OldSchoolAr

It sounds exellent.. Im a very wholistic.. my hppd has forced me to be.. Im Intrested in Bio - Energetics http://www.amazon.com/Bioenergetics-Revolutionary-Therapy-Language-Problems/dp/0140194711/ref=sr_1_1?ie=UTF8&qid=1440145265&sr=8-1&keywords=bio+energetics This is something i want to and will pay more attention to, and start to incorperate it as a discipline into my daily routine. Even Bruce Lee was a practitioner of Chi Kung.. as well as this is a good book on Chi Kung http://www.amazon.com/Awaken-Healing-Light-Mantak-Chia/dp/0935621466/ref=sr_1_2?ie=UTF8&qid=1440145369&sr=8-2&keywords=healing+light+of+the+tao there is a popular guy on U Tube - Elliot Hulse.. he is an advocate and teacher of Bio Energetics and Chi Kung.. He is always telling people to "Breathe into your Balls" As far as i am aware , beep breathing activates the "relaxation response" instead of "figh or flight" (stress response) Many benefits.. Good post, thanks for shareing!

Hey Lathargic Acid Thanks.. Im quite suprized also, how cool :-) Im really looking forward to recieving what he has to say too. Pretty amazing stuff :-)

I Shared your Post LethargicAcid with With the Grof Foundation: This was there Reply :-) Thanks for sharing this with me. Interesting stuff being discussed in the forums. About Stan's comments, LSD Psychotherapy was published in 1980, quite some time ago, and based on Dr. Grof's carefully controlled treatment approach that emphasized set (preparation, intention) and setting (safe space, qualified support) as critical for the work. Not the kind of use that is that you had, or that most others have. It will be interesting to see how he responds to this subject now. 35 years is a long time, and there has been a lot of experience since then. He does not like to generalize, since each person is different, so I will make sure that he is okay to publish something on the list that may in fact apply just to you, and ask you not to publish it without permission. Okay? Fond Regards,

