LarryC

As dukkha said, on the previous board you would have had many replies. There were mixed reviews regarding that question. It had been asked many time by new members and those new to klonopin. It does not reduce visuals for everyone.

Thanks. I wonder if my doc will switch me over. I am going through nicotine withdrawel right now, so not a time to try to get off benzos too. I quit smoking for almost 12 years and then went back to it 2 years ago and paid dearly for it. So off cigarettes is paramount. I just have bad sleep and all dreams disturb me. It also makes me depressed. Don'y know why I went back on klono, it did not reduce my visuals.

To 1998's point, blood pressue meds should only be taken if you have uncontrolled high blood pressure. Just an experience, my blood pressure elevated very much at the same time I relapsed into hppd symptoms. I take blood pressure medications and there is no improvement to my hppd symptoms.

Klonopin CAN actually reduce symptoms, lessen visuals. There is scientific basis for its effect on visual symptom reduction. As I said it can reduce them. It does not help all people. It not knowm why. Note that with all other medications for this malady, for some they work (help reduce certain symptoms) and for some they don't. This should though not be any surprise as this is the case for more common ailments, where a med works for one person but not anothet.

Unfortunately for me I developed an addiction to klonozipan again. I have to take it for a while and then try to withdraw. It is hell just having a tolerance and it wearing off. Ny sleep is terrible and I am alway waking up with disturbing dreams. Doesn't matter what the dream is. They all become disturbing when the benzo is wearing off.

Left me out . BTW Jay found out about the new site from me. He posted once and then not hear from him since. The membership has gone down considerably. When I was monitoring the board there were many people who came and went and alot of people who were on for a long time, went away for a while and then came back again. You Dukkha for example. Also much content, certainly not all quality, but enough quality postings info and sharing to be interesting and at times informative.

HPPD does alleviate to great extents and also completely in many cases. As I mentioned before the people who experienced this have no rrason to be here. The clinical studies show this. One doctor who has much clinical experience with people with hppd said to me that hppd is very complex and there are periods of alleviation and recurrance. This has happened to me.

I suggest 2) and 3). Best to see if there is something that the med community can detect.

Gone. Only David knows what happened and why. All content is gone. Membership and posts to this new board is very low. I miss the old board and content too. Don't miss the nutty members and theories though.

1) How long have you been on klonopin and at what dose. Long term use of these meds can cause havoc in your nervous system and may cause or contribute to the vertigo 2) There may be some issue with your inner ear. Problems there cause vertigo. See a ENT specialist and describe your problem. 3) There may be a blood diffusion issue in the brain. After 2) if no answer from him/her, see a neurologist and discuss the symptoms and mention the blood flow to the brain possibility if he/she does not. You may need to have a neurospect scan.

I thought by this time many of the members who were on the old long standing site would find that the site is back. Albeit without all the content. Though not many have joined or even visited. Very few posts for the time this board has been activated.

When will names of the speakers and the agenda be available?

Also remember that people get better just with the passage of time. The brain can eventually reregulate. It has happened to lots of people. They are not here. They have no reason to be.

Risperidal can worsen the visual and all other hppd effects. The reason is that it attaches to the 5ht2a receptor which can cause after images. Not everyone who takes it will experience that but it is a risk. Try a search for risperdal (whatever the correct spelling is) and after images. There is a paper that comes up that explains the reason that some people (none hppd'rs) experience after images on this med.

Never heard about this. Maybe David would know or can find out.

Sorry to here it has got worse but that may be temporary. Caffeine does negatively affect some people. I gave it up years ago but once in a while have some and it affects me badly. The first treatment is usually klonopin and helps some to an extent. You can correspond with Dr. Abraham, who researchd hppd and coined the phrase and brought it to the attention of the medical community and has written several papers on it. Go to his website www.drabraham.com Keep positive and update your condition. Take care of yourself in all ways. Larry

Hi Mandrake, Yes we read alot about the good the bad and the horrible of antidepressants. One thing that is certain is that many people without hppd have problems with antidepressants. This is mainly an initial reaction and the type of antidepressant taken as with all meds for different people. I have had to go through the initial problems with Lexapro but those went away after several weeks. With any of the many choices need to work with your doc to see if it is a passing problem or the wrong antidepressant. I don't notice any visual problem increase with ssri's but with snri's there were issues. I take small doses of neurontin which ups my mood. I no longer take Lexapro because even with insurance the out of pocket cost is over $100/month because this insurance company took it off their list of meds they pay the major cost. Take care, good to see you here. Larry

The only possibility I see is that minox may temporarily lower blood pressure.

I do not know what your med history or drug use is or was. Some people find visual symptom reduction with Klonopin and Keppra.

I also am looking to use it for fibromyalgia pain. Thanks. Went to my doctor yesterday and needs me to adust to some other meds I am taking for other reasons first and show improvement. I see him in a month and then we will discuss again the use and prescribing it for m. I asked and he said there are no major contraindications foe this med,

What s considered a low dose? What dose has been effective for pain for those who have taken it for fibromyalgia and other pain?

Hi Joe, Thanks for this post and your personal message. Could you list some links that talk about Naltrexone and fibro and chronic fatigue? I would like to print out and take to my doctor. Thanks, Larry

Robbie, Thanks for the info about the med and fibro. I have fibromyalgia and nothing helps. Can't see me asking my doc for another med right now though. I never had DP/DR so not an interest for the HPPD for me. But good to hear youare having good results. Wish there were more of the long term members on this site. Many have DP/DR and might benefit from this. They would certainly be glad to hear about a med that helps with that symptom which seems to be the most difficult to deal with for them who have posted.

Partially due to direct symptoms and seemingly related symptoms. Also going back to work to be engaged and productive, after 1 1/2 years. And because I can not live without an income.

lt Hey Balance, it has been a while. I see that many people do not know the site is up again. There was no update on the site that announced the reconstruction as was said. It may be difficult to get the word out. I am doing about the same. Start working Monday again after a long absence out of work. How you doing?