nuroeone

Me and my girlfriend have broken up, i now feel even more so low, my dp and dr is through the roof. SO far the sinemet has not been working but its still early days but fuck now im just so depressed, this is never gonna end

Also how long does the pill effect the brain for in reducing the certain symptoms and with cycling is it possible that i may see permanent improvement without the medication? (if it works)

Thanks visual, very helpful information, i appreciate it. If i have any problems or success with this i will post back up on here What do you mean by cycling exactly? Is that just doing the schedule above then tapering off to see where i am then starting again in a few days? Sorry i'm new to all this

I just got the meds, i will be starting them tommorow, im hoping they work in some way any relief from any symptom would be great. I will hold off on the drinking i was going to do this weekend in the hopes that this may work. I would have no problem driving if it were not for the starbursts, without being able to see them you can't begin to grasp how bad it is. They are impossible to ignore as they appear as soon as the right amount of light hits a certain spot, the bigger the surface it reflects off the bigger the starburst so think of it as looking at the sun but down on the road with all these laser like beams coming off into your eye but obstructing everything you see between that point to your eye. Sunglasses do help to stop afterimages but make the starbursts more noticeable by creating more beams, Also if the sunglasses are dirty, scratched or fogged up it also creates more of a disturbance. Its hard to explain but its really bad, if it were not for this symptoms i could go on with hppd, dp and dr and not give a single fuck about any of them. Hopefully this med will work though, thank you all for listening to my shit, it is much appreciated

Ok, just went to my local GP told him about my hppd and that i would like to try sinemet to combat some of my visual symptoms mainly being after images and the starbursting as i have been told by people on the forum this med might give me a significant reduction of these symptoms. They are SINEMET 100/25 to be take twice daily (which i will start tommorow after breakfast) It contains 100mg levodopa and 25 mg carbidopa. Now what i wanted to ask is there anything i should be aware of that may happen upon taking this medication, i would like to be prepared the doctor said it could cause a sudden drop in blood pressure and cause drowsiness. Is there any other effects or long term effects i should be aware of? Also for those people this has worked for, how long roughly till i see a result?

Just over a year now, no, i haven't even got my liscence yet i am currently practicing for it then i will try my luck in the drivers seat, i'm very scared i could be a danger to others as my starbursts are often blinding during the day, the other worry i have is getting my provisionals to get those i will need to pass a test with an instructor next to me grading me, it would have to be under ideal weather conditions i.e cloudy (zero sunlight = zero starbursts) If i don't learn how to drive soon this could greatly effect my quality of life and limit me to things. Today, actually within the next hour i am going to see a doctor and try to get sinemet to try as i've heard this may give me some relief from the afterimages and starbursts, so hopefully i get it and it works for me, otherwise i don't know what i can do really. I will probably turn back to drinking and just give up on trying with this bullshit.

I don't know what im into besides playing games on computers and i hate going outside in daylight because of my starbursting, i force myself too but i shouldnt have to force myself to do something so simple. I go out to clubs with my friends still but can't have fun like i used to while they all get drunk around me, my gf is getting bored and i can honestly see why, but this is not the person i am or want to be, i can be so much more than this. Yes, drinking was pretty much all i did prior to hppd, drugs were very present from about 16 to 18 and then became infrequent up until i got this bullshit, i also drank 9 months into hppd before it caused my symptoms to drastically change but im not even 100% sure that was the cause, how do i know its not just hppd progressing on its strange, fucked up course to destroy my mind. I just really need that break from reality but i also want this gone so i have a full grasp on what it feels like to feel normal again to enjoy the sun, to be able to drive, to not wake up and see snow everywhere or the walls breathing, ffs its hard.

I just broke down in front of my mother, crying and even letting it out i can't escape it, see ghosting everywhere, like when the fuck am i gonna catch a break? Is it really going to get better because it does not seem that way to me and if thats the case i don't want to live a full life like this, i would rather run myself into the ground with alcohol, i'm a fuckin' mess anyway. I go to work which should be enough of a distraction and my visuals are still everywhere, feeling strange all the time is constant. I want some form of relief, I'm adapting to a life i don't want to live because of this shit and this is the only the first year of it, im 22 i could potentially have a long way to go but not with this....

Having a really tough time lately, all i can think with this is negatively, this shit is ruining my life, when i see my visuals i just don't give a fuck and then they make me angry, i can't drink, i can't have fun at all sober, people think im boring, i will probably never be able to drive because of this shit, i honestly believe no one is truely cured they just come to accept it but my hppd is stronger then most by the looks of it and shows no signs of receding, so i can't see myself being able to live a normal life. I'm sorry for whinging or venting whatever the fuck you want to call it but i'm so close to turning back to booze and i dont know what to do, it will probably be the worst thing for me but will make me feel good again even if it is just temporary, i just feel like an empty shell of the person i was. I WANT TO BE MYSELF AGAIN! Through the week i am going to try and get some meds to reduce my visuals like sinemet but if they don't work i honestly don't know what i am going to do, i don't believe hppd can kill me but i do believe it is one day going to be my undoing that sends me over the edge, sorry for the scattered thoughts i just need some advice or help getting through this tough time, i don't know what to do, i just can't escape this shit. I thought i had a good handle on it but i obviously don't, fuck!

The only thing i've noticed is when i wake up my ghosting is worse usually takes 2 hours to go normal the longest being 12 and thats shit, my snow is pretty bad when i wake up in the middle of the night, if i have one eye open the snow is intensely thick but it always resets to its baseline by the time i have to go to work. Sometimes i also get a flashing visual field. I think the most terrifying thing that has happened while sleeping which i have had happen pre and post hppd is sleep paralysis, now thats shitty.

