ddiddy66 Posted January 21, 2016 Report Share Posted January 21, 2016 I want to try Keppra. What can I say or show my doctor. I'm assuming he or she won't know much about HPPD. Link to comment Share on other sites More sharing options...
umit Posted January 21, 2016 Report Share Posted January 21, 2016 Where you from? Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 21, 2016 Author Report Share Posted January 21, 2016 California Link to comment Share on other sites More sharing options...
Mr.50's Posted January 21, 2016 Report Share Posted January 21, 2016 I'm in Cali to, I showed my neurologist the keppra study which she read and said "keppra is very well tolerated so I feel comfortable prescribing you it for this" you have to see a neurologist to have it prescribed for this though Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 22, 2016 Author Report Share Posted January 22, 2016 thanks your right. Mental health just told me they won't prescribe it to me. Now I have to hope my doctor will refer me to the neurologist. I have a phone appointment tomorrow. Any advice on what to say? Link to comment Share on other sites More sharing options...
Mr.50's Posted January 22, 2016 Report Share Posted January 22, 2016 If it's a regular doctor DO NOT TELL THEM ABOUT HPPD, I tried to explain it to regular docs and they simply CANNOT grasp the concept no matter how you explain it. "You may be developing a mental disorder" lmao. I told my doc I've been having headaches for a while and would like to see a neurologist about it, simple as that. Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 22, 2016 Author Report Share Posted January 22, 2016 thanks so much for the reply. I'm gonna take your advice Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 22, 2016 Author Report Share Posted January 22, 2016 Doctor wouldn't refer me. He wants me to go to the eye doctor and some blood work then come in to see him. Anyone know a doctor in Californis Bay Area (San Francisco) who is familiar with HPPD? Link to comment Share on other sites More sharing options...
TheGman6072 Posted January 22, 2016 Report Share Posted January 22, 2016 You should see a drug specialist. You should find one that would know what HPPD is. My appointment was with an adolescent drug specialist and they all know about HPPD and stuff like that. An eye doctor probably won't help much since there likely isn't any physical damage to your eyes Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 23, 2016 Author Report Share Posted January 23, 2016 thank you gman. i agree. thats why I'm asking if anyone knows a doctor near me. Link to comment Share on other sites More sharing options...
Mr.50's Posted January 23, 2016 Report Share Posted January 23, 2016 Ddiddy a drug specialist isn't gonna work, I had shit insurance yet my doctor still refereed me to a psychologist. I would go pay for one and skip the doc or go through with everything your doc wants you to do and keep bugging him for a neurologist referall Link to comment Share on other sites More sharing options...
TheGman6072 Posted January 23, 2016 Report Share Posted January 23, 2016 A drug specialist can't prescribe shit but they will understand and know what you're talking about and can refer you to a neurologist or psychologist who can prescribe meds. They are going to refer me to a neurologist and they are open to Keppra Link to comment Share on other sites More sharing options...
VisualDude Posted January 23, 2016 Report Share Posted January 23, 2016 Sometimes you can find a PA that specializes in psychiatric meds. It sounds odd but they can be quite flexible for trying things. Since Keppra is specifically an anti-seizure med, some docs won't off-label prescribe. So you need someone willing to off-label prescribe stuff. BTW, off-label prescribing isn't a big deal. For example, Tagamet is for stomach problems, yet they found out that it can be helpful for warts so some doctors prescribe it for that. Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 23, 2016 Author Report Share Posted January 23, 2016 thanks guys. I'm gonna do both. Going to see the doctor on Feb. 2 after I give blood and get eyes checked. Meanwhile I'm gonna look for a private doctor too. Link to comment Share on other sites More sharing options...
ddiddy66 Posted January 27, 2016 Author Report Share Posted January 27, 2016 continuing to do what my doctor says in hopes of eventually seeing a neurologist and getting Keppra.got my eyes tested (healthy) and blood drawn. next step is going to talk to the doc Feb.2 Link to comment Share on other sites More sharing options...
ddiddy66 Posted February 2, 2016 Author Report Share Posted February 2, 2016 i cant believe it. my primary care doctor has heard of hppt. he said that hes probably the only one in the hospital who knows what it is. he was a little hesitant but he prescribed me Levetiracetam Link to comment Share on other sites More sharing options...
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