OldSchoolAr Posted October 20, 2015 Report Share Posted October 20, 2015 I was just suggested this by a Docter in the U.S. that i sent an email to this is his profile http://www.mcmp.purdue.edu/faculty/?uid=drdave This is the letter i sent Dear Dr Nichols, I'm a long time sufferer of HPPD (hallucinogen persisting perceptual disorder) I was curious if have you herd of the disorder? With all the work you do there is a possibility you may be able to help us understand it more fully and a possibility of being able to treat it. It would be great to hear from you! Many thanks Kind regards Its quite funny, i always get a reply from the Top experts" when i refer to them as "Dear" LOL anyhow.. here is his reply: Yes, I know of HPPD. My thinking was that it was perhaps some sort of seizure disorder that was localized in the visual cortex. That is just speculation, but there are two reports that it has been successfully treated using the antiseizure drug known as lamotrigine, which would be consistent with that idea. DEN Has anyone tried this on the board? Link to comment Share on other sites More sharing options...
OldSchoolAr Posted October 21, 2015 Author Report Share Posted October 21, 2015 he also replied with this : You might ask Dr. Abraham about a prescription for Lamotrigine. The papers appeared in European journals, so I don’t know whether he is aware of it. It is a fairly innocuous medicine, so you could see if it helps you. DEN Link to comment Share on other sites More sharing options...
Kellen Posted October 21, 2015 Report Share Posted October 21, 2015 See two posts below Link to comment Share on other sites More sharing options...
Mr.50's Posted October 21, 2015 Report Share Posted October 21, 2015 Emailed him today but I have a question, can he recommend a medication for my neurologist to give me as in would they listen to him? And would I be able to ask dr.abraham for a suggestion for a medication to show my neuro without having to pay him Link to comment Share on other sites More sharing options...
tlehmbecker Posted October 21, 2015 Report Share Posted October 21, 2015 I've been on lamotrigine going on what, 8 or so months now? Anyways, it hasn't done much in the way of improving HPPD or anything for that matter. However, after a few meetings with psychiatrist, he believes that in addition to HPPD and the 3 other disorders I have (panic disorder, major depressive disorder, "mild" schizophrenia) I may also have temporal lobe epilepsy after I described to him sudden, unprovoked "blackout" periods where I would be in a profound state of consciousness where I was aware of myself, but not of my surroundings and I would experience incredibly vivid "visions". I also described to him normal blackouts where I would just blank for 30 minutes or so, come back, and be incredibly disoriented and confused for a good few minutes. He said these were consistent with temporal lobe epilepsy symptoms and upped my dose of lamotrigine from 200mg to 300mg and referred me to a local neurologist specializing in seizure disorders (perhaps this neurologist knows about HPPD). So, the new dosage may be beneficial, who knows. I'm also hoping the neurologist will do some scans such as an EEG/qEEG, SPECT, maybe a few others which will hopefully shed more light on this. Link to comment Share on other sites More sharing options...
OldSchoolAr Posted October 21, 2015 Author Report Share Posted October 21, 2015 See two posts below Thanks Kellen i did.. Sorry to hear of your horrible side effects. Sounds nasty. I just thought they may have been two different Meds because of the differences in spelling i.e Lamitrogine and lamotrigine Emailed him today but I have a question, can he recommend a medication for my neurologist to give me as in would they listen to him? And would I be able to ask dr.abraham for a suggestion for a medication to show my neuro without having to pay him Ok well done for making the email.. as far as recommending a med.. well he just recommended lamotrigine as number 1 for HPPD from His perspectiveYou could use the email he sent me to give to your Neuro.. as a recommendation or wait until he gets back to you personally. ho likley best to discuss with your Neuro... Tho..If Kellen member above ^^ is using the same med.. then there maybe be some side effects. Tho kind of supprized because he said to me there were very minimal side effects, and that others have had success with it that has been documented. Im just wondering if its the same med..... ? anyhow Im pretty sure Dr A would do that for you... tho i could be wrong. Likely it would be best for you to email him explaining your situation and ask him, you Can contact him via his web site.. Link to comment Share on other sites More sharing options...
OldSchoolAr Posted October 21, 2015 Author Report Share Posted October 21, 2015 @ tlehmbecker Sorry to hear, that sounds very difficult. Thanks for sharing. I do hope you find some improvement of your symptoms soon! Link to comment Share on other sites More sharing options...
Jay1 Posted October 21, 2015 Report Share Posted October 21, 2015 Lamotrigine = Lamictal Did nothing for me, unfortunately. Link to comment Share on other sites More sharing options...
OldSchoolAr Posted October 21, 2015 Author Report Share Posted October 21, 2015 Ok good to know.. unfortunate it did not work.. Cheers.. Link to comment Share on other sites More sharing options...
K.B.Fante Posted October 27, 2015 Report Share Posted October 27, 2015 I went on Lamotrigine for about three weeks and it made my symptoms significantly worse. It sounds like it works well for some people but it certainly didn't for me. Everyone's body chemistry and HPPD are vastly different so it's tough to say what works and what doesn't. Link to comment Share on other sites More sharing options...
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