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Missjess

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Everything posted by Missjess

  1. Hi.. I would LOVE to actually hear ur story and what happened to you with ibogaine !! It also destroyed my life too.
  2. Have u been tested for optic neuritis and or inflammation?
  3. I am getting to the bottom of my hppd and I am convinced it might actually be MS I react to everything and I have just discovered that it's an inflammatory reaction set off by my immune system. STEROIDS work!! If the neuro finds inflammation in my cns and brain hopefully he will start me on a course of high dose steroid treatment. Just thought I would share with everyone.
  4. I wonder ..does gadolinium have aluminium in it? I remember doing a test for heavy metals and aluminium was the only one that came up as semi high..so I'm worried that gadolinium might be ffmm the same family
  5. Dam it looks like u had an allergic reaction ..anything can happen really and that's why I'm nervous to have it. But I do need too I just hate not knowing what's going to happen
  6. Dam it looks like u had an allergic reaction ..anything can happen really and that's why I'm nervous to have it. But I do need too I just hate not knowing what's going to happen
  7. So what kind of symptoma did you have brake from the gadolinium ? U mentioned symptoms of heavy metal poisoning but what were they ?
  8. Ok thanks guys ! I will most likely get a kidney test done before my scan
  9. Yeah I can't take antibiotics either ....cognitive is the worst and also perceptual exactly! So the dye was nothing like having an antibiotic then or a vitamin or supplement?
  10. That's great it did not affect ur vision! Do most medications affect your vision? What aboit antibiotics? I'm just trying to get an idea if you are similar to me. Hopefully I will go through with the scan
  11. Are there any blood tests you can do to check kidney function before getting the scan done? I'm pretty sure my kidneys are healthy ...but then again I don't really know what has been damaged due to Iboga! I don't have heavy metal poisoning as far as I know
  12. Did u have hppd at the time when u had the scan and contrast ?
  13. It's to get tested for multiple sclerosis which I believe to be the cause of my visual impairment and along with a host of many other neurological symptoms including numbness and tingling. Can u tell me more about ur reactions to it...did they use the minimal amount possible ? How did it affect ur vision etc
  14. I just started seeing a neurologist recently and I am scheduled to get an MRI brain scan with gadolinium contrast dye..I was wondering if anyone has ever had that before and if they have reacted to the dye ?? I'm feeling anxious about it
  15. Hope1 I'm so glad to hear that u have that..it would be horrible to think that u were homeless or dead Hppd is the pits !
  16. If it was the Paxil u would have already known straight away or after a few days of upping the dose. Alcohol made my hppd worse 10 folds ..I could drink for a while initially and I would feel a bit worse afterwards but then one night after I had a few drinks my vision went so fkn bad and it never went back. I think the alcohol and pot made ur hppd worse for sure
  17. Can you provide a photo of the QEEG results in people with hppd so I can compare it with my own ??
  18. Jay How can you think creative and focus with hppd ?? Good on u hey
  19. I don't and cannot work at all My cognitive function is so fuked up and I have no sensory awareness or connection to anyone or anything. How on earth can I work ?? I can't even retain new information ..I don't remember if I did something 5 minutes ago. Currently I'm on welfare and waiting to see a neurologist
  20. Yes everything fuked me up..supplements..lamictal..fish oil..herbs
  21. I recently made an awesome discovery ..I was perscribed steroids for my asthma recently ..I started taking them and they were also helping my reactions to everything! ..I have feared for a long time that Iboga caused massive inflammation in my cns which may be causing my visual disturbances ..and also multiple sclerosis. I plan on seeing a neurologist next month and I may consider trying high dose steroids to see if it fixes my vision.
  22. Yes please do so ...I am eager to hear ur experience and progress with them!
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