r.trudeau

Dp and dr came back...fuck

You seem like you're aboustly normal. All the symptoms you touched on could not have been more on point.

There's the study

Wow, that´s really great to hear Rene! Seems like things are looking up for you and stories like this provides hope for the rest of us. Have you ever stopped taking the medication for some time, and if so, have this brought symptoms back or are there some permanent benefits?

Thanks! I've been off of it a few times over the years and the hppd just comes back after 60 days, or so. Currently, I'm going to try to stay on it for another year then try to get off of it for good. The doctors don't know why the dp/dr comes back after stopping keppra.Those are the symptoms that come back. I'll start to feel strange, out of touch with reality and have no perception of time. bleh

Hi Rene,

 

I am back here after a 5 year hiatus (used a different name then - lookingglass25).  Was interested in the Keppra for years - seems to be more info now... - as I have Tourette's also and see it is sometimes used for that.  My concern has always been getting into some pill and having it just addict me to it for no benefit.  Curious if you ever cut back and if you could relate it to benzo withdrawal which is the main reason I am scared to try (and seeing people on anti-psychotics too).

Welcome back HPPDked! I don't think keppra would hurt you at all, I am no doctor here, though. I've cut back a few times with no withdrawals, as keppra does not cause one to be psychically dependent on it.

how much weight have you lost?

How about just eating really clean for the rest of your life?

You're welcome! I'm here to help as much as I possibly can!

General life: Great! I live in a nice apartment with my partner and we have two kids, a cat and a dog. I'm able to support myself comfortably, as I have a well paying nursing assisting job. Almost finished with my bs in biology (have a year left) but I am stepping out of the medical field for personal reasons/believes. Starting school in the fall for applications design.

Medication: Keppra, that's all I take. 1500mg per day. 1000mg when I first wake up and 500mg around 12 hours later. Etizolam: (shhhh I know it's a rc) my cat eats it when he is stressed out about 2x per month.

Symptoms: Very light visual snow in the dark, where the wall meets the ceiling. It's so faint that I don't notice it, unless it really look for it. It's gone during the day. No more dp/dr.

Drug use: I drink about 2x a week, no hard "A" just beer. 6-7 beers max per night. Don't smoke cigarettes anymore, I'm really into vaping e juice now. Weed, I've smoked on and off for the last six months with no effect on my hppd. It's not really worth it though, I find weed non appealing now. I prefer pain killers. (Bad, I know) Currently not smoking. Pain killers: 2-10x per month. I have a broken hand right now and bad back, all work related injuries. The oxy has no impact on my hppd!

Hi there, some of you might remember me from a few years back and some might know me from my past posts on this forum. I'm back here to answer questions for this community, give out documents, advice & ect...whatever you need, I'm here. My email and tumblr have been overloaded with questions, please forgive me for not having the time to get back to everyone of you.

Anyways, how's is going?!

-Rene

What happened to all the links?

I think it's strange, too...but I'm not going question it. I never had faith before this experience.

Yea! I felt better than I do now. Fucking nuts

A few years back I begged god for hours because I wanted to feel hppd free. Well, all of a sudden it happened, looked around the room and no static was present, my mind felt refreshed, and an overwhelming feeling of happiness coursed through my veins. Sadly, it only lasted for an hour though, but it sure did give me hope and reassurance that hppd could be beat and it wasn't brain damage.

I was forced to take it for five months straight for sleep, and it would make me trip bawls for 30 minutes then pass out as if I were dead. At the time I didn't realise that the medication caused the weird visuals.

So, when my hppd was really bad (I mean if I ranked it on a scale of zero being normal and one hundred being "I'm going to kill myself." My score would have been a 98, no joke) I use to feel as if my inner voice, you know, that voice you hear while you think...had disappeared. Then it slowly came back, eventually. Anyone else know what I'm talking about?

Ahhha I'm sorry guys.

Keppra makes me lazy and unhealthy too. Idc though, rather me a lazy bum than talk like the village idiot. And idk if they're the same...google that shit

How long did you have HPPD for Rene??? Was it 3 years or something like that??? Would you also say that you're mental problems have gone too?? Also, which of the issues, physical or mental, went away first??

Umm, Damn I think I had it for almost 3 years or so. And yea, they're gone completely. I've come to realise that the only metal ailment hppd caused myself was crippling anxiety. Then other issues shot off from the main root (anxiety). And the visuals went away then the brain fog lifted and lastly, the fucking speech issues dissipated.

I'm glad to hear that you have got your life back. I tried keppra for two months without any results. :/

sorry man, why did you stop??

what is the study that you are referring to rene?

http://hppdonline.com/index.php?/topic/1279-keppra-research-study/#entry10471

The study is the second to last link

Yeah yeah. Nice to hear back from you. Unfortunately today my visuals are the least of my problems. Seems that, at least for today a little dp/dr or something has caught up with me. Hopefully it goes away, it usually does. I agree with your keppra assessment. Glad to hear your doing well, nice of you to check in on us little people.

Sorry to hear the that, but it will take time. It is just an anxiety disorder. But thanks for welcoming me back

Ahaha love it

I think this kinda stuff happens to everyone. Even before HPPD I definately put the cereal in the fridge and milk in the cubboard a few times, and I'm young.

But I know what you mean about fearing old age and senility I terrified of it.

Agreed. Everyone does that kind of thing. My parents do it, all the time! They're only 40 and have never touched a drug in their lifetime, plus they don't drink often. People have thought after thought after thought. It's called a brain fart.

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