these are the questions i recieved from the Groff Foundation along with my answers.. its kind of personal, tho my identity is concealed Shareing is likley a good thing. Maybe others may have similaritys in answers to there questions. When you say quite young, how young was that? Way too young. Likely 13 years old. It was with the influence of my older brother who gave me my first use of LSD. He led me in the wrong direction. Although people get HPPD from using LSD at any age and also they can get it from taking just one trip. The onset of HPPD was around age 15 years. How old are you now? I’m 38 years now. What do you know about the dosage and purity of what you took? I don’t know anything about the purity. It was just standard LSD tabs, “red dragons”, “Robots”, “Microdots”, Mushrooms etc., etc. I have also used DMT once. Was this multiple times, or just once? Multiple times (many) were your symptoms of persistent visual distortions from the beginning, or started later? If they started later, was there anything happening in your life at that point that you think may be related or triggered something? I had Persistent visual distortions from the beginning. I cannot recall anything significant happening later. Basically I had taken some acid, I had been up all night, and was tripping during the day. As far as I can remember, the trip was traumatic “bad” towards the end. As far as I can remember, I may have taken some Valium to help me sleep or to “nock myself out”. Upon awakening, I can remember saying to a friend, I can still see all the same visuals, and that was the onset of HPPD for me. If there were other people with you during the initial experiences who also participated, did/do any of them also have HPPD symptoms or other difficulties? None of the others had HPPD or related difficulties. what have you tried so far to clear the symptoms? Which things you have tried seemed to help some (and if so for how long), which did not help but made it worse, and which were neutral? I have tried many things to clear symptoms. Meditation (meditate 1 hour each day) many types, currently doing Bi-Neural beats, in an attempt to establish new pathways please see www.centerpointe.com This may be helping in some ways, especially stress levels and way I respond to it, activates relaxation response and strengthens “the witness”. Stress seems to worsen HPPD. Yoga in India with great saints / masters. See Link: https://www.youtube.com/watch?v=Pa314Rw-jao Faith in the Divine, whatever that is for the individual helps. Various Yogic tequniques.Basically just the correlating health benefits Shamanic work, see http://www.sotems.com.au/ Transpersonal work and Counselling, see http://www.ikoninstitute.com.au/courses/transpersonal-counselling Some Breathe work, Sweat Lodges. Trained in specific energy work, India also: this one focused on Neuro-Biological changes to the brain thru transference of energy, so it was attractive to me at the time. (Neutral) Some medications, Clonazepam, Keppra, Sinamet. Clonazepam seems to take the edge off it slightly. Also the same with Valium. Though the problem with this is that it’s highly addictive and turns me into a bit of a zombie. I am 100% medication free now. Lots of personal development etc. When I’m in “high states” from meditation, it seems as though I may get some relief from it, similar to transcendence. Temporarily, maybe for a few hours. This occurs when I’m feeling “happy.” Keppra likely made it worse. Caffeine and stimulants make it worse. When I enter a dark space makes it worse. It is worse at night time. With the personal development work etc. Managing and learning to master my own emotional state is helpful, though does not take away fully. Although when I’m in a peak emotional state, I would say there may be times when I do not notice it. For example: I have been into elite fitness, lifting weight. Possibly at those times that require so much focus i.e. lifting heavy weights, I may not notice at that time or get temporary relief possibly. Also building up my physical body has benefits. Feeling good about myself etc Tho i have now done this to a point that i have injured myself quite badly with torn tendons. I think the discipline of Natrual bodybuilding was my way of Hideing My HPPD from the world and a type of avoidance stratergy, so i dont have to deal with it, and people on some level. Any stressors to the central nervous system seem to make it worse. Lack of sleep makes it worse. Stress makes it worse. Obsessing about it / thinking about it and reading about it on the Internet makes it worse. I would like to try these glasses soon and see if they may help Irlen Diagnostic Clinic - Buderim, Sunshine Coast QLD Irlen Diagnostic Clinic - Buderim, Sunshine Coast QLDDYSLEXIA Problems Solved Is your child a poor reader? Are words and lines confused? Is there difficulty copying off the blackboard? Are they worried by... Headaches Glare Sore Eyes View on www.irlenclinic.com.au Preview by Yahoo Can you describe which particular distortions you are experiencing, and which ones of these are more-or-less always there and which come and go (if there are some that come and go)? All the visual distortions are basically, always there, unless I have temporary breakthrough as mentioned above. Colour distortion, movement, visual snow, halos around objects. Basically all of the visual phenomena. I have all the visual phenomena of hppd below taken from Google: There are a number of perceptual changes that can accompany HPPD. Typical symptoms of the disorder include: halos or auras surrounding objects, trails following objects in motion, difficulty distinguishing between colors, apparent shifts in the hue of a given item, the illusion of movement in a static setting, air assuming a grainy or textured quality (visual snow or static, by popular description, not to be confused with normal "blue field entoptic phenomenon"), distortions in the dimensions of a perceived object, and a heightened awareness of floaters. The visual alterations experienced by those with HPPD are not homogeneous and there appear to be individual differences in both the number and intensity of symptoms.[citation needed] Visual aberrations can occur periodically in healthy individuals – e.g. afterimages after staring at a light, noticing floaters inside the eye, or seeing specks of light in a darkened room. However, in people with HPPD, symptoms are typically persistent enough that the individual cannot ignore them.[citation needed] There is some uncertainty about to what degree visual snow constitutes a true HPPD symptom. There are many individuals who have never used a drug which could have caused the onset, but yet experience the same grainy vision reported by HPPD sufferers. There are a few potential reasons for this, the most obvious of which being the theory that the drug usage may exaggerate the intensity of visual snow. Another theory is that instead, there may be no change in the severity or magnitude of the visual snow, but perhaps the drug usage opens sensory pathways that result in the individual becoming more aware of any visual disturbances that may have simply not been noticed before the incidence of drug use. As for root cause of visual snow, some theories suggest that it is the result of thermal noise in the visual cortex or in the 'Optic Pathway' (encompassing photoreceptor cells on the retina, the optic nerve, and the optic chiasm[1]), as eye tests for individuals who experience visual snow often reveal that physically, the eye is perfectly normal, and in many cases the individual still maintains 20/20 vision. HPPD usually has a visual manifestation. Drugs affecting the auditory sense, like DiPT, may produce auditory disturbances, though there are few known cases. Some psychedelic drugs can produce temporary tinnitus-like symptoms as a side effect.[2][3] It also should be noted that the visuals do not constitute true hallucinations in the clinical sense of the word; people with HPPD recognize the visuals to be illusory, or pseudohallucinations, and thus maintain the ability to determine what is real (in contrast to some mental illnesses such as schizophrenia).[4] HPPD Visuals are a lot more amplified in the dark. At this time, given the time since they began, would you say that the intensity of your symptoms is decreasing, staying the same, or increasing as time goes by? Likely staying the same. Except for the way I manage it, as the threshold for what I can handle is higher; likely this has come about through meditation. So the way I respond to it is different. Sometime I feel I am making progress when I’m most engaged in life and have other aspects of my life “working.” i.e. career / relationships etc Maybe sometimes there are some improvements with all the work I’m doing on myself. I would like to fully investigate the area of Neuro-plasticity and apply various tequniques to my own life, I’m not sure if this would help? Is there anything else about your general health that you think could be relevant? No not that I can think of. How has your condition affected your life? that is, which things you want to do or need to do are difficult or challenging or impossible because of symptoms? My focus is not as good. It is difficult for me to achieve one pointedness because the visuals are there. I’m a very capable human being. It is just temporary while I get things back on track. I left school at year 11 because I did not know what was happening. I went on to do a diploma in transpersonal counselling, though did not quite finish at the time due to a possible “secondary gain.” At present I’m working on various business projects and in training as Hypnotherapist. This has made my transpersonal / spiritual practices more challenging as I have the HPPD to contend with at the same time unfortunately. It’s like I can do everything and everything, although it’s not the same, because I have the additional “world” to contend with, at the same time. Which makes many things more challenging and it can be exhausting. People with HPPD tend to isolate themselves a lot. I do "hope" i have coverd everything. I am always happy to share more, and always open to skype if you feel it would be beneficial. I would love to hear about any suggestions you may have. Im willing to jump right in and give anything a try.