I'd like to get drunk too, but sadly i'm too scared to risk it getting worse. Man, i loved alcohol it was one of my main stress relievers going out and running amuck with my mates and now i have to stand there sober and try make the most of it, it is no where near as fun. eh....

Yeah, when i'm falling asleep my visions divides and goes into doubles, like the whole room gets rearranged. Can't say i have seen any rainbow hexagons though although i have seen some wierd shit haha

Mine was the same, my symptoms increased very gradually from drinking but on a subtle level until they were very noticeable, the first thing i noticed was ghosting gradually getting worse over the months then one day after a binge i woke up with starbursting everywhere and intensified visuals that have never decreased since, since i stopped drinking my symptoms have been strong but stable.

I can remember some, but usually i have to write them down. I have since having hppd noticed that when im nodding off i go into this strange dream state where i will have conversations or be doing completley random things that when i wake up i believe actually just happened. It went away for a while but now its something that seems to have returned, its really strange, like being in another world or something because it seems so real when it happens.

Sorry ferret, i meant my post on this was useless and irrelevant about me missing drinking, sorry dude lol I found i was fine to drink a few drinks but also i would fine it would trigger bad anxiety even from just a few and in my case once i start, i don't stop till i'm completely railed so best to avoid it all together as it eventually increased my symptoms. I miss it a hell of a lot though, drinking was a big part of who i was. My dp and dr flared up crazy on a hangover, the snow and all the rest remained the same and the hangovers lasted days post hppd

ehhh irrelevant useless post, but FUCK i miss drinking....

Ahhh man despite what i said i know how you feel though, i ended up worse because i wanted to continue to drink (i think) through the first 9 months of this shit and even right now i'm still craving alcohol despite my situation, i keep on thinking what if it wasn't the alcohol that made me worse and its just hppd progressing on its strange course so would it really make a difference if i continue to drink? Even though i have been sober since febuary i am still noticing new disturbances. Like it was just said if you wanna do it, do it, just remember once the damage is done, it is seemingly irreversible. If you think your life sucks now, it can get a whole lot worse, this hppd bullshit is relentless and dp/dr is even more fucked.

If he wants to play with fire then let him, There isn't anything on this forum that hasn't already been said and if that isn't enough for him then let him learn the hard way. We know it's not a joke or something to be taken lightly and thats all that matters, no point getting worked up over it.

Yeah i got halos and all sorts of visual disturbances, i'd say yeh fuzzy vision would be one of them, it is always playing up sometimes it even seems "foggy". I'm going to hit the doctor up this week and see what he says about sinement and whether or not i can get it. I really,really, really hope so...

How long have you been taking it? Any bad side effects? How long does it last and when you say much less do you mean significantly or slighty? Also is it something you could take over a long period of time? Sorry for all the questions, im very curious as this is my strongest symptom.

Thanks, that would be great http://www.cornealdystrophyfoundation.org/html/cd_defined.html Have you read up on Corneal Dystrophy before? A lot of people who have one of these mention star bursting, it is making me wonder if i should go back to my eye doctor again, my vision is supposedly 20-20 but this makes me wonder, Have you had your eyes checked at all since it started? There is a whole lot of information on starbursting if you search it in google, should check it out. It is strange that we even have this because it seems only people who have had some sort of eye surgery or people who have inherited it from their parents have it if im reading the information correctly.

I noticed it the night after drinking but it was everywhere, it gradually progressed to that level over the course of say a month to where it is now, i can't tell if its still increasing or not as it changes due to the time of day. Its fucked. but anyway im dealing with it as best i can. Yeah it doesn't make sense to me either like prior to that, i was drinking for about 9 months into my hppd before this happened and i stopped, i did notice my ghosting appeared while i was drinking but since stopping no new symptoms. Drinking definitley does affect it. Let me know how you go with those supplements, i have been thinking of trying some multivitamins or something but don't know where to start :S I've been paying attention to the people that have started keppra on here recently and it doesn't seem to affect their visuals but who knows everyone is different with this shitty disorder. I'm afraid to start keppra in fear of the side effects like depression, i already have some pretty bad days so yeh...

Your lucky, mate. I have that during the day so every reflection of light from the sun is a massive star burst, car parks are hell, peoples jewellery absolutley everything, reflections from lights indoors appear as two so it creates 2 starbursts, there is no escape for me. Everything is saturated in colour for me as well so like the sky is overly blue, greens are overly green etc. If im facing the direction of the sun without sunnies there goes half my vision due to those rays, if i have sunnies on the "laser rays" become more visible. I also have it at night, but it does not bother me as much, its relief from a full day of it, i have massive auras around light sources and a bunch of pin stripe rays coming off them as well, just be thankful you don't seem to have it as bad as i do, if however it does start in daylight only tips i can give you is SUNGLASSES AND HATS! lol also kinda obvious one but don't stare directly into them, causes massive blotch after images which take a while to dissapear, i find the ones at night cause lots of small after images that flash red to green quickly. Its wierd man, i wish i had a way of being rid of it, it is my worst symptom and like you it appeared over night after drinking but all you can do is try to manage it as best you can.

I got a thread about this shitty symptom, ive had mine since febuary and it hasn't gone away, it seems to be getting slighty worse as of late. Do you also have it during the day?

Had my pupils dialated twice with hppd, Ghosting goes absolutley nuts and you can't read anything close up, rays of light coming off the ceiling. It always returns to normal but i hate having it done lasts like 4-5hours. You might notice as well that if you get something in your eyes, they act the same like it can't process the interference on your eye or something, or when you have dirty glasses on or looking through scratched glass on say a bus window, the ghosting will be more intense