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robbie123

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robbie123 last won the day on April 10 2020

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  1. Hi Lucca yes tried it years ago . Nothing significant good or bad came from taking it . But I get what you mean I've taken other meds that has caused a HPPD Spike several times over a 40 year period suffering with HPPD. The spikes always go away and return to base over time and I guess that depends on what you took and for how long . I was on painkillers for years 20 years and even titrating down caused a huge HPPD spike . Our Nervous systems are so sensitive too medications and taking the wrong medication can cause spikes in HPPD . But it will return to base and quicker if your focus is on s
  2. Thought I would put this up as a new topic as the original is dated . And there seems to be fear around the prospect of ageing with HPPD Hey thought id give you my take on long term HPPD . 57 years old now and contracted HPPD when I was 15 , So had HPPD for say 41-42 years give or take . So what I can say for sure is that HPPD diminishes at such a slow rate that its barely noticeable ( But it does Diminish } My HPPD sits in the background now opposed to being at the forefront In terms of visual symptoms and some mental symptoms. For me personally I do think HPPD does on some l
  3. Please do not use illegal drugs and drink moderately. The ripples in the pound will eventually flatten out and your mind will find new focus and that Is the key . Nothing focuses the mind more than HPPD, you have to find another focus. Its hard but the benefits are hugely positive . Its a roller-coaster but if you ride it everyday eventually the thrill dissipates. Take care. find focus. stay positive and do not fall into the trap of believing its a mental illness or you have freaked out or you are no longer normal .That stuff in my opinion is all bull. For me HPPD is heightened sense of
  4. Hi Guys .Hope you are all doing well, Been a long time since I posted ."Long story short", I've been on pain medication for over 5 years for HPPD related Fybromylagia and fatigue and in my wisdom I decided to do a 5 day detox. Well the HPPD rattle was pretty big as you may imagine. For 5 days it was like walking through hell so i went back on them a decided to tirate down. I have been looking at Kratom the natural root bark pain killer from Indonesia (Banned in several countries including the UK where I am based ) However Legal in some countries and States in the USA . The reviews an
  5. Do you have Visual Snow 24/7 ? It's one of the key attributes of Hppd .
  6. Hi as a long time sufferer I would agree with the Drs assessment especially the acceptance Quote. I'm coming up to 40 years with this condition and you really need to get the head down and get on with life. HPPD is really just a condition opposed to an illness and definitely is not a mental illness although excessive worry and anxiety over the condition will, however, lead you down that path. Brainfog headaches and lethargy are the real demons of this condition.
  7. Hi MADDOC completely agree with you although I think as the initial visual symptoms become less intrusive (5 years say) the physical symptoms of the condition become the real enemy (fatigue,muscle pain,headaches etc ) and then i think the real fight begins as David said dealing with the ADHD and focus issues bad memory and brain fog can be hard. Diet I think has been a huge help in dealing with several of the above and for me pain killers and a muscle relaxant . Yayoe I think real HPPD dosent really go away, some have had it a very very long time It does however diminish over time o
  8. 37 years now with this shadow keep the heads up guys fight like F--K Only got one life "it will get better" keep yourself busy really busy thats the key focusing on it is the real killer and accept its probably going to be with you until till the end . Make it your friend not your enemy embrace it! Remember HPPD has probably saved many from drug addiction Crime and a walk down the dark side . Its just a condition like a TV slightly out of tune,just a little but you can still see the picture clearly but it bothers you right Good luck guys see you at my next party
  9. Hi thanks for the reply, The detox already has made a huge difference , and taking a niacin flush gave me a pretty big HPPD rattle, and I've had a few of these in 36 years mostly drug related . I understand the Chemistry/Science in your reply but one thing i Know for sure is that certain symptoms of HPPD diminish and recover to base level over the years and is not permanent . It is however a long process . what I found interesting is that having such a rattle after all these years brought on by a niacin flush is suggestive of chemical release from the fatty tissues. Only sugges
  10. Hi Guys been a long time of the forum, hope you are all good . Back2Bone is the name i have given an Idea/experiment that I am almost a year into , now I need your help with advice 36 years with HPPD I'm now 53 and ill say most symptoms have faded away into the background and basically i just get on with it . So to answer any fears that hppd will worsen as you get older (in my case isn't true) pretty much my neurological system has not diminished faster than any other persons without HPPD . However the fatigue that follows HPPD and fibromyalgia ( which I suffer ) has in
  11. Hi Guys my thoughts on this hppd after a very long time to think about it . Firstly I think we have to get away from the notion that we are tripping, there is no medical evidence to suggest that is the case this notion that we are in a constant trip is banded about all the time and strikes the fear of god into most people and destroys most peoples confidence and they sink to the bottom . the after effects ( the rattle ) of taking acid, mushrooms whatever , bear no relation to the actual effect experienced while on the drug . Static, afterimage, strobbing etc etc are very rar
  12. Really Really good happy birthday HPPD 36 years . Take hart guys it fades into insignificance with time . Good meds that actually work . Lycra -dihydrocodiene and prozac or a benzo when needed or a combination of any of these Good for the pain and brain fog of the condition which are the physical symptoms of the condition which is 95% of the condition . Be carefull to take breaks from them though, dropping one for a few weeks then swapping about to avoid tolerance. But really believe that you will recover because you will . no amount of believing you are going m
  13. DBS deep brain stimulation , very effective against depression ocd fybro migrainesand neuroplectic pain, and epilepsy 2-3 hour operation 2-3 days in hospital. The operation places two electrodes in the brain which regulates the electrical impulses misfiring , which is widely believed to be the cause of most of the above conditions. The procedure makes a whole lot of sense as hppd fall into the remit of most of the above. Ive always felt the condition is disturbance due to electrical activity rather than just a chemical condition. Thanks Robbie
  14. It is strange that alcohol is linked so much with CEV and especially that sort of classic "hellish" imagery. I know alot of non hppd users who have said this happens too. My thought has always been that when a person is drinking, their brain is taking in alot of visual info, but not processing it properly, so it sort of lingers around the next night, ready to be processed. Why it takes on a violent nature, i'm not sure.... but it is very common place. Ps i would agree with jays analogy and link with alcohol , i think dehydration has a lot to do with cevs when the system is dehydrated throug
  15. It is strange that alcohol is linked so much with CEV and especially that sort of classic "hellish" imagery. I know alot of non hppd users who have said this happens too. My thought has always been that when a person is drinking, their brain is taking in alot of visual info, but not processing it properly, so it sort of lingers around the next night, ready to be processed. Why it takes on a violent nature, i'm not sure.... but it is very common place. Ps i would agree with jays analogy and link with alcohol , i think dehydration has a lot to do with cevs when the system is dehydrated throug
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