must-be-a-way-to-heal

hmmm think Keppra may be making me feel some anger / agression at times thus far.........

ok sure, that sounds like fun too.

haha yes for sure it does for sure whatever it takes to get the job done i suppose that looks like quite a creation.. built a master "peice" involving all body parts, and great cardio workout too, especially involving the lungs.. inhelation / exhelation hehe looks very natrual to me great photo !!!

ok sure, Great tat

ok thanks very much Gorhmeh and Jay 1.. that is very helpful and now i am informed as to how i should be taking it. Visual - i am not sure wheter or not they are slow relaese or regular, it just says Keppra 250mg (Levetiracetam) on the packet. Whether that is release of regular im not sure. If eithre one are more beneficial im sure to be able to get a script for eithre one of the two. Cheers - Thanks

oK thanks mate.. im not sure? Ive just taken two 250mg tabs and feeling a kinda pilled.. can feel lt, it is quite strong.. I agree with you.. time is on my side.. Though im not sure how i should be taking it? I have never done this.. i.e How much to take each day? etc Im just doing my best to follow / work out what others have done.. Im really not sure if how i am taking it is correct or not... Any guidance would be greatly appreciated please ... cheers many thanks.

Hey Everyone- Ok.. I have just been to the docter. He has perscribed me keppra 250mg tablets. At this stage i am going to "model" what has been so effective for r.trudeau Starting with 1000mgs per day, so that is equel two whole tablets in the morning and two whole tabs in evening, and then move it up possibly to 1500mgs in a few weeks time. I am taking a small amount of Valium in evenings when needed, only one tab / 5mg. I did make inqurys about Flunarizine, unfortunatley it is not available in Australia yet. ok, so wish me luck.. fingers and toes crossed on this one

Awesome that sounds very good .. congrats I have been training for 9 years consistantly and competed nationally a few years back. I have totally transformed my body and recently started earning cash from my hobby by creating digital products for sale online. I use a very effective style of training called Max OT .. there is a free online training series @ www.ast-ss.com highly recomend it

ok cool that was very helpful Visual.. thanks Visual and thanks Everyone.. I was going to mention i definatley have halos as a part of my symptomology. As far as i am aware, i have all hppd visual symtoms. I think that is a good idea ... re : symptom description for each individual and what meds are beneficial. Seeing my dictor in 2 hours, i will bring up with him Gabapentin, Klonopin (although have used for long periods of time previous) and Vicoprofin / possible combination..... as mentioned by Visual, and also keppra. I have a feeling Naltrexone would likley be benefical.. tho i have a feeling it would nock me around i.e. put me on my ass .. and find daily functioning and effectivness an issue, as well as being highly addictive. Who knows.. it may possibly be worth a try...? i will discuss this with him today also. Thanks again.

haha awesome ideas.. Visual that that is sick.. Is that you?

I have always liked some some traditional native american art work images.. even though i am not from there It is usually beatiful, powerful, symbolic / has various meanings ... here is an example, though not exactly like this one. A good place to view diffrent images is : google advanced image search http://www.makah-ind...derbird.jpg.jpg Thre are some very detailed images which are pretty awesome .. Just an idea.. Im also fond of the "Pheonix Riseing"... That is symbolic of the "heroes journey" The decent.. finding of resources / healing and making the "return / home" http://gretchendelri...04/dsc01391.jpg so much out there to choose from

Hey Visual, Sure yes, i agree that after three whole pills it is not needed by me. It is ok.. I have not been in the best space the past few days.. im sure there has been certain triggers / stressors tho.. at times finding it way too much to handle, like enough is enough... It is good to hear there are no bad side effects with Sinamet.. I will be seeing my docter tomorrow... i will get Keppra from him and will be sure keep you all in the loop about that. I will also make inquries about possibly trying FLUNARIZINE too possibly. Thanks again very much for all your amazing support and insight

Thanks very much Jay 1.. Ok i will get clear on the best way to come off Sinemet from my Doc.. i have only been using Valium for a short while anyway.. Thanks very much i will keep everyone posted about starting Keppra next week.

unfortunatley it has been three weeks now and im not notecing any changes,,,, it may be time to come off it??

Hey everyone.. Have been taking Leprodopa for over 3 weekeeks now and moved up to 3 whole tabs per day. Unfortunatley i have noticed no differance in HPPD symptoms. I Possibly will stop taking it soon, ... is there a right way to stop taking it? Will also be starting on Keppra within the week... Do you suggest having all drugs out of my system before i start taking it, i.e. Sinemet and Valuim.. Thanks very much

Ok look forward to shareing soon

Hey R.Trudeua, That is such awesome news .. congratulations .. i am really happy for you! I can relate to lots of aspects of your story, i got HPPD around 17 years old too, also doring school and was my reason for dropping out. Thanks for shareing. I am really intrested in going on Keppra.. will be seeing my docter early next week so i will start on it then. I would love a copy of the medication trial to help convince your doctor to give me the medication. I will send you a message. Great connecting with you, happy for you! Have an awesome week

Great this is really intresting too.. Fantasic to hear of your improvements Jay1... This is something i am going to look into also

That is awesome news Servey!! I am very happy for you and thankyou for shareing all of your great info I am curently giving Sinamet a good trial... Will be seeing docter nex week and i am going to follow through with what you recomended on Keppra and Flunarizine Great news.. Thanks!!

Ok, great thankyou !! :-)

Sounds reasonable. The limit to set for Sinemet 25/100 would be 4 pills a day. So trying 3 isn't bad at all. Cool ill start that then, did two whole pills today .. ill start on 3 tomorrow If 3 or 4 per day helps, then it is a question of how long you work with it at this dose - a question to workout with doctors. Absoloutley ill discuss this with the docter While low dose for life is without problems, higher amounts for years can cause other problems. Oh really.. ok that is good to be aware of.. Jeez i wish there was just some way to get this better.... To put this in perspective: they make Sinemet 10/100 of which you can take 10 pills per day. People with advanced Parkinson's disease use this. However at this dose, the statistics are that 50% taking Sinemet for 5 years or longer will develop dyskinesia (involuntary movements). Ok .. that does sound quite full on, ill most certainly avoid that one. It is nothing to worry about now since we don't even know if the med will help you. And short term will not cause such problems. Totally Agreed... Hope this info helps AWESOME..... VERY HELPFUL INDEED ... Thanks SOOOO MUCH VISUAL :-) !!!!

I am thinking of going to Boston for medication HPPD trials.. If any Moderators have David Kozins contact number or e mail... can you please send it to me via message. I Did have it and recentley spoke with him by phone and have unfortunatley mis-placed his number. Now he is no longer on FaceBook so it is tricky to get in touch with him.. That would be much appreciated ,, Thankyou

i am considering increasing my dose to three whole tabs per day.............. what is your opinion on this?

Yes, unfortunatley it is troublesome... Thinking about music sounds good... you are right there.. all the senses can be involved in the meditation... and what is most important is the feelings in ones heart, that counts most anyway. Thanks.. yes it is a real problem, geez ive been working on this for half my life LOL I am more 'Western' in thinking and don't think of God in visual terms (even though vision is my favorite of the senses ) Cool that is Great .. this philosiphy i shared mainly originates from Ancient Eastern tardidions tho it is universal in scope ... haha i think my fravroute sense at present would have to be touch.. im well over visuals LOL

maybe i should increase my dose to three whole tabs per day.. i am a big dude LOL