nuroeone

I've thought that too, have i always seen things this way and just not clicked on to whats going on around me? It's just like something clicked and made me realise how i was really seeing things. it's very strange. Its as if we have been awoken to how shit reality really is...

Get them all the time, not sure if its some kind of after image triggered by light or what, but they never last to long, nothing you can do about it really. Just gonna have to accept the fact you see weird shit now, stop focusing on every little thing that happens or whether you feel "50-60-70-80-90% cured" and just get on with whatever you need to do.

Does it resemble a black hole (only way i can describe it) its like a sinkhole in your vision when you look around to quick and you can't see passed it? Sometimes mine appears white or black, i also have flashers which are like shooting stars that go across my vision the other day for the first time i had an orange one shoot by( they are usually white). Its nothing to get bent out of shape about man, just accept it for what it is, It is always going to fluctuate regardless of what you are doing to combat it

I had head rush for the first time about 4-6months ago, i shit bricks, i raised up to quick and all i could see were these massive stars floating through my vision for 30 secs, i thought that was it and i was gonna die hahaha turned out to be headrush, kinda funny now that i think about my reaction to it

I have it day and night, night time is nothing compared to the day, i agree sometimes the halos can look pretty cool as you move all the beams coming off the light source shoot all over the place but i'd prefer it gone, it would seem i will just have to accept it and try work around the symptom. The size of the starbursts during the day can be massive depending how large the surface is, that is being hit by sunlight and the aura from those blocks almost half my vision, so basically im temporarily blinded until the light source is removed. So you can imagine what would happen if one suddenly appeared whilst driving which is usually the case, the worst periods being sunrise and sunset when the sun is lowest, cloudy days are the only days i can feel "normal"

Its only if i stare into one spot for to long, once i got used to it i challenged myself to keep staring to see what would form. Half my face dissapeared and then i could see a double of my eye, kinda like looking through a broken mirror and it left an after image of half my face for a minute or 2. I cope simply because i have to, its either face it or kill myself, i can't pretend its not happening, i can't wish it away, i'm in this for the long haul unless a cure is found or something. I just have to move forward as best i can, luckily for me i have a girlfriend and my job to keep me occupied and happy lol There is a lot of things i want to still do in my life if and before i ever give in to this shitty disorder. Despite all the negativity this disorders bring there is a positive side to it, it stopped me from continuing on the path i was on of constantly drinking and destroying myself, it has made me appreciate and realise how much more to life there is than partying and doing the same dumb shit every weekend. That being said i do miss it a little haha

Thats exactly how mine came about, i went out on a bender next day starbursts, bloody ridiculous! I use my phone and just whoosh it around in circles it leaves a cool effect lol also i like to see how long i can stare into one spot like a mirror and see what forms before i get scared ( things dissapear, warp and come together or form doubles ) or i'll go outside and just stare at the sky watch all the silvery things swim about , i thought i was maybe the only one that actually played with some of my symptoms. For the time being we seem to be stuck with it, we may as well fuck around with it lol don't get me wrong i fuckin' hate the shit and would do anything to have it gone but it seems to me that the more i play with some of my visuals the less scared i am, therefore less anxiety it causes

Feeling ya on the starbursting dude, by far my worst symptom only days i feel normal is when its cloudy and raining so then the bright lights from the sun can't form starbursts, Every other symptom i can pretty much live with the snow, after images, trails, ghosting, dp/dr and all the rest of it, i even find myself playing with my trails in the dark lol but the starbursting is beyond a joke, its almost like im partially blind, just once i would like to enjoy a sunny day like i used to without the help of sunglasses. Its bullshit but its apart of our lives now, we must adapt and hope for the best

Oh and also is there a med i can take for anxiety that won't effect my hppd? I have some particularly bad days where i get anxiety for days along with some pretty bad paranoia and sometimes depression, some sort of relief from this would be great, I just want suggestions and what your expieriences were like on whatever the med may have been and what worked best

Hey everyone! I'll try make this brief, I just wanted to know what medication people on this forum have found is most effective against specific visual symptoms mainly Starbursting and after images? My starbursting is so bad i see it during the day, the suns reflection off of anything is so bright almost like stars or mini suns EVERYWHERE! It's at its worst when the sun is at its lowest so early mornings, late afternoon. I hope to be able to drive one day but think it would be very dangerous as the starbursting makes lights that would seem normal to other people so bright it sends me halfway blind, leaving flashing red and green dots and burns in my vision for 2 - 5 minutes after, which i assume are after images. This is my WORST symptom and i need to try something, Naturally healing is not working for me. I'm willing to try meds regardless of whether its just a mask or temporary fix. Thanks for reading

Is the glare like thick, kinda solid and can only be seen when its like a reflection of light off a surface or direct light? I find light completely blocks my vision sometimes more in the top of the eye like an arc and sometimes it appears as a strange fog and until i blink its stuck there, ive also noticed the steam or a trickling water type effect that floats through my vision, i think its a shitload of floaters all tangled up when ive been able to look at it properly

