Missjess Posted August 13, 2015 Report Share Posted August 13, 2015 I just started seeing a neurologist recently and I am scheduled to get an MRI brain scan with gadolinium contrast dye..I was wondering if anyone has ever had that before and if they have reacted to the dye ?? I'm feeling anxious about it Link to comment Share on other sites More sharing options...
brake Posted August 14, 2015 Report Share Posted August 14, 2015 IMO - unless you have something possibly fatal, stay away from dye contrasts. I had some slight to moderate bad reactions to gadolinium before that lasted a couple of months. Link to comment Share on other sites More sharing options...
Missjess Posted August 14, 2015 Author Report Share Posted August 14, 2015 It's to get tested for multiple sclerosis which I believe to be the cause of my visual impairment and along with a host of many other neurological symptoms including numbness and tingling. Can u tell me more about ur reactions to it...did they use the minimal amount possible ? How did it affect ur vision etc Link to comment Share on other sites More sharing options...
WuWei Posted August 14, 2015 Report Share Posted August 14, 2015 I've had a head MRI with contrast. Had no issues with it other than I got anxious when they injected it but it goes away in like 5 seconds. I asked the tech about it and she said something like "Yeah that happens... some people feel like they're going to pee themselves. We don't tell people usually because it makes them nervous about it and it only lasts a second." I had no issues with it. Don't worry about it. Link to comment Share on other sites More sharing options...
Missjess Posted August 14, 2015 Author Report Share Posted August 14, 2015 I've had a head MRI with contrast. Had no issues with it other than I got anxious when they injected it but it goes away in like 5 seconds. I asked the tech about it and she said something like "Yeah that happens... some people feel like they're going to pee themselves. We don't tell people usually because it makes them nervous about it and it only lasts a second." I had no issues with it. Don't worry about it. Did u have hppd at the time when u had the scan and contrast ? Link to comment Share on other sites More sharing options...
WuWei Posted August 14, 2015 Report Share Posted August 14, 2015 Did u have hppd at the time when u had the scan and contrast ? Yes for about 10 years at that point. Link to comment Share on other sites More sharing options...
brake Posted August 15, 2015 Report Share Posted August 15, 2015 I had some symptoms of heavy metal poisoning. Google it. Also google people's stories with gadolinium. For the majority of people with healthy kidneys taking it once is safe long term though. Link to comment Share on other sites More sharing options...
Missjess Posted August 15, 2015 Author Report Share Posted August 15, 2015 Are there any blood tests you can do to check kidney function before getting the scan done? I'm pretty sure my kidneys are healthy ...but then again I don't really know what has been damaged due to Iboga! I don't have heavy metal poisoning as far as I know Link to comment Share on other sites More sharing options...
Missjess Posted August 15, 2015 Author Report Share Posted August 15, 2015 Yes for about 10 years at that point. That's great it did not affect ur vision! Do most medications affect your vision? What aboit antibiotics? I'm just trying to get an idea if you are similar to me. Hopefully I will go through with the scan Link to comment Share on other sites More sharing options...
WuWei Posted August 15, 2015 Report Share Posted August 15, 2015 That's great it did not affect ur vision! Do most medications affect your vision? What aboit antibiotics? I'm just trying to get an idea if you are similar to me. Hopefully I will go through with the scan Antibiotics seem to make my symptoms worse. Hard to say for sure though. SSRI's as well. Honestly I'm not bothered by visual symptoms anymore. The perceptual symptoms and cognitive difficulties are the most difficult to cope with. Link to comment Share on other sites More sharing options...
Missjess Posted August 15, 2015 Author Report Share Posted August 15, 2015 Yeah I can't take antibiotics either ....cognitive is the worst and also perceptual exactly! So the dye was nothing like having an antibiotic then or a vitamin or supplement? Link to comment Share on other sites More sharing options...
WuWei Posted August 15, 2015 Report Share Posted August 15, 2015 Yeah I can't take antibiotics either ....cognitive is the worst and also perceptual exactly! So the dye was nothing like having an antibiotic then or a vitamin or supplement? No I had no issues with it. Link to comment Share on other sites More sharing options...
brake Posted August 15, 2015 Report Share Posted August 15, 2015 The dye did not affect visuals but gadolinium is a metal and some of it lingers within your body. Yeah you can take a blood test to see kidney function. Link to comment Share on other sites More sharing options...
mycall81 Posted August 15, 2015 Report Share Posted August 15, 2015 Damn WuWei. 10 years? Link to comment Share on other sites More sharing options...
Missjess Posted August 16, 2015 Author Report Share Posted August 16, 2015 Ok thanks guys ! I will most likely get a kidney test done before my scan Link to comment Share on other sites More sharing options...
Missjess Posted August 16, 2015 Author Report Share Posted August 16, 2015 So what kind of symptoma did you have brake from the gadolinium ? U mentioned symptoms of heavy metal poisoning but what were they ? Link to comment Share on other sites More sharing options...
brake Posted August 16, 2015 Report Share Posted August 16, 2015 My skin was itching all over, developed hives on my skin and tongue, felt chest pains when running, cognition got worse, was sensitive to smells, felt tingling in my extremeties, dark circles under eyes, had a metallic taste in my mouth, felt random sharp pains throughout my body, had trouble sleeping and would wake up much earlier than usual, had muscle twitching, and just generally felt weird. The symptoms actually started a day after the injection and lasted primarily a couple of weeks and then gradually went away. Garlic actually decreased the severity of my hives btw. Link to comment Share on other sites More sharing options...
Missjess Posted August 16, 2015 Author Report Share Posted August 16, 2015 Dam it looks like u had an allergic reaction ..anything can happen really and that's why I'm nervous to have it. But I do need too I just hate not knowing what's going to happen Link to comment Share on other sites More sharing options...
Missjess Posted August 16, 2015 Author Report Share Posted August 16, 2015 Dam it looks like u had an allergic reaction ..anything can happen really and that's why I'm nervous to have it. But I do need too I just hate not knowing what's going to happen Link to comment Share on other sites More sharing options...
brake Posted August 16, 2015 Report Share Posted August 16, 2015 They found out that gadolinium stays in the body of mice for a year after 1 injection. Everyone reacts differently. My aunt had like 6 mris with dye contrasts in 1 year and she didn't feel a thing. I know I'm never taking the dye contrast again... Link to comment Share on other sites More sharing options...
WuWei Posted August 16, 2015 Report Share Posted August 16, 2015 Some people are allergic to the dye. I see it listed as an allergy sometimes at work. Link to comment Share on other sites More sharing options...
WuWei Posted August 16, 2015 Report Share Posted August 16, 2015 Damn WuWei. 10 years? Yeah that was about 5 years ago or so. Link to comment Share on other sites More sharing options...
mycall81 Posted August 16, 2015 Report Share Posted August 16, 2015 Wow. So 15 years? Any improvement? Link to comment Share on other sites More sharing options...
WuWei Posted August 17, 2015 Report Share Posted August 17, 2015 Nope... it's changed but not improved. Link to comment Share on other sites More sharing options...
Missjess Posted August 20, 2015 Author Report Share Posted August 20, 2015 I wonder ..does gadolinium have aluminium in it? I remember doing a test for heavy metals and aluminium was the only one that came up as semi high..so I'm worried that gadolinium might be ffmm the same family Link to comment Share on other sites More sharing options...
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