Merkan

When going keto remember to take a fair amount of magnesium, like 250-500mg of the good kind. You loose a lot of that. Also remember that you WILL need less calories when you go full keto. So counting calories doesnt work. If you eat strict LCHF and have adapted, a body that usually needs 2500 calories will only need 1900 calories. That is beyond 10 grams of carbs and a good ratio of fat for some time until you adapt

Opiates inhibits the over active brain so i does have some benefits. However, it depleats dopamine so it can become temporarily worse when it stops working. Its also easy to turn to opiates in state of stress or depression if you start taking them from time to time

Chiggs> Still on k-pin, still working and for how long?

Coloured glasses definitely helps clear up snow, colour confusion and floaters.

Well i had a really bad raction for about 5 years ago when i drank three glases of wine. Basically i was back in limbo for a month. From that point i was as paranoid to alcohol as with second hand exposure to weed. But recently i have started to feel better, and decided to try some beer. I drank a couple of low level alcohol beer at my class party just too see what happened. I do not think anyone except someone really small and sensitive would have felt that. However, i have HPPD so... I drank my second beer, didnt have any "buzz" but man, i got stoned! Or should i say body load. I was sitting in my friends bed and couldnt get up. It was like every other person in the room started to get a little bit more in the mood but i just sat there. I did get some anxiety of the feeling in my body. No joy or anything, not sure if it was the keppra and LCHF-diet that got me so knocked out. It passed however. We went out and i started to feel really normal, still with the alchol in my body. Its kinda sad thinking back to it. Even if my visuals heigthened a bit i didnt really care and was better off then ever. However, it came with the price of increased visuals post one week, like looking at the sky and seeing geometric patterns in the cloud (like hectagon grids). Well, thats that but it emphatize what we already know i guess with GABA and dopamine. Alcohol enhances both and David mentioned alchohol being temporarily good for symptoms. So i am still waiting for that pill that naturally enhances dopamine (sinemet but functional to all) and something to fix the negative GABA surge. Barbitatures-Benzodiasepines-HPPD fix next?

The cognitive (DP/DR etc.) and anxiety is what makes this disorder serious. Atleast thats what i think. I didn't have anx and much DP/DR when it was mild but a lot of anx. Now i have full dissociation without meds, literally years went by that i do not recall even happened pre meds. While i do agree with Jay that you need to be off meds to now if a natural healing is progressing, i do not see any issue with adding meds for a couple of years if months have passed and nothing happens. Of course if any other route of treatments have been investigated.

Without tolerance, a 2mg clonazepam basically removes all my symptoms.

What do you guys think about emotions and Keppra? I kinda like the mood stabilizing effect but not really sure about up the dose to 2000mg from current 1500mg and what it would do to memory and affections.

As for withdrawal, yes.But op have HPPD indeed and the shocks has to do with the serotonin inbalance that comes with HPPD. I still get that at bad times and always has since HPPD started.

I would gladly keep this conversation going but your last post makes me feel that we are at a dead end. Yes, life is unfair! And guess what, people are worse of then us, yeah the trauma is where you came from and where your at and its unique to everyone but even if there is only a way to relieve symptoms, you owe it to yourselves to take that opportunity. Some people watch their kids die in horrible diseases, looses their families in car accidents etc. Where are their relief or "masking" of symptoms? They would take it in a hearbeat. Yes our condition is unique but we are not! That is the first thing. Second, as said before, we do not have the luxury of being pessimistic. You can choose that path, its an easy path even if it will drag you in to the darkest corners of life. Being optimistic is not about believing on some kinda rainbow coloured unicorn solution to strike down from heaven, its about deciding to do what you can about your situation. You might be right that no one will save you with a cure but that does not give you any moral right to project that energy to others. And about nothing happening, the genetic research is a huge step that has helped many people to co-op with this disorders. Our knowledge about a-z drugs from people on this board has also helped. Without this i would be an opiate addict for sure, perhaps dead or atleast homeless. So, things are definitively moving forward but not in a straigth line anyone of us can follow. You accept and adapt to the current situation or you die, literally or figuratively speaking. That is the truth about fairness in life! I accepted my situation at the psych ward where I saw my life ending, but i accepted that this is the new conditions of my life and adaptation was the only thing i could do. By adapting I am now about to take a degree at an university, going from where i was being put to sleep with ambien in order to keep my sanity. So, conclusion. Things like "deserve", "fairness" are total irrelevant words . Things are what they are! I do acknowledge that you have accepted that but it is up to you to decide what to do with it. And yes, i know that you put a lot of effort in lifting HPPD on the agenda but with little or no response. That is one way to adapt but now you have to adapt to the fact that there might (emphasis on "might") not come any good from it. Then you have to adapt to that. At last, i have my own adaptions still to be done and I am working on it. Some times i take a break if i get too many setbacks in order to not get too negative about things but i always put myself back on that horse again. Because that is the only way to figuratively and literally survive

Well i might have taken some things for granted out of my context. Sorry for that. But as I recall i remember you taking the med from Dr.A and, correct med if i am wrong, cried tears of happines of getting your life back. You tried that on your own (sinemet) in another dose and did not get the same relief? I was thinking that lateley you have become more and more pessimistic about your condition. Wouldn't it be worth litteraly everything, to get your hands on the exact meds, perhaps together with Dr.A and just go with it even if it was "just a trial" and catch breath for some years (or many)? I do not know exactly what you have tried but since you had such luck with the meds wouldn't it be worth selling absolutely everything you got to afford them for a while, perhaps start building up some money with the new strenghts in order to keep going with the meds? Just focus on that. If you haven't tried Keppra (expensive f*ckers) or the 100/25 sinemet (remember somewhere that you got 10/100), we can look in to that. Send a PM if so.

