Is my vision worsening !?

[xmandiio5x]

Hey guys , here’s a little back story 

 

Okay so, when I was 17 I smoked weed with my friends and had a really bad high. I’m not sure if my severe anxiety of it or the weed actually brought on my visual snow syndrome or what but that’s when I started. My mom took me to all the docs and no one knew wtf this was esp 15 years ago (I’m 32 now) so finally a doc figured it out but there’s obv no cure or treatment so I’ve lived with it for 15 years. It was super mild, barely there but def still noticeable but I just lived my life normally, it was just my normal sight. So then 3 weeks ago when I got a migraine with aura it got really bad. The aura is always scary but having them so often when I was younger I didn’t panic. I had one 5 months ago and felt weird but my vision didn’t get back. Then this one I noticed 3 days later my snow was so bad. I look at the walls and they glitter, things shake, I feel like I’m in a bubble. My anxiety got so bad. I couldn’t eat, sleep, I was in a severe panic attack majority of the day. The doctor upped my Zoloft but that’s not kicked in yet. I started therapy so I’m hoping that helps me cope. I wake up every morning and dry heave because my nerves are so shot. I’m sleeping a tad better but the mornings are so bad for me. I have good days and bad. I know I have to cope and deal with this because it’s forever but I wish it would just go back down to baseline. The other night i has BAD heavy thick snow in the middle of the night but it went back down. Now I’m terrified it’s worse or getting worse. It’s very scary!! i feel like the last few days everything is heavier, the snow and the flickering around everything. Can I just be in a long flare up and the constant anxiety and OCD of checking for the vision is making it worse? If anyone can help me out it give advice I’d appreciate it !  

Sorry for the long post

[help123]

Man,consider yourself lucky you have just visual snow.I have lots of symptoms that are worsening and I have done all the tests you colud think off and nothing came out.I don t know what to do because I am scared that symptoms will get too bad

[jh875]

On 2/18/2023 at 1:48 PM, xmandiio5x said:

I wake up every morning and dry heave because my nerves are so shot. I’m sleeping a tad better but the mornings are so bad for me. I have good days and bad.

Are you eating healthy and getting enough fiber, avoiding alchhol etc? Anxiety can cause nausea but you may also have inflammation in your stomach that is making things worse. There are natural ways to get rid of H. Pylori infection for example which is very common and can be aggravated by stress.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5047973/

Green light therapy boost the endocannabinoid (anti-inflammitory) system, which may help with future headaches and nausea.

Also I would take zinc and some niacin. Zinc and Niacin are shown to reduce nausea after alcohol consumption.

Thiamine also may help as it has antioxidant potential. It can take a few weeks to get used to i though.

[Jay1]

Hopefully it is just a spike, they can last months sometimes (for me, at least).

I got my first aura migraine last year and it scared the hell out of me... I thought i was going into the matrix! Looked like a rip in my whole reality, with green digital visuals showing in that rip. 

[AF44]

On 2/18/2023 at 12:48 PM, xmandiio5x said:

Hey guys , here’s a little back story 

 

Okay so, when I was 17 I smoked weed with my friends and had a really bad high. I’m not sure if my severe anxiety of it or the weed actually brought on my visual snow syndrome or what but that’s when I started. My mom took me to all the docs and no one knew wtf this was esp 15 years ago (I’m 32 now) so finally a doc figured it out but there’s obv no cure or treatment so I’ve lived with it for 15 years. It was super mild, barely there but def still noticeable but I just lived my life normally, it was just my normal sight. So then 3 weeks ago when I got a migraine with aura it got really bad. The aura is always scary but having them so often when I was younger I didn’t panic. I had one 5 months ago and felt weird but my vision didn’t get back. Then this one I noticed 3 days later my snow was so bad. I look at the walls and they glitter, things shake, I feel like I’m in a bubble. My anxiety got so bad. I couldn’t eat, sleep, I was in a severe panic attack majority of the day. The doctor upped my Zoloft but that’s not kicked in yet. I started therapy so I’m hoping that helps me cope. I wake up every morning and dry heave because my nerves are so shot. I’m sleeping a tad better but the mornings are so bad for me. I have good days and bad. I know I have to cope and deal with this because it’s forever but I wish it would just go back down to baseline. The other night i has BAD heavy thick snow in the middle of the night but it went back down. Now I’m terrified it’s worse or getting worse. It’s very scary!! i feel like the last few days everything is heavier, the snow and the flickering around everything. Can I just be in a long flare up and the constant anxiety and OCD of checking for the vision is making it worse? If anyone can help me out it give advice I’d appreciate it !  

Sorry for the long post

This is a year late but I’m very interested in your experience. (BTW, I’m guessing you eventually went down to baseline? ) So. My youngest son has had migraines since he was fairly young (he is now 16.) They run in the family, my mom has them, I do, my other son, etc. He now has HPPD (which is devastating to me. I can’t even believe it.) I’ve talked about this to Jay a lot and he has helped me so much!  Quick story: last Halloween I sprayed his hair with 3 cans of pink hairspray. He has extremely long hair. I didn’t even think to open a door or window, we were in the living room with towels on the floor, and I was in a big rush because people were coming over. The fumes were horrible! We were even joking about it being like Raid. That evening and the next day he told me that he saw all this static and that things looked like they were warping, etc. and I internally freaked out. His symptoms got so bad he almost did not pass the 10th grade and had to do a hybrid program through his high school. I knew he had smoked pot in the past and one time experimented with cough syrup. Not long ago we talked about him having HPPD. He knows what it is because I have it, though I never went into any detail ever, but I’m sure he’s heard me talking about it with my husband. I blamed myself for AGES about that hairspray, even though Jay told me not to focus on that and not to blame myself. Well, we were eating at DQ one day, talking a bit about it, and I simply and calmly explained what was going on with him. (Unbeknownst to me, he thought he had a brain tumor and was scared! Poor guy ) Well anyway, he then mentioned that he had these symptoms before the hairspray debacle, but they weren’t as bad as they are now. I did not know that! So I’m wondering if either those crappy chemicals made it worse, or if the crappy chemicals caused him to get a migraine, which tipped him over, like what happened to you.