Lucas

Basically it allows to either inhibit or desinhibit specific parts of the brain for the long run.

I know a french guy who did it on his occipital lobe and it cured his HPPD 100%.

Another one will soon follow the treatment, I hope he gets better.

Any experiences with this ?

19 hours ago, Onemorestep said:

The last time I accrued hppd my biome test mentioned the word “war zone” about my gut. Viral loads. Fungi. Mold. Inability to process proteins correctly. They suggested 200 different lifestyle and supplements. I am going to do it again and expect it to be different. 

 

I think it is easy to do a drug, while something simultaneously happens that causes a neurological event, perhaps helped to be spurned on by the drug, but also perhaps not at all. Then, the brain, damaged and disordered from the event, cannot tolerate any drug now. You try a drug again, and it makes you worse, you assume the drugs are the root cause. It seems logical, but maybe you didn’t notice the glass you shared that night with a friend who had visited a foreign country, or the Amazon product you took you thought had proper COAs but… like most… are not good. I can link products with lead in them on Amazon rn with 4.5 star reviews.
 

many patients with brain disorders cannot use drugs. This doesn’t mean drugs caused them. It also doesn
 

Before anyone pops off this doesn’t mean you can do drugs, obviously, if you read that paragraph. 
 

our brain were simply not made for drugs. But they also are not made for the 80,000 new chemicals introduced into our environment by the fda since 1990. Anyone else notice everyone young getting sick? I do. Half my friends have autoimmune diseases and they are in their 20s. One of my families employees just died of cancer at 26. 
 

10% of us homes have very toxic levels of mold in them.

 

antibiotic use is rampant.

 

we eat a credit card of plastic every year.

 

our brains can’t handle a lot rn. A lot is being thrown at all of us. It’s a very sick planet rn. It’s a sad state. 

if there is a root etiology to hppd, all I can say is it’s going to become more prevalent because every individual at risk will be way more at risk. 
 

you don’t have to do drugs to get hppd. Just throwing that out there too. 

Yep, that's why for a while now I thought about going on a healing retreat in a remote location, fasting, meditating, exercising and sleeping. And after that have a healthier lifestyle than I do now.

A bit like when you're used to hot showers and take very cold ones for a bit, switching to warmer showers afterwards is very easy.

Hey, sorry that you suffer from this. SSRIs are know to cause HPPD sometimes and to exacerbate existing ones.

If it's any help I had the "reverse" thing : I was on an SSRI for some months and took an anticholinergic after and bam ! HPPD

Indeed it's weird that Clonazepam didn't help, maybe it's something common for people who got HPPD from antidepressant ? 

Anyways if I were you I would stop all drugs, I didn't and I believe it really got in the way of any possible recovery.

Good luck be strong things get better

I'm very sorry for you that sounds really painful, if this is any help CBD oil works great for me to help fall asleep

On 7/23/2021 at 2:09 AM, cleanmcsween said:

how severe were your symptoms? ad what are they like now?

@cleanmcsweenI was a zombie, I had very strong visual snow, blurred vision, fatigue, awful head pressure, heavy brainfog. I was sleeping 14 hours a night minimum. Can't focus on anything. Strong pain in my left eye and eyebrow. Dry eyes and mouth with red eyes, hypersensibility to drugs... Now 4 years later it's gotten better and the only symptoms that really still bother me is the headpressure and accompaying brainfog with dry eyes still but less severe. + ofc i have all the classic visual disturbances, halo, afterimages, trails, patterns etc... but you understand that they are pretty minor related to the rest, those were never the symptoms that bothered me, they are just reminder that my brain is fucked up lol

Thanks for updating @Blossyand glad to read that things are going better for you, you convinced me to try Niacin. Any particular brand you're taking or is it something we can buy at a pharmacy off the counter ?

And I agree that the less time spent thinking about HPPD and symptoms the less invasive they feel, which sounds obvious writing it lol 

On 8/1/2021 at 4:04 PM, Hall89 said:

The head pressure and brainfog is completely gone, most likely thanks to Lamotrigine. My worst symptom today is the disgusting visual snow and derealization that varies in intensity day to day. God i hate this shit.

For how long did you suffer from brainfog and headpressure before taking lamotrigine ? 

And how long did you take it and what dosage to see this effect ? 

Please answer as I am desperate to find somethign to relieve head pressure I would be willing to give lamotrigine another try...

Yeah I have this and it is worse when I use dark mode (white letters on black background), sometimes it happens while I am reading and can be very distracting.

4 years and half in and things get better with time, first two years were really hard for me too. 

Really try to be sober man I was being reckless with drugs and alcohol and it definitely got on the way of my recovery.

Yeah my appearance changed since HPPD because I look tired as I sleep bad, and I have dry eyes now so I often look like I just smoked a joint and I don't look good this way lol, eyes are small and make me look old.

