NRFAdmin

The moderators of the rHPPD board on Reddit have banned me and will not allow any discussion involving the Neurosensory Research Foundation. This research project has been a labor of love that was wrought out of blood, sweat and tears over the span of 12 years. Why the moderators deny to recognize this is a mystery to me.

@Hall89 Yes, that is the link to the study. Details have not been released as it is still pending approval from the IRB. How did you find that link?

The NRF is on the cusp of the first in depth research study into HPPD which will require funding and participants. Basic information can be found here: https://www.neurogroup.org/hppd-research-study/ I highly encourage every board member to take the time to volunteer and enlist. In order to enlist, please access this link: https://www.neurogroup.org/the-foundation/register-with-the-nnrf/ The results from the first phase of the research will ultimately lead to other sites around the world. Having a database at hand of patients delinated by countries and cities will expedite future recruitement efforts and quicken research. The NRF, since it's inception in 2012 has worked tirelessly to bring HPPD front and center to the attention of Physician Researchers. Now the time has come for you to do your part. Enlist now and help us find a cure for HPPD! Please share this post on any and all social media accounts. Thank you

We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure.

That team was finally assembled. Took 8 years...

I need a Grant Writer. If anyone on this board is interested to help the Neurosensory Research Foundation (www.neurogroup.org) with the required skills, please contact neurogen00@gmail.com Thanks