Ok this is really intresting. Great find! i have done breath work before tho not Holotropic yet.. I am curently in dialouge with the Groff Foundation.. and have just answered about 20 questions from them, relating to my drug use that lead to HPPD and onset of HPPD, symptomology, duration, what i have done to try and get it better etc etc etc... The answers will be send to Stansilov Grof , He will then reply with his thaughts and recomendations etc.. Maybe i can post the response here.

I just discoverd this Video on U Tube and thaught it was quite good :-)

thanks for shareing.. maybe the stress of your cononcussion contributed to a flare up of your visuals.. If your visuals were subsiding before, id feel confident that they will do again. Possibly just living a really active, fully healthy lifestyle will contrubute to things getting back to how they were. i..e. eat supa healthy (possibly supplamentation) exersize and also remember to relax, whatever helps you to do this would be good. I think do your best to believe you will be fine and strengthen those pathways in your brain.. best of luck..

yeah..... or people who dont have bad trips..

yeah this is kind of intresting theory... Do all people that have HPPD get it post a bad trip..? Maybe it has something to do with a bad trip being so tramatic... that it all gets pushed into the sub-conscious.. Its kind of knowen that, when a person undergoes extreem trauma, they do everything they can to try and avoid it. In the act of trying to avoid it, they are actually focusing on it again and possibly re-experiencing on some level.. Maybe this is part of the mecahnism bethid PTSD..

hmm ok.. what about pre workout intensifires (sports supplaments) they contain alot of caffene and i use them. I also drink coffee.. I hope this does not delay recovery for me.. Agreed it does amp symptoms at times...

That sounds great Visual! I will forward your post thru to them also.. No.. Dr A did not send anything regarding this...yet

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Awesome.. well said Jay!

Also, if aneyone has any additional ideas for studys, please suggest here. Although, it has to be "realistic" and do-able..

Thanks for your imput! Thats very helpful and i agree. I will relay all responses back to the team in London. They want to hear from us "sufferers".. what we feel would be most beneficial, so we can move in that direction quickly.