It bothers me but what can I do, sometimes my symptoms randomly get better for a few hours and the change in my face is notable, I look like the "normal" me. When this happens my GF who met me post-HPPD often comments on how big my eyes are lol

But like other said most people even close friends don't think I've changed at all which is weird, I feel like 50% me

To answer your question : yes HPPD changed my appearance and I can get self conscious about it 

I'd be willing to try Niacin and keep a journal if the results interest you Fawkinchit.

Vitamin B3 sounds pretty safe... right ?

Franchement les médicaments m'ont jamais aidé pour ce symptôme à ta place j'essaierais juste d'être sobre bien manger bien dormir etc... C'est pas ce que tu voulais lire mais bon c'est mon expérience et j'ai le même symptôme que toi.

Ah ouais et essaye d'écrire en anglais sur ce forum si tu veux qu'on te réponde

I think it was 2mg not 6 (which would be colossal). I think most people dont want to try cause you run a very high risk of addiction with this regiment and then have your life ruled by withdrawal and taper off afterwards...

Not even talking about the amnesia this would likely cause + IME being too dishinibited all the time can lead to some social situations that seem fine on the moment but in retrospect were pretty awkward or where you said or did innapropriate things without realizing.

It may be milder than some but still very imparing, quality of life down by 50%.

I think as long as it creates distress it can be considered as HPPD : a chronic disorder caused by an hallucinogen.

On 4/18/2021 at 1:16 PM, Onemorestep said:

You must reduce brain inflammation! Ibudilast is the safest thing i've found for this right now.

How could one get his hands on this medicine ?

18 hours ago, swissman123 said:

Hey man, just curious to hear what you've found out so far? Have you tried it out?

My symptoms are mostly headaches and weird tingly/numb sensations in the head. Wondering if this might help...

Same as you, leaving an answer to be updated.

Hey man,

Your symptoms are very similar to mine and I think you do have HPPD despite no visual symptoms, I'm French too if you want to talk in private messages I'd very glad to.

These are my worst symptoms too, they've been gradually getting better.

I'm 4 years in and very much still impaired but it's still way better than the first year when it was really extreme.

How long have you had the pressure and fog ? 

Hi, wondering if you guys experienced something similar with one or more of your symptoms ?

I'm roughly 2 months sober and eyelid and facial twitches have come back after having disappeared for at least a year.

That makes me thinks that being sober at least has an influence on the brain ? I think it's a good thing but that very well be wishful thinking and those twitches are maybe indicative of nothing good.

Basically have you had symptoms disappearing for a relatively long time and come back for seemingly no reason ? and if so how has that turned out for you ?

Sorry for broken english 

On 5/18/2021 at 7:57 PM, Onemorestep said:

I think 2mg is worth a shot if someone wants to do it. I wouldn’t cold Turkey it though. Even a few days is enough for some people to feel tolerance and withdrawal especially if they’re brains are already weighted towards glutamate vs gaba. 

What do you mean by that ?

I get withdrawal after more than 2 days of using along with pretty bad memory issues, does that mean something regarding glutamate vs gaba in the brain ?

No it's my bad, I say "HPPD" but I don't have strong visuals or anxiety, I share a lot of symptoms but the main ones are visual snow, dry eyes, cognitive and memory impairment and chronic pain... All brought by nutmeg. But MDMA is what gave me after images and visual snow in the first place.

So I think our situations are kind of reversed, and the visual snow you got from DXM may be a milder expression of the syndrome I experience from nutmeg, both being anticholinergic.

Yeah dude I got HPPD pretty hard from nutmeg which is similar in action in the brain to DXM and cold sneezing pills

Hey guys,

I've been on Keppra for a little more than 3 months now, 1250mg a day at the moment with a 1500mg goal but I started to notice that my hair are falling out when I pass my hand through or when I take a shower...

I feel like the Keppra is slowly improving my symptoms however, especially brain fog.

I'm 23 so it may seem superficial but I'm a bit alarmed by this lol

Apparently zinc supplementation can help with the hair loss induced by Keppra and I'm lucky enough to have some on hand so I'll see if it has a positive effect or not.

I will update this post in case somebody has the same issue and I'm curious to know if any of you guys has had the same side-effect from Keppra.

Hey, I too can fall asleep despite symptoms and wake up feeling like I didn't slept, what I often tell my friends is my body feels like I've been in a fight last night.

Benzos seems to work for me and CBD too.

Did you notice that being very sleep deprived actually make your symptoms better ? 

All I can say is that I indeed got HPPD from a non-classical serotoninergic hallucinogen, so there's that.

But Reddit is reddit, you can almost always find every answer possible ton any question and with HPPD being so diverse I'm not sure this sub can help out more than just confort yourself knowing you're not alone...

Just my 2 cents