they are connected to dry eyes? or my brain is able to filter them again? these are the symptoms i less cared about now they seem to dimish. but lately my afterimages seems to be gettin worse. they only last a second or two but i get afterimages of everything with contrast. but maybe iam only more focussed on them. i never can say for sure if something is gettin better or worse because i have forgotten how it was before lol.

sometimes i get these dots too. wwith eyes open only one and when i first close my eyes and move them there are a few more. i think this are pressure phosphenes from moving your eye. i got it mostly in the beginning but they are there from time to time

this is a really great song which has not left my mind for month... http://www.youtube.com/watch?v=GSNl6zMlkDw

hmm i dont know which tests are necessary for the license in america but in germany you only need to do a simple test where you read letters from a board. but if you have epillepsy you will lose your license untill you are free of sizures for 6 month. but how should a doctor test if you are still having visuals because of HPPD there is normally no scan which shows a result. so you are able to lie and the doctor cant prove. but if you think that you arent able to drive safly its your decission. i dont want to kill childreen in an accident. but there are people who are mostly blind still drivin so i think HPPD is in the most cases not prevending you from driving safe.

yeah there are defenatly diffrences. first the form of trigger. but i think the most symptoms are one and the same. the only one i never heard of somebody with PMA/VS is ghosting. but all other symptoms are congruent. people with PMA also report movement, color confusion and micropsia/macropsia. i dont say that you can call the disorders one and the same thats not technically possible with the existing diagnostic criteria. i have an example if you have a sniff its (mostly) caused by your noses mucosa. of course there are diffrent triggers like bacteria, viruses or allergic reactions. but your body always reacts in the same way in a swelling of your mucosa. the treatment varies(which also could be possible for HPPD and PMA) and there are maybe a few diffrent symptoms. but to be sure about this it would be necessary to make a study with People with HPPD, PMA and a controll group.

visual, i asked you a few month ago if you think people with HPPD are at a higher risk of developing parkinsonism. and i think that fits here again. i dont think so because HPPD is now known over 50 years and i dont think that all of these people developed parkinsonism. also in parkinsonism there comes a point where it shows up on brain scans i dont believe that this is the case for HPPD. i read alot posts of long timers who are saying their HPPD progressed over month up to a year but after this the most got alittle better. this seems to be the case for HPPD not necessarely for PMA. in my opinion that is why with PMA you can still get migraine attacks and i think this is like someone with HPPD still doing drugs. that doesnt mean that PMA cant get into full remision but this seems to be very rare

hmm in my opinion its one and the same. caused by the same underlying cause. also in my opinion they have to affect the same parts of the brain. but technically they are called diffrent because of the diagnostic criteria. as for PMA you need to have had migraines before it persistet and for HPPD you had to have used a hallucinogen before the onset. (think my "have had" grammer is wrong sorry^^). these disorders are called because of their trigger not because of their underlaying cause which nobody knows for sure atm. people with HPPD will benefit of new insights of pma and visa verse. i think that is why dr goadsby and dr shankin do research in both groups and call their research "visual snow a new disease entity distinct from migraine aura"

there are no representative studys. and everyone i know who took hallucinogenes has some side effects till today. maybe its only the "normal" floating patterns or breathing walls while starring on it. i read a publication afew weeks ago where people was tested with strobo light. people who never took psychodelics saw the highest frequenz. people with experiences of psychodelics had a lower and people with HPPD had the lowest. so maybe everyone has a change in their perception if they used psychodelics but not everyone has it that bad to call it HPPD. if i find the study iam going to post it.

hmm when i went to the cinema the last few times my symptoms always had a slight flare up after the movie and at the beginning of the next day. i always thought it was because of the movie itself but maybe it was caused by the popcorn and tortilla chips....

maybe have a look here: http://hppdonline.co...important-free/ but you can find it also here: http://www.visualsnow.com/information/research/pdfs/hppd.review.pdf

would it be possible to combinate drugs like sibelium with sinemet to avoid the parkinsonian like side effects?

iam gonna try if i find chips like these here in germany the most chips are potatochips maybe ill have a look into "nachos"

as strange as the topic sounds but maybe this would explain why the symptoms of a few people here me included have fluctating symptoms. i dont mind what iam eating or drinking but maybe there is more influence on the symptoms as we know only forcunderstanding corn means this yellow small ones right? iam asking because in german corn could mean alot like this for example^^ and i guess that would make symptoms worse^^

jay do you think the addiction of opiates is worse than benzos? i think a heroin addicted can cold turkey in 7 days a benzo addiction can take much much longer.

dont want to scare you but i took amoxycillin while my flare up last year. but i cant say for sure they were the cause. i also smoked weed and drunk alc and had alot of stress while this time. but what to do there a times were you have to take antibiotics or youre gonna die in worst case.... its not possible to never take those meds again until there are new meds

but i dont know if flunarizine should be the first med to try there are no publications about it only a few case reports. but you could also mention it to your neuro he should decide which med he wants to pescribe dont push him too much into the corner the most docs dont like this much. maybe you print out the publications which are allready there and show it to him in a emergency case and he wants to send you home without helpin you. and another point maybe you tell him your "laced drink story" the most docs are more willing to help victims than active drug users.

hmm a comon side effect of flunarizine are depressions. on the other hand it seems to be safe. visual always says that sinemet is safe if you take it in low doses. but as for every med there are always side effects so make sure which are the side effects you are able to handle best

here is a article about furosemide helping but thats the only case report i have ever heard of: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2694469/ the most people doesnt respond to the most "normal" migraine meds, topimarate seems even to make it worse in some cases.

i think the most promissing migraine med which could also help to get rid of the visuals is flunarizine dunno about other calcium channel blocker. but flunarizine is worth a try in my opinion. but if you are depressed maybe flunarizine is able to kick you in a deeper hole as before.

http://en.wikipedia.org/wiki/International_Statistical_Classification_of_Diseases_and_Related_Health_Problems thats the standard in europe noone uses the DSM here

i think its a good projekt but iam not the one who is able to make such a video or audio file. my english is very bad iam able to write with alot of help of google translate^^ but spoken you will think iam a klingon^^ another interessting point would be (and i think i speak for alot of european here) if HPPD could find its way into the ICD. dunno how to do this but maybe we have to find a european researcher or whatever.