Been thinking about this for a while when i had my worsening for six years ago. When i was at the hospital and trying to go to bed i had these weird hallucinations, They weren't pattern based but very transient. So i layed down trying to sleep. All of a sudden i was like a chopper was hovering over my head. Not literally but like something i think people can get from fever. The other one, which was SO weird, i had my eyes closed not tired or about to fall asleep. Blue mushrooms in the shape of psilocibe semilceanta was painted in front of my eyes. Like on a canvas. I get the patterns etc. but these were so weird. Another symptom i got was this really werid pitched sound from people talking when i passed them. Like smurfs or disney cartoons. Just wanna know if anyone had anything crazy like this. At my onset, when my HPPD were still mild i had these transient hallucinations like seing figurins both in CEV and OEV but not as crazy when it worsened. I do however think that these transient symptoms would have disappeared a month after and only increased static/seizure like stuff would remained if i got off the meds now.

Well i just passed the 8 year mark and i am more hopeful about life then ever. I understand my symptoms, how they can be treated etc. I eat, sleep, supplement/pop meds, and work out as an atleath. Yes i would low to get awaya from all of that and i do have a different perception. In the end, when it comes top hope I think about AIDS/HIV before the treatment. Some people died just months after getting the meds while other would have died just months after the meds but still live a pretty good life now. "Pessimism is a luxury we (Jews>Insert HPPD instead) cannot afford." - Golda meir. If you are a victim you either lay down and die or you fight with whatever means possible. At the hospital i said that i would fight this with every method there is even if it killed me becaused i refused to live the life of a walking dead. Its okay to be upset and do all the grief in the beginning but at some point you got to decide. If your HPPD-pain level is at ten then you'll do anything, i mean anything to combat it or give up. You can see this in chronic pain victims, either you accept the pain or you get hooked on opiates and in the end die on the streets or similar from OD. It is a harsh true but pessimism wont get you know where. Projecting it to others doesnt help either.

Yes, and this is the part that doesnt go away even if my HPPD-symptoms with the meds. Perhaps cialis can help you? It worsens my HPPD though cuz i get flu-like symptoms. I am pretty sure it has to do with the dopamine thingy going on in HPPD. When i started sinemet i almost got reckless before gettting on proper dose. It was like being on coke, So i guess low levels of dopamine has a lot to do with it.

This is interesting because we had some reports about NF and there seems to be something of value while some had bad experiences.

Keppra 250mg/twice is low yes, i did find some relief when having mild HPPD. I remember getting on 500mg/twice and that really kicked in just in 24 hours. I am on 750mg/twice now and works like a charm. I notice immediate respons just by missing on one dose or at sometimes happen to take the double dose.

Well, without medication the floor splits in two layers with one floating on top of the other. And that is 24/7 so glad that you haven't got that going for you. But i know what you mean, i used to have that when my HPPD wasn't severe. Know i only get slight light sensitivty for an hour or two post heavy barbell lifts.

Studying music, the 60-70,s deaths often started with the "safe" drugs like marijuana and LSD, the reckless use made the artists have everything from anxiety to schizoprenia, leading to abuse of alcohol, tranqualizer and heroin and in the end, death (OD or suicide by substances). HPPD or not, "safe" drugs often lead to reckless use and psychological and neurological issues are bound to happen to a lot of people.

8 years in, who would have know? I am fine, however i am still half the person i am during the summer time. I study now and hopefully can move abroad for atleast the worst part of the year.

Brand or what type of lenses filters the bad stuff? I remember this was discussed a lot at the old board but do not remember. Some wavelengths seem to be worse for HPPD according to some users.

XR=slow release. Anti psychotics made me semi psychotic though.

Sorry, sinemet helped the delay. Keppra some but most visual snow and some DP/DR, and the racing seizure like mind race

Keppra improved all my symptoms. Starting with the visual and emotional. Its like the delay disappeared. A good test for this was entering the bathroom switching the light off, instant adjustement. Depth perception almost fully improved from seing everything in 2D

Shapwplay> Tried sinemet? Keppra is great that it inhibits the ion channels and puts the lid on but doesnt taget the serotonin/dopamin dysfunction in HPPD, for some balanced with l-dopa. For the record, i am no longer sure that i was ready to trip in the beginning, although it enchants me (the idea). MDMA though in the right doses is something that i really would like to try. However i would never risk my brain anymore. Not until there is a certain fix for HPPD and at that time i have probably moved on and will be to old to bother about such things

I dont know why but this scares the shit out of me. The good old afraid of getting crazy paranoia i guess