Perampanel/Fycompa - a novel anti-epileptic drug that pretty much cured my HPPD.

[SOLHOFF]

I decided to make this post to help others find this option of treatment. I have not seen any discussion of this drug at all.

I had severe HPPD with tracers, visual snow, everything. It took a huge toll on my happiness in life.

I tried several medications, all without success:

- Lamotrigin (maybe a little "happier", less DPDR)

- Levetiracetam (here I noticed an improvement that disappeared after a week or so)

Now, following the glutamate theory, I was prescribed a very novel anti-epilepsy drug called Fycompa/Perampanel.

It cured 90% of my symptoms and I pretty much live like pre-HPPD.

I even have returned to recreational drug use with dopaminergic and opioid substances without negative effects.

I HIGHLY encourage HPPD sufferers to try this medication!

 

Edited January 26, 2022 by SOLHOFF

[Jay1]

Interesting to hear. Just read the wiki and it sounds promising, though the side effects and abuse potential make me believe it will be hard to get prescribed. Did your doctor recommend it, or it is something you asked to try? 

[SOLHOFF]

The doctor recommended it. 

Following this, he also prescriped me Memantine which didnt do anything really, maybe even increased anxiety.

I only use this medication now.

[SOLHOFF]

The abuse potential is there, but rather low.

My doctor was very cooperative, we exchanged ideas and studies openly. 

The medication is also very expensive. I pay 500 EUR for 100 tabs (100 days)

[Sharlot]

What symptoms did you have - glow, halos, on what day did you feel better after taking the drug? and in what dosage? Do you take 2, 4 or 8 mg per day? thanks. I want to try the remedy after consulting with my doctor

[tveminuty]

I tried to drink the course, for 3 months, with different dosages. It didn't help me.The description of your symptoms can be safely applied to me.