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RESEARCH POST - PARTICIPANTS NEEDED IN THE NEXT FEW DAYS - THE MESSAGE ABOVE WILL LAST UNTIL RESEARCH IS CLOSED. I AM NOT SORRY FOR THE INCONVENIENCE, I WANT EVERYONE TO SEE! :)


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  • "In 2002, when I started this website, we all hoped that research like this would come along. "
          -
     All of us from 2002, I am pretty sure.  


    The window to participate will close in a few days and the questionnaire is approximately 15 minutes long
    The e-mail, which is provided below, to receive a link for the study is: 
    hppd@mq.edu.au
     
    This information is from Professor Harry McConnell. I apologize for sending/posting an earlier copy that contained information linked to a foundation. No information goes to any group not listed here.

     

    Hallucinogen Persisting Perception Disorder (HPPD) Macquarie University (MQ) - ICAN Protocol

     

    Hallucinogen persisting perception disorder (HPPD) refers to the condition in which an individual, after the consumption of hallucinogens, experiences recurring sensory disturbances years afterwards that are reminiscent of those experienced during the intoxication of the hallucinogen. It is particularly associated with the consumption of lysergic acid diethylamide (LSD) ecstasy (MDMA) and other recreational and prescription medications.

    This project is a collaboration of Macquarie University and ICAN, and is carried out by our highly specialised team of clinical researchers, Ophthalmologists and Psychiatrists who have been studying HPPD and its relevant visual symptoms for many years. The team is based in Australia with Dr Wei He (MQ/ICAN), Associate Professor Paul Sowman (MQ), Professor Harry McConnell (ICAN), Associate Professor Clare Fraser (MQ), Ms Anneliese McConnell (MQ/ICAN). We are also collaborating with Dr Steven Locke from Harvard and Dr Natalie Gukasyan from Johns Hopkins for the questionnaire part of this study.

    Phase 1: The LimeSurvey Questionnaire

    The questionnaire examines the nature of HPPD, the effect of hallucinogens on the condition and the changes in the brain processing of vision that may occur in patients with HPPD. The study involves an online survey to obtain information across basic demographics, drug use, HPPD symptoms and medical comorbidities. We are looking at the nature of symptoms, their medications and other conditions people may have.

    Everyone is invited to participate the questionnaire study. The questionnaire takes about 15 minutes - we will send you a link when you email us at hppd@mq.edu.au

    **Please check your Spam or Junk mail box for the link once you have email us but not got the link.**

    Phase 2: Neuroimaging Protocol (only for those who completed the questionnaire)

    Patients in Australia who have completed the questionaries will also have the opportunity to participate in our functional Magnetic Resonance Imaging (fMRI) and Magnetoencephalography (MEG) studies to precisely measure the spatial and temporal activities of the visual pathways, which will be used to compare with control participants who are free from visual hallucinations.

    If you are in Australia and are interested in participating the neuroimaging protocol once completed the questionnaire study, please fill in this Microsoft Form and we will contact you for further information.

    We hope to be able to offer the neuroimaging protocol more widely, i.e., to non-Australian participants who completed the questionnaire study, in the future

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