OldSchoolAr

Maybe we could do a promotional trailer to attract movie funding at the same time we do the doccumentary. Can the lady who is writing the book on HPPD assist with this? Maybe she could promote sales of her book at the same... There are some intresting videos below the video posted above that we may be able to pull ideas from also.

Here has been a lot of talk about doing a documentary on HPPD which is great. I think we definitely should take the steps to do that as soon as we can. Just imagine if we could then take it to the next level by then making it into something bigger. Possibly a Movie. Here is a link on how people are receiving funding to make a movie about MDMA. https://www.indiegogo.com/projects/mdma-the-movie Possibly we too can receive funding for a Movie or Hi-Quality documentary on HPPD that would assist in achieving global awareness about the condition and assist in the development of research and or finding treatment / cure. There have been many High quality documentaries’ on similar topics that have done extremely well reaching hundreds of thousands of people. Thought this would be a worthy share.

Sure i understand what your saying Jay... Yeah... MDMA spun me quite badly post HPPD also.. yes right on Hope 1.. Just like Jay says... Thanks.. absoloutley.. Good idea leave the thinking to the Experts.

Sometimes it seems as tho some people are bent on TRYING to pull others down.. I have multiple TOP experts telling me HPPD Primarily Nurological and is distinct from any mental illness. That is what i listen to I dont let bullshit rent a space in my head..

thanks for shareing what i already knew.. yes HPPD is a Nurological Disorder that is phyisical NOT mental.. HPPD is NOT a mental illness.

Yes.. that was thanks to Visuals Smart and Quick thinking ... perfect respnse to "how many people hppd suffer" Its really exiting. have a feeling we will be in touch shortly after easter break.. yes Jay.. They are based in London .. Maybe you could meet with them

Right on Jay.. I agree :-) Dude... to me that sounds pretty harsh.. Do you honestley think that every HPPDer has a Mental Disease.. many Hppders are actually highly functioning individuals with succesful careers and Lives.. My understanding of HPPD is that its Purely a Visual / Perceptual disorder, that is Physical / Neurological. I.e. a person’s mind set stays intact, that is not affected. It’s only Visual / Perceptual disturbances. Id have to say.. its this kind of talk that actually makes me want to avoid this site at times. I understand that people are at where they are at.. and we all have freedom of speech.. Anyhow.. In my opinion we can empower or disempower ourselves greatly with the speech we use and the labels we place upon ourselves. I agree with what you are sharing about career, work etc. Tho I feel there would be fun and creative ways to adequately conceal my identity so I’m not recognizable. It’s a risk I’m willing to take. Others may not be… and that’s ok. At the end of the day. What others think of me is none of my business, i.e. who gives a F&*k. They are free to continue with there perfect normal and mundane existance... So revealing that you have HPPD may be similar to coming out LOL I’d have to say I admire people like David Kozin greatly for his attitude, fearlessness. I agree Hope 1 I think it may be productive 2 set a deadline, this may force ourselfes to actually step up and use all our resources to get the job done...

Ok cool, that’s sounds really great Jay! Exellent idea doing docters and current users! I’m a current sufferer, I will share my complete experience and journey on Video.. Only one catch. I will have to wear a hat and sunnys as don’t want to be recognized for career and works sake. That would be awesome, once done I will send the Video thru to you.. Thanks again lets spread the word

A few related pages to help keep us in the loop about the sudy and a link to reaserch funding face book page. http://realitysandwich.com/296608/worlds-first-imaging-study-of-the-brain-on-lsd-walacea/?fb_action_ids=10155374364830082&fb_action_types=og.likes&fb_source=feed_opengraph&action_object_map={%2210155374364830082%22%3A831378186933415}&action_type_map={%2210155374364830082%22%3A%22og.likes%22}&action_ref_map=[] https://www.facebook.com/groups/778343442241778/?pnref=lhc

That is an awesome effort ... Tho I’m curious.... Some of us have been inflicted by hppd in such a way that it may even make learning enough about HPPD to articulate it to institutions more challenging. Researchers and institutions should take this into account. Also, I have found that a human being will often times relate a lot better to Story’s. "Facts tell, story’s sell." For example, if I went into an institution and said I’ve been enduring constant visual distortions for the past 25 years, from this F&*ked up disorder…. a group of us suffer from this horrible “disorder" something needs to happen quickly, we need help as a group please. Here are the facts and statistics we have so far. Please help us get the ball rolling etc. Those that have the know-how and intelligence can take it from there. Often time’s humans sympathise and relate more with another’s suffering + story. Through sharing our greatest challenges we can create rapport. Sometimes I just feel it’s not about being able to articulate. We just need to do our best with the resources we have now. Possbly when people hear our story’s they well relate more and it will strike them at more of an emotional level rather than intellectual. Any thoughts?

Sure.. I wish i was was smart enough also. I wish i could educate myself enough on the topic so i could do it. Anyhow.,. I do hope someone finds the courage to step up to it soon. I suppose its good to just keep trying, we may get nocked back until one finallys says yes. Thats usually how i approach things anyhow. Is there any other creative ways we can think of ? Maybe telling in depth touching storys on utube and getting them out there may raise intrest and or awarness. Any other effective approaches we could think of would be great.

