josht9210

I read that it can be dopamine related and helped with Tolcapone and Levocarb

Being born with hppd is called Visual Snow Syndrome my good sir, they share pathologies. 

Common symptoms are noticing the ones you stated + anxiety disorder of some sort. Stress, anxiety and drug use probably just exasturbate the symptoms until its full blown hppd and your brain filter is destroyed

1 hour ago, Kalo said:

I recently developed HPPD and have had a ton of trouble sleeping, so my doctor recommended I try a dosage of one 3.5 mg Zopiclone tablet per night. For the first time in a couple weeks or so I managed to get more than 3-5 hours of sleep (got around 9 hours of sleep) and felt refreshed the next day; the next night went smoothly as well. However I can notice my visual symptoms feel worse than usual. I was wondering if there are others on here that have had similar experiences. Should I stop taking the prescription altogether? Is there any conflicting side effects known with HPPD and Zopiclone that I should be concerned about?

I don't wanna advise you on which medication to use, however if I was you I would use a sedative that actually has been studied for hppd, I don't know if that one has but you should look it up. There are many sedatives out there, some are better for hppd than others. I know clonidine is a sedative/antihypertensive, so it will make you tired and lower your blood pressure also said to have helped lower hppd symptoms and anxiety. Be careful if your bp is already low though. It works on a2adren receptors so it basically lowers your adrenaline production, which You could imagine how that could make you feel.

Lmk if you make it to the west coast.

Does this apy yo visual snow as well? I have hppd but I mean the pathology is so similar.

Can someone get him to come back and update? @Jay1 @David S. Kozin I'm really curious to see where this lead him.

Theres a lot of studies out there about the effects of hormones on neurotransmitters...

Dht alone is very powerful for your sense of well being.. I have been injecting Drostanolone (masteron) bayer has a version not fda approved called proviron 

Progesterone is a natural anti convulsant and effects gaba etc.. 

I have access to many hormone derivatives and I am willing to expierement on myself, so far testosterone + dht has been quite interesting, I am still on paxil and this will be the first time in 10 years I've introduced a new medication (test/dht) so when i notice things they have been quite profound.

There also have been recent studies when applying testosterone to women wanting to become men, how it effects the receptor sites. It was observed to INCREASE the SERT of receptor sites. Which allowed more seretonin to go across stream, this has been hypothesized why women are twice as likely to be more anxious than men.

This was very sad to read, 100% a case of schizo, I hope he gets help. Catching and medicating it early can save a life.. I was misdiagnosed with shizo when first explaining my symptoms (none of them were like his trust me lol) and one thing shizos do is not admit there schizo (when they told me I was I trusted them and thought they knew). Mind reading and tv communicating are 100% symptoms of schizo... Very sad to see

Get on meds to lower anxiety and stress, you lower those and your symptoms will lower (I say this from 10 years of hppd), they will still exist but you'll be too distracted with real life.

On 12/13/2018 at 8:45 AM, VisualDude said:

Wondering if anyone has experiences relating to neurosteroids ? 

Neurosteroids are just hormones and hormone metabolites that influence brain function.  To illustrate: estradiol levels affect memory, testosterone enhances goal orientation and focus, the DHT metabolite 3α-Androstanediol is know to have "rewarding, anxiolytic, pro-sexual, and anticonvulsant effects" https://en.wikipedia.org/wiki/3α-Androstanediol

The topic CAN be an IS complicated.  Here is an excellent text regarding neurosteroids and seizures: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3728472/  .  Of course its relevance here is that HPPD is a constant pre-seizure state and HPPD at times responds to GABA alterations and neurosteroids actually modulate and can activate GABA receptors but don't loose effectiveness such as taking a benzodiazapine does.

I PROPOSE THAT THIS IS A KEY AREA OF RESEARCH THAT HAS NOT BE EXPLORED FOR HPPD.  Certainly hormone manipulations, particularly DHT and DHT derivatives substantially help my visual issues and other issues.  DHT is not only a "positive allostatic GABA modulator", it also has strong influence with D2 receptor function (a personal nemesis).  This subfunction relates to reading social cues and I suspect may related to DP/DR.

Now rather than make this complicated or get hung up regarding the technicalities of the subject, it comes down to does anyone notice effects from medication or changes in:

1. Estrogen
2. Testosterone
3. DHT
4. Progesterone
5. DHEA
6. Cortisol
7. Oxitocin
8. Finisteride
9. Anastrozole

The list is not exhaustive but these are major players.  Here is a bigger list https://en.wikipedia.org/wiki/List_of_neurosteroids

Thank you for your paticipation

I had all of those tested an am currently injecting testisterone and dht, lmk if you came up with anything. I can get access to caber as well. Update us on.any progress in regards to this.

On 6/13/2019 at 6:08 AM, facesofhppd.com said:

I wanted to share some information that may help visual snow sufferers. My son (who has lived with HPPD for 5 years now) had standard blood lab work done which revealed he had a low count for testosterone.  This, of course, has various medical implications and treating it is important.  He was placed on a bi-weekly treatment of intravenous testosterone to increase the count. 

An unexpected outcome was discovered.... within hours of getting the testosterone, his visual snow cleared to a significant degree.  It lasted for weeks.  

There is currently no research on testosterone and its effect on visual snow.  Not sure if what happened to Kevin is an anomalie, or there is something here worthy of further study.  Just thinking it might be worthwhile for others to check their blood levels and, if low, ask the doctor for supplementation and see if visual snow symptoms improve.

Hope this information helps someone!

Doreen Lewis, PhD

Placebo, testosterone cypinate does not fully stabelize in the blood stream until 6-8 weeks. Let me know how it goes. I'm currently on testosterone and its only increased my anxiety thus increasing.symptoms