shaolinbomber

Not to hijack your thread Jay but I just wanted to say that my dr started me on Sinemet today and I have to say that this med is outstanding. It combats dissociation like nothing else i've tried before and has me feeling like my old self again. The only troublesome thing about it is that it doesn't last very long but the upside is that you can continue to take it multiple times a day to have a continuous effect from it.

I play call of duty 4 and the other call of duty games a lot. I make montages of all my good clips that i get while I play and upload them to youtube. I usually play with some of the top players in the world so i'd like to think im pretty good at it. Check out my vid and let me know what you think.

I was like this. All gung ho after about 5 months or so of having it. I uploaded and c&p'ed all kinds of articles and information followed by my opinion on them on the old site. I got burnt out after a few months of doing that because I was staying up everynight and reading and posting non-stop. I wish you luck with the career path that you've chosen. I'm putting my hope into the new medication trials that are having a lot of success even with a few of the members on this site.

Well this has me really excited now. To see that so many are having good success with this gives me hope again. I'm going to schedule an appointment with my physician to see if he would be willing to oversee a trial of this medication for me. Do you guys think a Primary Care Physician is qualified enough to handle this or should I go back to a Neurologist?

I hope the low dose approach will work well enough. And good luck with your upcoming stuff. Im crossing my fingers in hope that it will work for you. I'd like to try this med. eventually as well.

How many different medications of this type are there? Also when you say DP=gone. does it seem like reality is what it used to be according to your memory before HPPD? Like when you think back on times before you had HPPD where everything didn't seem so alien and out of place and nothing felt right. Does this medication reverse that?

That is a give away imo. This is my opinion but I believe that this visual effect comes from the enhanced perception of light reflecting off of plants/objects.

This sounds like a huge development for us. Is this the type of drug that can be continued on daily for the treatment of HPPD? And Jay, do please list what kind of effects it has had on your DP/DR (if you have those) and especially the visuals. Thanks.

I'm willing to bet money that the Klonopin is contributing greatly to your brain fog. When I used to take Klonopin everyday, I just wrote off my progressing memory problems as always being there so I didn't feel bad about the Klonopin everyday. Since I've been off of it for 4-5 months now I feel a lot better. I still get very anxious in certain situations but being able to remember what I was doing a few hours ago is great.

Yep. That waving and shifting around is exactly what I get in my peripherals and I hate it. I could only look at that for a few seconds.

This is a terrible drug to take for HPPD treatment. The only time this should be used is to detox someone off of narcotics.

I brought this problem to david's attention about an hour ago. He said he will look at it and try to fix the problem.

Good on you for controlling your habit but at the same time this is terrible news! Lols I cant believe you flushed them. Do you mind me asking what they were? Also, I get very bad headaches almost every single day. The worst ones come on when I go out on a very bright and sunny day. I takes my eyes about 15 minutes to fully adjust and during that 15 minutes I have to keep my eyes 90% closed and even then the light causes my fuckin eye balls to hurt and the pain spreads to the rest of my head. It's no bueno at all.

Any of the research opinions and "theories" that were thought of and discussed on the old board has been posted here by David already.

If they're giving you opiates they will greatly help with the dissociative aspect and also quite a bit with the visuals as well. This, however, is a god send and a curse for people with HPPD. It makes getting hooked on painkillers that much easier.

Yes. Jay put it very well. Klonopin should be an absolutely last resort. I'm lucky in that I dont experience much, if any, withdrawals from Klonopin but it still messes with your memory a lot. due to HPPD I already have horrible memory but the Klonopin will exacerbate it.

Don't eeevverrr touch this drug. I had the biggest living nightmare I've ever had after I tried this. the Dysphoria caused by naltrexone and, not to mention the headaches, was terrifying. Stick to clanzepam if you RREALLLY need some relief.

I think changes in the density or quantity of receptor proteins on neurons due to extreme environmental stressors caused by drugs is atleast part of the problem. If the neurons that are involved in a feedback loop are disrupted then it will throw the rest of the feedback loop off and everything would become deficient. This would affect, as David has pointed out, several different neurotransmitter systems that operate within the loop. This could explain the feelings of dissociation, anxiety, the visuals, etc.

So your dissociation was completely gone? I mean you could actually tell the difference ? Is there any chance you could elaborate further please? I'd really like to know just how effective this was on your DP/DR.

Im very glad to see positive reports rolling in from this. From the looks of it all of the hard work seems to be paying off.

There really is no comparison between the two. Klonopin is an immediate gratification type of drug. Keppra is not. This is why so many people feel "better" on Klonopin. All you're really feeling is an abscence of the anxiety part of the disorder. Im no longer on Klonopin. I decided that taking it everyday for about a year and half was enough. I went CT too and did not suffer much WD if any at all. Also listen to Jay and take the advice of only using Klonopin 2 MAYBE 3 days out of the week. Anymore than that and the theraputic effects will fade and you'll be left with nothing more than a sedating pill. Ive also tried Keppra about 3 times and it did nothing for me at all.

Visual is right on with his assessment of the situation. Nerve cells dont simply die without specific things happening. People who go blind due to blunt trauma to the back of the head is because very high amounts of brain cells have died off. As far as I know...No one with HPPD is blind in the technical sense of the term. The more accurate question to approach the problem with would be "What has changed in my brain to make my vision completely change in a very short amount of time?" I don't have the answer to this question. I dont know if anyone has the answer to it right now. That doesn't mean that very complicated nanotechnology applied to medicine, which is realistically atleast 20 years off from being applicable to everyday people like us, is the only solution. Pharmacology can work by strengthening synaptic connections or by modifying/forcing the brain to make a change in an area that it is lacking specific functions. Hell this is even done without the use of drugs. Soldiers coming home from war that have lost brain functioning due to trauma go through intense therapy to reform synaptic connections in certain regions of the brain that were damaged. It's been scientifically proven that brain cells are exceptionally good at regrowing.

Changes in receptor density was the conclusion I came to a year and a half to two years ago when I was doing nothing but reading reading and reading more about the subject non-stop. It seems as if the generation of receptor proteins during or after a significant drug session to cause enough change in the visual cortex to be semi-permanent to permanent makes the most sense out of anything else. The other idea I dwelled on was cell death, but that doesn't make much sense to me. If a consumed drug was powerful enough to cause apoptosis then I don't believe it would be confined to one specific area of the brain.

+1.

I cannot agree with this. If the HPPD condition is more naturally accurate for humans to perceive their reality then human existence would be miserable right from the start. The only reason I havn't made a real run at killing myself is the hope that one day this can be almost entirely managed or even completely cured without excessive drugs.