Thanks very much Hope1 Yes truly great Idea of yours! I initially saw the video and posted under "worlds first imaging study of the Brain on LSD" I don’t know why there seems to be so much promotion now days with video on the internet about LSD and DMT for so called positive uses and outcomes. I see many many videos. It seems like these "new age" groups or internet marketers are trying to raise awareness to create some type of shift in the public’s perception of these substances for a shift in humanity or something.. Anyhow. Natalie, the lady im corresponding with seems very helpful and caring. I think people are looking beyond any associated stigma which is really great. Its exiting she is taking real interest. Who knows, they may consider including us in the current research study. Or if not, I / we would plan to immediately start with setting up funding for our own pilot research study. I feel she would certainly help with this process. These some of the outcomes I would like to see take place anyhow. Yay this is exiting. Sometimes in life amazing things can happen when we least expect it.

Thanks Jay! Thats very helpful.. I will sent that thru to her Via email now also.. Will keep everyone posted here with the Dialogue taking place / emails and replys Cheers

its ok i have a good idea now :-) Visual helped me :-)

Ok wow that awesome and amazingly helpful! I will forward that to her now :-) This is what she just responded with Hi .... I'm speaking with Robin next week so will ask him then if he can help with this. It would be really helpful if you could give me a ballpark figure on the number of people you know who suffer from this as this will really help us understand more about how feasible it will be to crowdfund a study and what the size of the study could be. I will inbox you her email Visual ! Thanks so much !!

Approximatley How many people suffer from HPPD Globally ???? People in London conducting reaserch in a similar feild would like to know as soon as possible please.. reply to email.. Hi .... I'm speaking with Robin next week so will ask him then if he can help with this. It would be really helpful if you could give me a ballpark figure on the number of people you know who suffer from this as this will really help us understand more about how feasible it will be to crowdfund a study and what the size of the study could be.

Approximatley how many people suffer from or endure HPPD globaly ? Can you please let me know ASAP as some scientests conducting related studys in London want to know. Thanks

Hi Natalie, Thank you so much! I am in the process of finding out approximately how many people suffer from this. I will let you know as soon as I find out. Certainly another specific study would be excellent if we are able to raise the funds. Also, if you don’t mind I would also like find an expert who is very well versed in science to write about this matter and to pass that letter on to the team so they can have much more clear and depth understanding about the topic im presenting. Thankyou so much for your help and assistance! I appreciate it more than words can say J Looking forward to being in touch soon. ..........

I was exited and in need so i contacted them myself. Here is the email dialogue below. Hello :-) My name is.... I’m very interested in the study that is taking place as how the human brain reacts after taking LSD. Could you please let me know how I could get in touch with the people who are conducting the trial? Either by email or by telephone. It’s quite important. Please if you could help me that would be much appreciated. Thanks very much Hi ..... Are you able to elaborate a bit more on what you would like to know and I'll pass the message on. Natalie Hello Natalie, Thank you for your swift reply! I suffer with many other people from a chronic condition called HPPD. Hallucinogenic Persisting Perceptual Disorder. I have had it for over 25 years. It is a horrible drug induced disorder that was triggered by the use of LSD. Please see www.hppdonline.com and also http://amrglobal.powweb.com/category/hppd I am part of a community of people who suffer badly with HPPD. At the moment there is no treatment or even research going on for this "rare" condition. I know there can be benefits in taking LSD and that HPPD is rare. Tho we as a community really need help. I would do anything to understand this condition and to be able to find a possible treatment. Can you please consider allowing us or even a Professor who is an expert in the HPPD correspond with the team conducting the study. The study you are conducting may prove extremely valuable for us in understanding and treating HPPD. Please consider us. Many thanks Kind regards ..... Hi...., I'll forward your message onto the team and bring it up with them next time I speak to them. May I ask how big the community is of people who suffer from this as if the community is large enough it may be possible to crowdfund a separate study. Natalie Ok so can someone please let me know " how big the community is of people who suffer from this ? so i can let her know. If someone is exelent at speaking science, maybe NOW would be good to write them a depth letter. Like hope1 says. I was considering getting my Professor in Neuro Psychaitary to contact them also. Maybe Dr Abriham would be best ...

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haha :-) funny Visual that made me laugh

Sounds like you may be right Jay.. Tho i believe it would still be worth a try, instead of being either or he should make it a "both and" If there using if for other "disorders" then this would have to be an exellent chance for us as our "disorder" was caused by LSD I would like to make our own videos to attract finding for reaserch. Why cant we join forces ? they should really have the intent, "two birds with one stone"..

well thats not good.. what can we do now ??? no time like the present right...

Australia.. was seeing Professor Harry Mconnel at St Vincents Brisbane, he is one of the TOP Neuro Psychaitrist in Australia

Intresting article , It may be worth a try http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736944/