This was put together and compiled by the amazing team in London. It encapulates some of what was discussed on the call and will be forwared to DR Abraham. Below is a summary of the studies that Dr Abraham suggested. For the open label drug study I think I may have a few of the drugs wrong or misspelt, Please share YOUR imput as well as what YOU think would give us the BEST OUTCOMES. What are YOU most intrested in ? When it comes to crowdfunding we could run a campaign starting with a small goal that could fund a not too expensive study that the forum are interested in, this might be the recovery rate study then include a stretch goal for something more expensive such as the genetic testing study. HPPD StudiesGeneral notes: Dr Abraham said that he has a database of patients with HPPD that hewould be happy to share for the purposes of our research. He mentioned that patients are very widely geographically dispersed, however he has quite a few European cases and most he thinks would be willing to take part in research. STUDY 1: Brain imaging study using MRI of patients with HPPD and people with no HPPD This would help us understand better the pathways that are being affected by HPPD giving us more insight into the condition. Study 2: Pupil dilation testStudy 2: Pupil dilation testDr Abraham noticed that HPPD patients seemed to have more dilated pupils than people with no HPPD. This is a symptom of a hyper-aroused automnomic system. A simple test measuring pupils size of patients in controlled lighting conditions verses control would test this hypothesis. Study 3: PPI (pre pulse inhibition) When people have a pre warning on a sound they are less likely to be startled, however in patients with schizophrenia the pre pulse does not seem to affect the startle response. This is thought to be related to the dopinergic system, other conditions such as ADHD, OCD and Tourettes also show reduced PPI. Dr Abraham hypothesis that HPPD patients may have reduced PPI suggesting that the pathway causing the condition may be similar (but less pronounced) to schizophrenia. Study 4: CFF and dark adaption Dr Abraham said that people with HPPD have very bad night blindness Study 5: Genetic vulnerability Dr Abraham applied for funding for this study 3 times, he believed there are specific genetic vulnerabilities in patients with HPPD. He is happy to share the information on the genes that he thinks are relevant. If a genetic study is to be conducted it would be interesting to do this in conjunction with study 6 (below) to see if genes could be used as a tool to predict the duration of HPPD. Study 6:Recovery rate The study would investigate what proportion of people with HPPD recover. From Dr Abrahams observations those who do recover do so within 5 years and around 50% recover. He suggested that it may be possible to do this study using surveys and there are special validated ways of doing this to ensure the findings are robust. This includes having face to face interviewers. Interviewing people twice by two differentt interviewers to make sure responses match and also using various other techniques. Questions to include:What initiated your HPPD? How long ago did you first experience HPPD? Have you symptoms changed since you first experienced it? Have you experienced any psychiatric co-morbidities? Does the intensity of your HPPD vary and what causes variations in intensity? Does anxiety influence symptoms? Study 7: Open-label study on the effectiveness of treatments for HPPD Select drug treatments that are thought to improve HPPD symptoms and do a cross over study using questionairees to measure the effectiveness of each treatment and any associated side effects.Treatments to test include: Treatments to test include: Clonidine which is an alpha 2 agonist Festidalcholine (not sure if that is the right name) which improves the eye? It helps with fatty acid metabolism and improves nerve cell integrity Methylfolate – this is the active form of folate and ¼ of depressed people lack the enzyme that converts folate to it’s active formStudy 8: Anxiety study Many people with HPPD comment that anxiety makes it worse. It is possible to test this theory and see if anxiety is a trigger for more intense symptoms. Anxiety can be triggered using CO2 (I think). A study could be designed that measures this, if anxiety is a trigger than ways of reducing anxiety could potentially be used as treatment. This includes meditation, yoga, maybe other forms of exercise depending on the individual such as martial arts and then improvements could be tested. Dr Abraham emphasized that meditation has been shown to significantly reduce anxiety.

Please see : HPPD Studies YOUR imput NEEDED

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Exellent.. thats a very good indicator and sign. Dr Abraham was talking about them on the call last night, Saying the Famous "Bono" one of his clients wears them. I am going to book in on monday for a fitting. Wouldnt this prove that hppd has to do with the way we process visual stimuli and certain areas not shutting off, or being ultra sensative etc

We Just had a great 4 way Skype call between Dr Abraham, "Team Working in London", Jay and Myself... Dr Abraham enlightend us on many facinating topics relating to dynamics of HPPD and we disussed possible reaserch / treatment ideas and options. Dr Abraham will also supply the team in London with important files conatining many facets of HPPD to assist. The main essence of the Dialouge will be typed up by the London Team and sent to Dr Abraham to proof read. From there a joint decision will be made on the best course of action to proceed with, in regards to reaserch etc etc.. Dr Abraham has kindly said he would not be phyisically involved in the reaserch, tho he can operate as "the brains behind it" together with the Team in London. It was a very possative call and a great outcome thus far..

I think they are some special type.. I have not tried them yet that they look good.. I will make enquries today

My neuro specalist suggested me getting coloured glasses.. Another specalist just suggested this web site http://www.aaic.org.au/ taken from there web site: it sounds similar to HPPD... It can assit with "brain injury" Worthwhile looking into.. I have read that HPPD has to do partly with how we process Visual information..

Yes its great news.. It was a great help haveing Jay there on the call also. Really do hope we can get her in Touch with David Kozin and or Docter Abriham very soon! and get this moveing quickly..

how about testing on Individuals...? i always thaught a live specamine / candidate would be better, run tests etc and see what responds to.. etc

ok awesome Jay... I will add you in on the call.. Its 7pm Sydney time so best to take a look on a time zone converter