Its only been a year and i can't remember what it was like to have normal perception, it almost seems like a dream. I often wonder if normal perception was returned would it be weird for us, would we have to adjust to normality? Just a weird thought

There must be, when i had the drug that triggered this it was either a pill with 2-cb or 2-ci in it. i went halves with her, it fucked me up and not her :S Our brains must be wired differently but i had a few bad experiences with hallucinogens before the final straw. All my mates still pop and drink and do whatever, but i can't be angry at them just because i can't do it anymore although i will get up them if they take acid around me knowing what it has done to me

I take it as a positive and negative thing that i made it this far and that it has helped me straighten out my life, i can only hope it gets better from here but i doubt it, it would seem its something i am just going to have to live with just have to stay as healthy as i can and take each day as it comes.

A weekend out for me used to be a 6 pack of rum or 3 700ml longnecks for pre-drinks(Before going into a club) In the club i would have at least 10-15 drinks this could vary from rum and cokes, jagerbombs, smirnoff ices, beer then we would usually have a bottle of 700 ml or 1litre spirits or 4Litre sack wine outside the club when we ran out of money or the club ended, the bender would continue on into the next day then i couldn't tell you what i had. Thats just a rough idea of what my habit was but it was a lot, before hppd i drank everyday not necessarily to get drunk, just because i liked to but as i realised i had hppd my habit slowed as i realised shit was getting worse, like i said in your other post( the one about you deciding to drink) the symptoms increased on a subtle level after every booze session until they got noticeably and permanently worse.

I made it one year with this shit, it hasn't killed me and it hasn't turned me crazy....yet! lol just thought i'd share this with you all

Don't drink alcohol! Just don't, it will fuck your shit up...i've said it before in other posts, it permanently made my hppd worse, it might take a while but it will happen if you continue to booze Also props for this post, thats the attitude you need to have and keep People that don't have this disorder will not understand and never will.

Mine is everywhere head, hands, feet, knees, thighs, ear...Everywhere! I don't even know if its related or whether its worth wasting my time seeing a doctor about it, they never have any answers

nah, not like that i know what you mean though, cold, sharp tingle in a tiny area which moves all around my body. it will tingle for a while in the one spot sort of pulsating for 2-5secs then when it next appears it will be in a different spot, same sensation. I don't know if i should waste my time going to the doctors or what, it doesn't cause me pain its just rather annoying its been around for about a week and a half roughly im just wondering if its a sign of something more sinister or just one of hppd's many annoyances :S

Don't really like obsessing over my symptoms to much as i have come to terms with nearly all of them but this new one is giving me the shits!!!!!!! Don't even know if it's hppd related but i'm going to ask anyway. I have been getting these pulsing tingles all over my body like a sharp, cold tingle in a singular spot, goes away comes back, it causes zero pain but is all over the body randomly in the Head, Fingertips, Feet, legs. Does anyone also experience this? It's doing my fuckin' head in! I really don't need anymore symptoms, i have enough as it is.......

Was thinking of giving this med a try but i better not get on Keppra if thats the case, i already have some pretty dark thoughts...

Mine did, i developed ghosting and starbursting (In day & night) but i believe it had something to do with drinking the first 9 months of hppd, since then my symptoms fluctuate i have bad days and i have better days but noticed no progression since stopping booze. I would surely like to hope that it can't progress on its own without a trigger of some sort :S

Mines the opposite when i skip a meal and get even slightly hungry i feel strange and everything gets spacey, i dont ever remember feeling like this when i was hungry pre hppd dp/dr. i never skip a meal now because of this but i can stuff my face with anything, get full as fuck and it doesn't make any difference to my symptoms

Man, it always fluctuates you just have to go with it, just know its not going to kill you and you aren't going to go crazy. I had that flickering visual field last night, wierd shit happens all the time i just roll with it, im at the point now where my visuals cause me zero anxiety because i just don't give a fuck anymore. I don't medicate, my visuals symptoms are many and show no signs of dissipating, the quicker you come to terms with what you have the less anxiety you will have about it. I do have anxiety attacks from time to time still when im angry, sometimes trigger out of no where but when it happens i just stop, do what i need to, to feel comfortable again whether im at school, work or at home and it brings me back to calm. your coping mechanism will get better as time goes on

I try to ignore my starbursts but they really invade my vision, if i am looking straight passed them i see the rays of light coming into my eye. Massive starbursts can not be ignored i find they leave burns/ afterimages at different depths through my vision which are Dark green and dark red which flash when i blink, really very hard to ignore and this is during the day I can't even see past the aura of one, ive tried so hard. I'm way to scared to even attempt to get behind the wheel of a car, really sucks. I wear sunglasses to combat the floaters and the blood cells i see floating around in the light but they do not help against starbursts at all, they only dim them they remain extremely visible. I'm thinking of trying keppra in the hopes that it might combat them in some way. I don't know what else to do about them