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Found 11 results

  1. Hey guys, I posted my survey link on the introductions page some weeks back. I just thought I'd put it out here again. The survey will be online for around 2 weeks longer so wanted to make sure anyone who might be interested gets the chance to participate. The survey will take around 15-20 minutes to complete depending on responses. The survey is investigating individual differences in those experiencing HPPD. The project is supervised by well-established psychedelic researcher, Dr. David Luke. The survey has been ethically approved by University of Greenwich, UK. If you haven't completed it a
  2. June 11, 2019 SUBJ: Faces of HPPD Survey/Research Published – RESULTS! Dear HPPD Online Community: As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who h
  3. I am here for several reasons. Foremost, my 23 year old son has HPPD and I am personally touched by this. His struggles parallel what others feel and experience as written here. Living with HPPD is a private hell – seems. It is met with misunderstanding and judgment from an insensitive society and an uninformed professional medical community, generally speaking, with exception of very few doctors who are HPPD champions. It seems most members here are unofficially diagnosed… seeking information what to expect, where to go, how to feel better, lead life unencumbered. What a Godsen
  4. ----- This post is especially important for the Dutch guys out here on the forum ----- Recently I received a mail from Brijder Jeugd (rehab center) where they tell about a new upcoming research by a neurological department from a medical center about visual snow sufferers, and they're looking for people that want to participe in the research. This could be another opportunity to shred some light on the visual snow and HPPD. The research is targeted for Dutch people but I wouldn't hesitate contacting them in English if you're interested in the research. You can reach them by sending an e-m
  5. Hey guys. I would like to help the community and myself to find some ways to treat HPPD. This forum is great for talking about our problem, but I think its lacking some organizational features that are very important to connect all the dots. Also there is lot of digging to be done to find all the useful informations scattered around the forum topics. I think apart frome the forum we need something extra, something organized. My idea is to build a website with specific functionality. Sort of a HPPD Encyclopedia. Rough sketch of my idea - the website would have: Database of users. Each
  6. Hi everybody. I hope im not crossing any rules of the forum by this post. I think this is a really important matter, so I have let myself risk it and post about it in other sections of the forum too to reach as many people as possible. Plus people from outside the forum, couldnt access the beyondhppd online section. Please check out this post. http://hppdonline.com/index.php?/topic/4459-i-have-an-idea-for-a-website-that-could-help-us-in-finding-solutions/ Thanks
  7. I came across SciOpen Research Group (SRG), and thought: "Awesome!". They now have an IndieGoGo campaign to raise funds for microscopic tissue analysis to assess the effects of J147; a potent neurotrophic Curcumin derivative that's orally active. They are a self-proclaimed "Guerilla Biotech" research group. I'll just post the video, so you can see for yourself: Bridging the "Valley of Death": Introduction to SRG: https://www.youtube.com/watch?fv=4x4efcbRRWg Now their main focus is ALS, however this is just their first project. They are interested in any neurogdegenerative diso
  8. I found this article published in June of 2013. It's definitely worth reading. I tried uploading the pdf file in research articles, but the file is too big.
  9. Hey everyone. As some of you might know, David Kozin is in the early stages of writing a book on the dangers of the use of the term "flashbacks" in a diagnostic setting. The book will introduce people to HPPD and tap into a lot of latent distrust of the DSM, APA, and psychological establishment in general. Hopefully we'll have a real effect on the way HPPD and drug-induced disorders in general are handled in the new edition of the DSM. At this point David is just working on fundraising. We're hoping to raise 5000$--basically just to keep us alive and with wifi for the period it takes to get
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